Archive for the ‘Hashimoto’s Disease’ Category
As part of my never-ending quest to seek nothing but the truth, I’ve decided to provide the only genuinely honest review the decade that’s nearly finished.
It fucking sucked. Really, it did. I’ll be glad to see the back of it.
Besides iPods, name one good thing about the noughties? Even its nickname is pathetically lame.
The decade started with the Millennium, which was supposed to be the biggest celebration of all time. I spent the night in central London, on the River Thames, broadcasting live to all over the world. Maybe you saw me there, I was in charge of a broadcast tent near Lambeth Bridge, blocking people’s views of the fireworks and River of Fire.
Ha, the River of Fire was the first major disappointment of many in the noughties, a damp squib rather than spectacular and a giant let down for those who braved the cold to witness it. I’ve never heard such a loud, collective, “is that really it?” in my life.
London crowds can be drunken and angry and the night of the Millennium was no exception. As the clock struck midnight and I was transmitting live on behalf of four different foreign broadcasters, someone unplugged our generator cable and everything went dark.
Don’t worry, one of the technicians managed to get it reconnected and it all worked, though the cables were covered with human urine, which wasn’t so pleasant for the engineer. On top of that, the crowd attacked us and tried to steal our expensive TV gear. I can remember smacking peoples’ arms and hands away from tripods and lights as the fireworks began.
We were all ready for the Y2K bug, a peculiar glitch in some older computers that prevented it for handling 4-digit years, meaning some unpatched computers would think it was 1900, not the year 2000. We expected the telephone network to collapse, the power grid to crash, along with all the jumbo jets flying overhead.
It didn’t happen, nothing happened, crisis averted.
But that didn’t mean the noughties were crisis free, because less than a year later, George W. (for What the fuck?) Bush stole the election and became the most powerful sub-normally intelligent person in history. His presidency dominated the decade and his policies made the world a much shittier place.
Think for a second, if Al Gore had claimed the presidency instead. He should have won it, he did win it, but the Supreme Court had other ideas.
Do you think we’d be in Iraq if Gore had two terms in the White House? Probably not, but then we most likely wouldn’t have Barack Obama now.
Who’s to say?
The Bush presidency was built on the foundation of the Neo-Conservative moment and the Project for a New American Century. How’d all that turn out?
Let’s see, the entire economy melted down to near collapse and we seem to be engaged in George Orwell’s never-ending war while his Big Brother keeps track of our every thought and action.
Cool.
Bush was stupid, his advisors no smarter. They dug one stupid hole after another, each a little deeper than the last.
When the attacks of 11th September 2001 took place, you couldn’t imagine a worse commander and chief to have at the helm, unless you enjoy children’s books about pet goats, in which case he would be your number one choice.
9/11 changed everything, but the real shock and awe was how we felt as we watched the twin towers come crashing to the ground.
I’m old enough to remember when the World Trade Centre was built. I’d been lucky enough to visit the observation deck more than once, its a view you wouldn’t be able to duplicate again today without a helicopter.
We were devastated by those attacks, fiendishly simple, yet executed to maximum effect. I remember thinking that this was the beginning of the end of western civilisation and soon we would all be crawling through nothing but rubble, drinking brackish water from puddles in the streets.
How wrong I was!
9/11 was a blip, a lucky shot, a once in a lifetime terror strike from a group whose success exceeded even their own expectations. I’m sure they didn’t think the entire world would change so radically as a result of their actions, but change it did.
Keeping us secure became the number one priority, the cost being a dramatic reduction in our liberty and personal freedoms. Any extreme, radical action taken by a government could and would be justified by tagging it with an anti-terror bent.
Do you want to monitor all telephone calls and email messages? No problem.
Do you need my banking and credit history before I get on a plane? Sure thing!
How about my shoes, should I take them off too? Gosh, hope I don’t have holes in my socks!
Think how quickly we all simply adapted to these new realities, we made hardly a peep as our civil liberties were systematically stripped away.
Its become such a farce now, here in London you practically can’t even take a photograph in a public place without the police swooping down on you like you’re Mohammed Atta, scoping out another attack.
Think that’s good for business and tourism? Think again?
Terror is not the only thing that’s been scaring us in the last ten years, as the environment’s been on our minds too. You won’t see any government declaring war on climate change, even though its probably more of a threat to more people than terrorism could ever be.
The effects of climate change are apparent to anyone who can be bothered to look, yet there are people out there in the world who try to deny this inevitability. If you tried to deny the threat of terror, you would be labelled a traitor, but being a climate-change doubter will not earn you the same label.
Its probably too late to slow down climate change because we pissed away the last decade arguing about it. It would be funny, if it weren’t so damn tragic as the recent Copenhagen Climate Summit heartily illustrated.
The wars in the last ten years have been quite tragic too, especially the two major conflicts instigated by the West, Iraq and Afghanistan.
The war in Iraq was justified with false pretences and blatant, pre-meditated lies. I knew there were no weapons of mass destruction in Iraq and I had no access to any of the intelligence available to our leaders. They knew it too, but made up a bunch of nonsense any way.
I can remember being the only idiot in the world who thought that America and Britain wouldn’t go to war in Iraq. I genuinely believed they had no grounds to initiate a conflict and that they would back down at the last minute. I don’t think I’ve ever been more wrong, but not as wrong as launching that illegal and pointless war.
George W (for War Criminal) Bush and Tony Blair should both be sitting in prison cells in The Hague, awaiting their trials for crimes against humanity, but no one has the fucking balls to send them both there. The International Court should have charged them already, even if extradition would never happen. They both should pay for their crimes and sins.
But they won’t.
How many innocent lives have been lost in that pointless war? Iraq was far from perfect before the “allies” invaded, but the electricity flowed, the streets were safe and Iraq still had an educated, functional middle class.
I’m not a Saddam Hussein apologist, the guy was a nasty piece of work, repressive, iron fisted, unpleasant and vicious. But so what? Lots of countries are lead by shitbags, we don’t invade them and impose regime change just because we feel like it.
Regime change on its own is not a valid reason for war. In the case of Iraq, it turns out it was the only reason.
Saddam Hussein got strung up in a hastily organised hanging. There’s mobile phone video of it on the internet, that I’m sure you’ve seen by now. It was a very undignified end for an odious, horrible man. Though back in the 1970s, Saddam was friendly with America and funded by them, because he opposed Iran.
Things change, shit happens.
Afghanistan is a different shade of grey.
After 9/11, there was some sense in going into Afghanistan since that’s where the terror bases and training camps were. That’s also where the leader of the bad guys lived, oh what’s his name again?
Osama something or other.
They had the chance to capture or kill him in Tora Bora and blew it. He’s still allegedly alive and on the run in the border area between Afghanistan and Pakistan.
The problem with Afghanistan is after they chased Al Qaeda out, they were left fighting the Taliban. Big countries like America are crappy at fighting insurgencies and guerrilla wars, see Vietnam for proof. They’ve been dragged deeper into a civil conflict than they need to be.
Today, Afghanistan is a lawless basket-case of a nation, with a corrupt, ineffectual government at its centre and powerful war lords scattered throughout the country.
President Obama seems to think more troops will help and the decade is ending with him announcing further deployments.
When will they ever learn?
How’s never sound?
And speaking of America’s first black president, Barack Obama is one of the good things to come out of the noughties, but he wouldn’t have been possible if it weren’t for George W. (Where’d he go?) Bush. Bush paved the way for Obama, with his stupidity, mistakes and far right ideals.
Whether you agree with Obama’s policies or not, having a mixed race president in America is good for the entire world. I never thought I would see it in my lifetime, and like most people I was moved deeply by his election.
Do I think he’s doing a good job? Its way too early to tell. He hasn’t even been in office for an entire year yet. We should give the guy a chance. Ask me again in 3–7 years, when he’s finished and I’ll have enough information to form an opinion. Clearly, I wasn’t a voting member of the Nobel panel, because I never would have given the prize to Barack, at least not yet, anyway.
Personally, it wasn’t such a hot decade for me either. Both of my parents passed away, my father in 2004 and my mother in 2008. I miss them both every day.
This was the decade I well and truly entered middle age. I’m going to be forty-fucking-seven next month. The last decade saw me diagnosed with a stupid illness and I had a sustained period of unemployment while I was between jobs.
The illness, Hashimoto’s Disease, is allegedly under control and I did manage to secure gainful employment, for which I am very thankful, but neither period was particularly pleasant for me.
The progress of technology is one good thing to come from the last decade, I’ve got the some of the coolest toys I’ve ever owned currently in my possession.
I’m on my 3rd iMac, the latest a 27” beast with a quad-core processor that is lightening fast, its like having a stylish supercomputer parked on my desk.
By far, the most amazing thing I own is my iPhone 3GS, it is a gadget of unrivalled beauty, power and usefulness. If I had to choose one piece of kit that’s revolutionised my life, its my iPhone. It does more than I could have ever imagined and its abilities just keep growing with every app I install.
Citizen journalism came of age in the noughties, with websites similar to this one springing up at a rapid rate. The word “blog” didn’t even exist ten years ago and now there are millions of them.
Blogging came along when I needed it most, I started this one nearly 6 years ago during my dark and depressing period of unemployment.
Blogging gave me something to do, something to focus on, something to make me feel like I was still a functioning member of society. I had a way to contribute, a way to participate. Somehow, I still mattered, even if I felt like I didn’t.
Blogging may have saved my life. I would have continued to sink deeper had I not discovered Blogspot back in 2004.
And that’s where you all come in.
Without an audience, blogging is a bit pointless and while I am still not and will probably never be mainstream, I’ve had a level of support and interest that still astounds me. I’m thankful for every visitor I’ve ever had who has dropped by and hung out with me virtually.
Without all of you, I’d just be some guy writing longwinded essays for my own amusement. Ok, even with you all around, that statement is true, but its still better for having you all here.
Thanks very much for stopping by, you’ll always find a warm welcome here and I always put out on the first date.
I wish each and every one of you the very best of the holiday season. I hope the next decade sees all your hopes and dreams come true.
PS
I’m sure there’s plenty of stuff I left out of my review of the decade, but this short video review from Newsweek Magazine should fill in many of the gaps. Its quite US-centric, but its only 7 minutes long, so enjoy!
So Mrs. Hippy turns to me last night and says, “Don’t you post on your blog any more?”
She was surfing the internet on her iPod Touch, which she does quite a bit, preferring it to using our iMac.
“Of course I do”, I said slightly defensively, trying to remember when I last posted something here. I had to check.
It was three weeks ago. That’s long, even by my somewhat lax standards. So what have I been up to in that time?
I was kind of hoping you could tell me.
I haven’t been working that much. I haven’t been doing much of anything, if you must know. I think I am perfecting the art of being and nothingness. I’m not even sure if I exist any more or even ever existed in the first place.
I might not even be fictional. I could just be imaginary, living only in your mind.
You’re staring at a blank screen right now, only your mind thinks you are seeing words written by some weird make-believe, north London-based hippy. How’s your imaginary grammar?
See, this is what happens when you start the day with a strong coffee and a skunky spliff peppered with bubble-hash. Everyone should start their day this way.
I spend inordinate amounts of time simply lost in thought. I disappear into my own little Utopia, where I right the world’s wrongs and allow my creativity to flow freely.
I used to do all that in the real world, but at some point, I stopped.
Oh I’ve worked out when it stopped and why. It was when I first got sick with my stupid Hashimoto’s Disease a couple of years ago. I didn’t realise it at the time, it probably took another year before I twigged that something was actually physically wrong with me, but in retrospect, it all fits.
Between 2004 and 2007, I wrote 2 novels and was reasonably prolific here on my website too. Towards the end of that period, the 2nd book fizzled out while I was writing it and remains one chapter shy of being complete. The first book was published, but I didn’t do enough to promote it and it languishes on virtual shelves, unread.
The first book was nearly commissioned as a TV series too, but the media is a fickle and fucked up mistress. The guy who liked it and could have commissioned it with a flick of his pen, moved on; his replacements were far less enthusiastic and the possibility of producing the series faded away.
Rather than continue to plug away trying to do something with it, I let it go too. At the time, I just thought I had lost my enthusiasm for the project, but in truth, it was probably my ill health that robbed me of my fire.
I haven’t done much of anything since.
Of course, that’s not strictly true as I still work (mostly) full time and I do post the odd piece here, but my output is not even close to the levels I reached a few years ago.
I’m still being treated for the Hashimoto’s Disease and my doctor is still adjusting my medication levels. If they ever get it right, I should feel better and be back to my old self. That’s what they tell me, anyway.
In the mean time, I’ll continue to distract myself with my vivid imagination and soft drugs.
Now, aren’t you glad Mrs. Hippy asked if I still post here? Blame her for the 5 minutes of your life I just wasted, not me.
I haven’t put anything new up here in a couple of weeks, so I guess I should just post something.
This is that something, or rather it will be when I finish it.
I’ve only just started and I don’t know where this is going, so how will I know when its finished?
I’m still not feeling 100%, so this could turn into a hippy health bulletin. There’s a little bit to report.
After countless treatments with my chiropractor, my back is now 99.9% pain free. I’m sleeping well and moving well.
I’m still feeling listless and occasionally a bit breathless, but I saw an endocrinologist this week who explained why and made a recommendation that should help.
With thyroid problems, like my Hashimoto’s Disease, your blood is tested for two things, your T4 levels, which is the actual thyroid hormone and your TSH, which is Thyroid Stimulating Hormone and made by your pituitary gland.
While my T4 level was good, my TSH level is still on the high side and should be lower. Lowering it involves increasing my dose of medication again and another blood test in a month or so. I’m going to go see my GP next week to sort all that out and hopefully I’l be feeling some benefits in a couple of weeks.
That wasn’t much of an update, was it?
How about an update on my site?
If you haven’t noticed, even when I’m not putting new posts up here, I am still adding quality content…well quality if you are interested in my musical tastes or what I had for breakfast. I’m talking about my Last FM playlist and my most recent Tweets.
The Last FM widget on the right, shows you the last handful of songs I’ve listened to from my home media centre, my iMac and my iPhone. It also tells you when I was listening, so you can keep up with it in real time. I don’t know why you would want to, but you can if you like.
I’m still enjoying Twitter and I do tweet a fair amount daily, often at weird times, like the middle of the night or early morning. I’m sometimes around during the day and at night, it depends on my weird schedule. I tweet all sort of random crap, from interesting links to odd and surreal jokes.
Today, just for fun, I started using a hashtag for a virtual Glastonbury festival online — #virtualglasto — for people like me who will watch from my sofa, shielded from the elements and poorly cooked veggie burgers. I’m actually looking forward to Springsteen on Saturday night and I hope the BBC don’t fuck me over and only show a couple of songs. We want the whole goddamn set, goddamn it!
Mainly, I’m posting today because I’ve been getting so many new visitors. I’ve had another significant rise.
This is to let all you new visitors know that I’m alive and well and living in north London, just like always. Keep bookmarking me or grabbing the RSS feed and before you know it, I’ll post something amazing that will inform, entertain and amuse.
Just not today.
I think I’m finished now.
Its not lost on me that I haven’t posted anything here in an absolute age and a half. I’m all too aware of it.
I haven’t been so well for the last couple of weeks. Hey ho.
I’m waiting for the results of another blood test, that I had been putting off, but a few days ago, I had a couple of litres sucked out of my arm.
Ok, it seemed like litres, I didn’t look. I don’t like blood, especially my own if its not deep inside my veins.
The reason I’ve been putting it off is because my regular GP of nearly a dozen years is now on long-term sick leave and getting a blood test meant seeing a brand new doctor.
The new doctor and I didn’t get off to a great start. He took my blood pressure using some fancy automated gizmo and when he checked the reading, the expression on his face told me it wasn’t good.
My mother suffered from high blood pressure, took medication for it and was monitored regularly. With that in mind, I’ve always kept a close eye on mine, and thankfully it has consistently been low, 110/70 which for an oversized, middled-aged smoker is pretty damn good.
The electronic gizmo was showing 170/110, which is not good. Its about as far from good as you can be, its “call an ambulance now” good.
I was incredulous of this reading straight away and told him I’m consistently 110/70, young doctor new guy looked like he going to shit himself. I asked him to take it again with an old style, manual sphygmomanometer.
He had to go find one and I was momentarily left alone, my mind racing to the obvious, yet slim possibility that something changed with my blood pressure.
It could explain why I was feeling so shitty again.
The new doctor guy returned with an old-school blood pressure cuff, quickly wrapped it around my arm then pumped the squeezey ball for all he was worth. As he let the air out and took the reading, his concerned expression relaxed into a very slight grin and I knew it was fine.
And that’s all he said, “its fine”. He didn’t even share the correct, final score with me and I think I know why.
It was 110/70, just like I told him it should and would be.
Doctors don’t like it when you know more than they do, even if it is something as personal as your own damn blood pressure. Especially, younger, inexperienced and insecure doctors, like this one, who I unintentionally put on his back foot.
It would have been easier if he just got it right the first time, but that’s true of just about everything anyone gets wrong, ever.
I told him I had Hashimoto’s and needed to get my thyroid levels checked, though I said “T4 levels” just to be snarky and this time it was intentional. To be fair, this was right after he told me smoking cigarettes was bad for me, like he was the first person to share that particular pearl of wisdom.
“Well, gee whillikers, doc, they’re bad for you? I did not know that. Next you’re gonna tell me unprotected anal sex with crack whores is bad for me! I did not know that, either.”
He asked me what my symptoms were and I told him: breathlessness, like trying to catch your breath on a cold day without any exertion, very occasional, but noticeable heart palpitations, alternating sweats and chills, a big lack of energy and worst of all, my back problems have returned.
When I mentioned my back problem, he looked at me quizzically and I had to explain to him how I was suffering from inflammation in the joints of my spine, which were lighting up nerves in my leg, sciatic really. I had to go to explain that one of the symptoms of Hashimoto’s is inflamed joints as attributed by my regular GP last summer.
All of this started last summer when my back gave out and for around a fortnight I could barely walk. I got over it and haven’t had any real back problems since, just the occasional, isolated twinge, but nothing of any concern.
Until about 2 weeks ago, when I started getting severe pain shooting down my right leg, mainly in bed and bad enough to wake me up. I haven’t really slept more than 3 continuous hours since then, though often I wake up, put an ice pack on my back, or take a horrible codeine pill or both, and go back to sleep.
I saw my chiropractor three times last week, which improved it slightly. Since then, I’ve worked a couple of nights and its become bad again. Sitting in a shitty office chair for 12 hours will do that to you.
And because of the bank holiday weekend, I can’t see my chiropractor again until Tuesday, which is also bad.
Moan, moan, moan, I’m just a big hippy baby.
I left the doctor’s office with a blood test form, with more boxes checked than I ever thought possible, hence the litres of blood extracted. He’s running every test imaginable, which is cool, but he did it out of fear, not because he thought there was anything particularly wrong with me.
He didn’t really answer my question about the possibility of my thyroid levels dropping again, requiring an increase in my daily dose of levothyroxine. I don’t think he knew the answer. I don’t know either, but right now, its my best and only guess.
I was told by my regular (and much missed) GP, that once my dosage was adjusted properly, I would “feel like a new person”. That hasn’t happened yet and I’ve reached the point where I don’t think I ever will.
Yep, all of this has me down. I am bored with having health problems, its tedious always being asked with deep concern “how are you? no really, how are you?” I know people mean it and its not that I don’t appreciate their concern, I just don’t like having to answer it over and over again.
Mainly I’m bored with feeling like shit all the time. Its making me think all sorts of things, like: this is my life now, my best days are behind me, I’ve achieved nothing with my life.
All sorts of uplifting shit, really!
Just check out the title of this post, “Running out the clock”. That’s kind of a downer, isn’t it? Now that you know the context.
That’s how I feel right now, like I am just running out the clock, on those last few decades/years/months/days/hours/minutes/seconds (delete as appropriate) that I have left.
It doesn’t matter if its true, I mean of course its true, its true for everyone, but what matters I guess is that its how I feel right now. And I don’t feel like I have decades or years.
I should point out I have no medical evidence to suggest I am going to die any time soon and in actual fact, rationally I don’t believe I am going to die any time soon. I’m still talking about how I feel.
Emotionally.
Now, this is the part where I’m supposed to remind you (and myself) that I’ve always been a survivor and blah blah, I’ve come through this and I’ve come through that, but again that’s not how I feel.
I feel like I haven’t got any fight left in me, but that’s probably just the Hashimoto’s talking. I really do feel like my energy is zapped most of the time and doing the simplest things takes tremendous amounts of effort.
With that in mind, think how daunting anything complex must seem to me at the moment, like negotiating my way through the NHS to a better diagnosis and treatment.
Either I need a simple adjustment to my thyroid meds or something else is wrong. I can just about cope with another increase in my dosage and the additional tests required, but anything more than that and I don’t think I can be bothered.
Happy days.
I liked it better when I was the king of fun, but if I am going to get nostalgic, I might as well lament over how much I miss my beloved fresh and legal magic mushrooms and I still curse the government for banning them.
What’s the connection? Right now, I would really benefit from a decent, old fashioned shroom trip. An afternoon shroomed to the gills would do more for me than 10 years of psychotherapy ever could. And it would be cheaper, too.
Six months ago I was diagnosed with Hashimoto’s Disease, otherwise known as Chronic Thyroiditis. At the time I didn’t really grasp the significance or seriousness of my diagnosis.
I do now.
I’ve probably had this stupid disease for a while, longer than I’ve known. I had symptoms that I didn’t know were symptoms for at least a year prior to being told of the cause.
I just thought I was getting old.
I am getting old, but age was not causing my problems, my useless thyroid was…and is.
I’m still not well. I find myself saying that a lot lately, in response to people asking me why I look tired, or pale.
I’ve been undergoing treatment for Hashimoto’s since my diagnosis. Treatment comes in the form of a small pill taken daily to replace the thyroid hormone my body no longer manufactures.
The side effects caused by the pills are very similar to the symptoms of the disease. I get heart palpitations, breathlessness, headaches, dizziness, light-headedness and these get worse every time the dosage is raised.
The dosage gets raised every couple of months as I am still not on a therapeutically effective level yet. I started out on 25mg, then went to 50mg and now I am on 100mg of Levothyroxine. Its about to be raised again, probably to 150mg, though I am awaiting for the results of a blood test for confirmation.
Lately, extreme exhaustion and lethargy have been added to the mix. I constantly crave sleep, but I don’t sleep deeply or for very long. I get physically tired very easily and don’t have any of my usual stamina.
My normal walk to my local highstreet used to take me well under 10 minutes, it now takes me closer to 15 and the return journey is stretching to the 20 minute mark.
I’m having concentration problems too. “Brain fog” is another symptom and there’s a real pea-souper in my head most of the time. I find it difficult paying attention to people when they tell me anything complex, my mind wanders and I am easily distracted. The same is true of my reading comprehension, if a paragraph drags on too long, as this one seems to be doing, I forget what it says.
I get waves of nausea, my appetite vacillates between having none at all, to suddenly being ravenous and I’ve been having mood swings too.
All of this sucks the big one in a very real, demonstrable way and I am tired of it.
To complicate matters, I haven’t been having much fun with the NHS.
My GP referred me to a specialist and after waiting months for an appointment, I ended up leaving the clinic without seeing the consultant endocrinologist. The clinic was oversubscribed, there weren’t any seats in the waiting room, the nurses were surly and rude and after waiting way too long, I left.
I did receive a letter of apology from the consultant for my poor treatment, but that is a small consolation. The entire experience left me with a bad taste in my mouth and no desire to ever return to that clinic.
It gets even worse, my regular GP, who I have been seeing for nearly a dozen years has been having health problems of his own. He’s cut back his hours and for the last several weeks, I’ve been unable to see him. I finally gave up and saw the surgery’s senior partner.
The senior partner immediately said she would take over managing my care, which makes me think my regular doctor won’t be back full time any time soon.
Being sick seems to be hard work and I worry if I ever had something seriously big wrong with me that I wouldn’t have the patience to fight my way through the system to get the treatment I would need to survive.
And speaking of survival, people can and do die from Hashimoto’s Disease. One of the things it does to you is weaken your heart and one can suffer from heart failure. I’m not saying that’s what I am heading for, but quite often it does feel that way to me.
I’m told that once I am on an effective dose of medication, I’ll feel like a brand new person. I’ve heard that a lot for the last six months. I’d be happy if I could just feel like the old person I used to be, before I was diagnosed and on this stupid medication.
The exhaustion caught up to me this week and prevented me from getting to work. I’ve been living on adrenalin and my supply must have finally depleted, I sort of collapsed the other night. I’m now signed off work for a week to rest.
I feel like this is my life now and I’ll never feel like my old self again. I know I’m an impatient patient, but I just can’t see a path back to good health. Let’s hope my doctor’s vision is clearer than my own.
Since receiving my diagnosis of Hashmimoto’s Disease and writing about it here, the word “Hashimoto” is appearing with greater and greater frequency, in various forms in the list of search terms plugged into Google that get you to my site.
Don’t worry, “northlondonhippy” remains the number one search term that finds me. I’m a proper online destination.
But very high up on the list, sits Dr. Hashimoto. Considering the first time I ever heard of it was as it passed over my doctor’s lips preceded by the words “you have…”, I’m somewhat surprised at how common it is.
It seems quite a few of you out there in internetland have Hashimoto’s Disease too, or at least you think you do.
People search for symptoms, search for cures, search for clues on how to live with this auto-immune disease.
I’m far from an expert, having only known of my own condition for several months, but I have been discovering loads of people I know who have thyroid problems.
Everyone wants to know what “your dose” is.
“What’s your dose?”, they all say to me, looking visibly disappointed when I tell them I am currently on a paltry 50 micrograms of levothyroxine, compared to their 150–200 microgram dose.
Its true my dose is currently low, but that is about to change, again. My GP is monitoring my thyroid levels at regular intervals and increasing my dose gradually. The key, he says, is to find the lowest therapeutic dose, because too much can cause different problems. I’m due for another blood test next week and I would expect my dose to go up again as soon as I receive the results.
With me, I didn’t know I had a problem for quite a while, I ignored or dismissed all the symptoms I now know I had. It wasn’t until my back seized up and my legs gave out that it dawned on me I might have a health problem.
Clever, eh? I had heart palpitations, breathlessness, nausea, dizziness, no appetite, no energy, aching joints and a slow heart beat and I just thought it was just the normal ageing process catching up to me.
My doctor assures me that all of this is very treatable and once my dosage is correct, I will feel like my old self again. I’ve felt crappy for so long, I’m not sure what that really means.
So if you’re already diagnosed, just be patient. Give the medication time to even you out, just like I am.
And if you think you have Hashimoto’s, just go see a doctor and you are a simple blood test away from diagnosis and treatment.
And if it turns out you don’t have Hashimoto’s Disease, perhaps this article in today’s New York Times, might give you pause for thought.
Yo.
I haven’t pointlessly rambled here in a while. It’s just an observation.
I woke up early this morning, silly early, before 6:30am. Blame a blocked nose, a noisy cat and the threat of a couple of deliveries for this early morning appearance. I had an alarm set for 7:30am anyway, so its not a tragedy that I am up so early.
I’ve got a shipment of fresh coffee beans coming from my online roaster…yes, I am still madly into fresh coffee. I had to ease back from it a bit thanks to my thyroid problems, but I am feeling a little better, which means caffeine and I are buddies again.
I couldn’t really handle coffee for a couple of months, which was quite depressing for someone who adores the stuff. For a while, I thought it was down to side effects from my thyroid medication, but my doctor told me it wasn’t, it was the actual disease causing the breathlessness and heart palpitations.
For about the last fortnight, I haven’t had those symptoms because around a week prior to that, my doctor up the dosage on the thyroid meds. I’m still not on a high dose and its likely to be increased again in December, after my next blood test. I just think the new dose is having some sort of therapeutic effect on me.
I’ve also seemed more energetic in the last week or so and I am feeling more myself than I have in a long time. That’s a good thing.
My back has been a lot better too. You might remember that’s how all this health nonsense started, with a crippling back problem. I never do anything that’s straightforward, so naturally my thyroid condition caused inflammation in my back!
I was off from work for about 8 or 9 weeks in the end and my doctor offered (or rather suggested) that I take even more time off but my bank account couldn’t afford it. I went back for a couple of nights a couple of weeks ago and it was a serious struggle, but I had another long planned gap of 2 weeks between shifts and my health improved somewhat during that time.
While I was off, I had the joys of having builders in, refitting my ancient bathroom. I’d been trying to get this done for years, but finding someone reliable and trustworthy was nearly impossible. In the end, I found a plumbing company that was not ridiculously expensive and did the job fairly well, but it meant nearly two weeks of disruption in my home.
The new bathroom is simple and modern, replacing a 30–40 year old bathroom that was neither. I’m just happy to have it finished.
Returning to work this time was far less daunting because I am genuinely starting to feel better. After being part time for October, I’m back to working full time in November. Trust me, its a welcome return and not just for the financial reasons.
I like working and I’ve missed it; I’ve missed my work mates too. That said, I am getting increasingly bored with being asked where I’ve been for the last couple of months and having to explain all of my health woes. I thought about preparing a written press statement, that I could hand out and refer to when repeatedly questioned, but people would think that was weird.
I’m sure some of the people asking genuinely care how I am, but the majority are just asking to be nosy. I also thought about making shit up and giving everyone a different answer on my whereabouts, like:
- I was on a secret mission for the queen
– I was directing my first feature film
– I was on tour with my band
– I was in a drug induced coma
– I was having my shinbones stretched (and it didn’t work!)
– I ran away and joined the circus
– I was on an EU wide thrill-killing spree
And my personal favourite:
– I don’t know where I’ve been, I have amnesia
The only place I ever want to talk about myself is right here on my website. In real life, I’d much rather be ignored and not have to explain myself to others. I’m actually quite a private person, reclusive even, but when people pretend to be interested in your life, you have to pretend you’re happy for their interest. Social niceties have to be respected, even when you know its all bullshit…especially when you know its all bullshit.
But not you, of course. You’re deeply interested in every single aspect of my blessed existence and you hang on my every word. Online, I’m used to the attention and I crave it like a drug.
Ok, not really like a drug and believe me I know the difference.
It’s more like leaving the curtains open, while you change your clothing in front of the window. I’m giving you the choice to peep at me, but its up to you if you choose to cast your glance in my direction and if you do, you might see more than you expected.
My life is an open book here on the internet, available for you to casually thumb through the more interesting chapters, assuming one day I might write some. We can all wait for that day to come, but until then you’ll just have to put up with whatever drivel I post.
Like this pointless entry about my rather pointless life.
It’s about bloody time!
The Global Cannabis Commission report is being presented at the House of Lords today. It was undertaken by the Beckley foundation, a UN-accredited non-governmental organisation in advance of the United Nations strategic drug policy review expected next year.
The report makes a rather surprising recommendation…surprising because it is so sensible! They suggest that a “regulated market” should replace the current (silly and unenforceable) international prohibition of my favourite plant. The report proposes that we consider replacing prohibition with a system of labelling, taxation and minimal age requirements.
This is a seismic shift in attitude for the United Nations, which as an organisation, sits at the centre of cannabis prohibition, but I can’t say for certain that they will take this advice on board. After all, similar recommendations have been made here in the UK and have been promptly ignored by our ignorant politicians. Especially that incompetent uesless twit, Gordon Brown. I really thought he would be gone by now, but the Labour Party is seriously lacking common sense and balls and they pussed out at their party conference. Wimps!
This report puts the issue in context, going on to say “…in terms of relative harms it (cannabis) is considerably less harmful than alcohol or tobacco. Historically, there have only been two deaths worldwide attributed to cannabis, whereas alcohol and tobacco together are responsible for an estimated 150,000 deaths per annum in the UK alone.”
I’d like to know how 2 people died from weed. Did they choke on on it? Oh and the word “historically” in that context means since records began, which is a seriously long-old time!
Naturally this report is being warmly welcomed by cannabis campaigners world-wide, myself included.
My dope smoking recently hasn’t been recreational, as much as it has been medicinal, thanks to my recent health problems. Spliff helped when my back was seized up like a clenched fist and it continues to calm the nausea I am feeling from my chronic thyroiditis, which is another name for Hashimoto’s disease.
I don’t know what I would do without weed and I know that is the same for literally millions of people around the world, who are unnecessarily criminalised for our love of dope. I am not a criminal and neither are they! It’s about time the law caught up to this undeniable truth.
If you would like to read the Guardian’s take on this new report, all you need to do is CLICK HERE.
And if you would like to find out more about weed, please follow this link to the hippy’s cannabis truth series.
This is turning into the diary of the infirm.
Sorry, I know this used to be the capital of online fun. Maybe I should bring back the virtual blackjack tables? At least the house would always win.
I’m still feeling crap. The medication I’m taking is providing me with a host of side effects, all of them seriously dull and no fun.
I saw my GP again last week, he changed the brand of the meds I’m taking, which has subtracted a lot of the nausea, but not all of it and I still have the other side effects. Like breathlessness, heart palpitations, dizziness, headaches, tiredness, confusion and forgetfulness…need I go on?
My GP ordered more tests, which he says is to rule out some other things, rather than confirm anything he suspects. I think that’s supposed to be comforting.
My back seems to be holding its own. I still have pain, but I can cope with it. I’m still seeing the chiropractor, twice a week down from three visits and its always better after an adjustment. It tends to slide back a bit in between though, which I think is down to the fact that my thyroid levels aren’t right yet. The inflammation is being held at bay, but it’s not disappearing completely because whatever originally caused it, is still causing it.
My thyroid levels won’t be right for a while, as my GP says the dose I am on now, that is giving me all these fun side effects, will most likely needed to be increased after my next blood test. Doubled, actually. I can’t wait.
I haven’t felt like posting much lately, which is annoying because there’s loads I’d like to write about, I just don’t have the attention span to focus very long.
For all the jokes and references I’ve made about being middle aged, I’ve never really felt it in my bones. These days, not only do I feel it, I think I look the part too. It’s all dreadfully tedious and I’m bored of it all already.
I liked it better when I thought I was healthy. Clearly, I wasn’t really healthy, but I thought I was and isn’t that what really matter?
My doctor says that once my medication is sorted out, I’ll feel better than ever. Right now, I find that really hard to believe. When you feel shitty every day, its hard to be even a little bit positive about anything.
The following is a hippy health update:
I haven’t mentioned how I’ve been feeling for a bit, because I’ve pretty much been feeling the same. There’re two pieces of good news, though…I’ve got a definitive diagnosis. I have something called Hashimoto’s Disease.
Hashimoto’s Disease is an auto-immune disorder, probably genetic in origin and it causes my bodies T-cells to attack my Thyroid Gland, resulting in Hypothyroidism, which is an under-active Thyroid and causes all sorts of metabolism problems.
And Dr. Hashimoto is the guy that discovered it and it is the first recognised auto-immune disorder.
This diagnosis ties together all sorts of symptoms I’ve had over the last 6 months to a year that I hadn’t really put together or even thought were symptoms of anything. I just thought I was getting old!
Mainly, it explains the acute inflammation in my back, which continues to cause me pain, though not nearly as bad as it was when it started. I never thought my back problems would be caused by something bigger and scarier!
My other symptoms included loss of energy, appetite and concentration, poor sleep, a lump in my throat and flutters in my chest. I’ve had all of those things to one degree or another and I simply attributed them to middle age and my erratic work and sleep patterns. Silly me. I didn’t put any of this together.
When the back trouble started, I began treatment with a chiropractor, who I credit with helping a lot, but I still couldn’t completely shake the pain. After three weeks I saw my GP, because I thought I might have Shingles — I had a minor rash on my side. It turned out I didn’t have Shingles, but my GP ordered an x-ray (which was negative) and a battery of blood tests, which included a test for Thyroid function.
The test came back and confirmed my diagnosis. My GP also prodded my throat and said he could feel my swollen Thyroid Gland. I had noticed a slight sensation when swallowing for a while, but didn’t think anything of it. It wasn’t painful, or even uncomfortable, it was just different.
I’ve learned a valuable lesson and that’s to listen more closely to what my body is telling me and to do something about it!
Thankfully, Hashimoto’s Disease is very treatable and I will be on a medication called Levathyroxine for the rest of my life. It replaces the Thyroid Hormone my body no longer produces and once they get my dosage to the correct level, my body will go back to normal, whatever normal is…
I’m having side effects from this medication, nausea, sweats, and palpitations mainly, but these should pass soon. I hope.
Left untreated, it could eventually cause heart failure and death, so its a very good thing my doctor caught this. I’m lucky I have a good GP too.
Oh and the other good news is thanks to Hashimoto’s Disease and my cool new daily medication, I now get free NHS prescriptions for life. Now all I need them to do is approve cannabis prescriptions on the NHS and this disease stops being a curse and it becomes a real blessing!
Anyway kids, your Uncle Hippy is on the mend and it won’t be long before I’m back to my old self and trying to touch you all up again!