Category Archives: the hippy

A Long Overdue and Rambling Update

I didn’t know what else to call it. It is what it is. I haven’t written anything here in a few months. That’s down to the holidays, my stupid birthday, and then a couple of brand new seizures. My video on the main page is now out of date, and I need to somehow motivate myself to update it, or make a new one. A new one would be better, in every possible way. Let’s see how I feel in the next couple of weeks. 

This section is turning into more of an epilepsy blog, so let’s start with my latest incident(s), and build out from there. 

[WordPress suggested a trigger warning, because I deal frankly with health issues, physical & mental. That’s what this extra line you’re reading is: A trigger warning. You’ve been warned]

Two for the price of one?

I had two brand new tonic-clonic seizures at the beginning of February. The first one struck me at quarter to midnight on the first Friday of the month. It was 194 days since my last tonic-clonic seizure, which was in July 2023. 

It was the first seizure I’ve had that wasn’t in the morning, or very early afternoon. That has never happened before. And I felt fine, and completely normal leading up to it. 

Mrs. Hippy went to bed a little before me, and was still awake when she heard me cry out. It’s not really a cry, it’s just the sound of all the air in my lungs being forced out by the tonic portion of the seizure. She says I sound like wounded animal. 

Mrs. H. came downstairs to find me in full seizure mode, which she timed at around 5 minutes. When I didn’t recover, she phoned 999, and the paramedics were here 7 minutes later, four medics in total.

It took me 45 minutes to an hour to recover enough to understand what was going on. My tongue was bitten to hell, but I had no other physical injuries. The last thing I remember is thinking I might have had a focal seizure. A lot more on this in a bit.

The next 36 hours, give or take, are a bit fuzzy, because I had a second, full-on, tonic-clonic on the Sunday morning, around 10:30am. I don’t remember anything about that morning, until well after the seizure. 

Mrs. Hippy said this one wasn’t as bad as Friday night’s, but from my perspective, it was worse. I was more agitated, and confused. And I bit my tongue even worse, I caught the edge this time. Ouchies. 

It took the paramedics 14 minutes to arrive this time, and we topped out at 6 of them inside my house at the very peak of the drama, while I struggled to recover. 

My brain seems to come back online in stages, which makes it even more difficult to look after me in the immediate aftermath of a seizure. I am as strong as an ox, and as clumsy as a bull in a china shop at first. I have motor function, but very little motor control. I am semi-conscious as well, but I don’t understand words. I’m not even sure I hear them at first.

When I do start speaking, it’s mostly gibberish. I can’t understand words either. It’s called aphasia, and I have it post-ictally for a short time, as well as during partial aware focal seizures. Again, more on them shortly. 

The one thing I always seem to say that is comprehensible is just plain sad. What I say, over and over, is this: “Help me”.

The last part of my brain to come online seems to be my ability to record, or retain memories. So basically, I am semi-functional, and conversing, before I can record the memories of it. It’s like walking into the middle of a movie, or joining a TV show already in progress. It’s disorienting. 

This second seizure was also very unexpected, as I’ve never had two seizures so close together… except for the many clusters I’ve had. But when I’ve had clusters, they have been much closer together, minutes in between, to an hour maybe. 

Were these two seizures close enough together to be considered a cluster? I don’t have a definitive answer, but my gut says yes. So for the purposes of moving forward, I had two seizures in one weirdly gapped cluster and I am counting this as one incident. 

I did ask my GP, and she couldn’t say for certain either, but her inclination was to agree with my conclusion that it was one cluster. If my neurologist disagrees when I eventually ask, I’ll correct this, but based on my count, here are my new stats:

In the last 34 months, I’ve now had:

15 tonic-clonic seizures across

7 incidents.

4 of those incidents were clusters of

2 or more seizures in a row. My worst cluster was

6 seizures in one day. I could have died.

The paramedics have now been called

12 times, resulting in

10 visits to my house and

4 blue light trips to A&E, and 

1 hospital stay for

4 days which began with

24 hours of complete sedation…

And that saved my life. 

With both new seizures, I declined their kind invitation to spend 12 hours at A&E, but then I never, ever say yes. I’ve only ever been taken to A&E, because I was unconscious, or too  incoherent to say “no thank you” at the time. If I’m going to die, I’d much rather die at home. 

Focus on this:

Back in November, I wrote this piece, speculating with some actual evidence, that I might be having more than one type of seizure. I feel like an idiot that it took me so long to work all this out, but I got there in the end. 

In December, I finally spoke to my neurologist, and she agreed with my hypothesis. For me, this really is the final piece of the puzzle. 

Since at least October 2018, I have been regularly experiencing clusters of focal aware, and focal partial aware seizures. 

At first, I thought they were two separate phenomena. The first was what I described at the time as “chemical waves of deep sadness and depression”, along with something else I called “brain blips” or “blanking out”, when I would lose a few moments, or more, and not know what happened. 

Apparently, it is not unusual for someone to have difficulty recognising they are suffering from focal seizures for a long time. The problem is that the instrument you’re using to interpret the issue, your brain, is the same thing that’s malfunctioning. It’s like trying to use a faulty computer to check if the computer is faulty. It won’t always be able to self-diagnose. 

I’ve referenced bits of this before, if you read back some of the earlier pieces here on the #EpilepsyHippy section of my website. I’ve talked about what I refer to as the incident with my car in October 2018. I have confirmed these details with people I knew at the time. 

The car incident is this: I somehow ended up on a street I didn’t recognise, with two flat tyres, near my old office, while driving to central London for a nightshift. I had no explanation how it happened. 

In my haste to deal with the double flat tyres, and get my car out of central London before the expensive parking restrictions came into effect, I was distracted from thinking about the most important aspect of this: the cause. 

After many hours of hassle, I managed to get the car to my local mechanic, who asked me how it happened. And I remember struggling to answer him. I should have given more thought to the cause of the incident at the time, but I just wanted my car fixed. 

I wouldn’t actually connect the car thing to my illness until June 2022, nearly 4 years later. And I only had the chance to run this all by my neurologist in December 2023. Not only did she agree with my guess that the car incident was related to my epilepsy, but she said most likely I had other symptoms that I didn’t notice, even before this. I expect she is correct. 

I actually first clocked that something was wrong with me in either December 2018 or January 2019. I ignored it at first, as that’s what guys do with medical symptoms, isn’t it? Hopefully, it will just go away on it’s own. Mine didn’t.

With the benefit of hindsight, and my neurologist’s agreement, I now know that what I was experiencing back then were clusters of focal seizures. The waves of depression weren’t chemical, they were electrical. And the brain blips, were the seizures being memory wiped at the end.

I spent a great deal of my phone call with my neurologist in December, talking about these focal seizures. I’ve had them for more than 5 years, but only really worked out what they were in September of last year. That’s five full years, and for half that time I was having tonic-clonic seizures too. I knew they were related, I started to think the focal seizures were my aura… The sensations that precede a seizure… And they are my aura, but they are also a type of seizure in their own right. That’s been a huge revelation for me. I finally understand so much. 

My seizures begin in my right temporal lobe. Seizures there are known to cause emotional responses, jamais vu, and memory issues, as well as nausea, and vomiting. I experience all of that. If the seizure in my right temporal lobe is bad enough, it expands to my entire brain, and I have a full-on tonic-clonic seizure. Everything fits with my diagnosis. 

The last night I worked, which will be five years ago this March, is something else I’ve dwelled upon for a long time. Again, if you read many of the pieces in this section, you will see me refer to it. 

I now know, without a shadow of a doubt, that what caused me to fall apart that night was a cluster of focal seizures. I confused it with a breakdown. I didn’t know for sure if it was neurological symptom, but I did wonder about it, even at the time. Back then, I confused my symptoms with MS, thanks to a well intentioned consultation with Dr. Google. 

I requested a referral to my first neurologist, at the same GP appointment, when I was signed off from my job for depression. I had no idea at the time that the two things I saw her for that day, were really the same thing. My neurological issues directly caused my emotional, and psychological issues, by messing with my mood, and brain.

If you’ve ever had good MDMA, this may make sense to you. You know that feeling, the waves of electricity, joy, pleasure, love, whatever you want to call it? It’s why they call it “ecstasy”. Now, imagine instead of love, and joy, you have the same intensity of waves, but this time it’s intense sadness, overwhelming depression, and impending doom. Over, and over again, for hours. That’s what a cluster of these seizures are like. Now, imagine trying to work while experiencing them, while still not knowing what they are. No wonder I broke into a million tiny, little pieces.

And I did break. Badly. It got so bad, that I methodically plotted my exit from this realm. And I would have gotten away with it too, if it weren’t for those pesky, meddling international authorities!

Between the clusters of near fatal seizures, and my own hand, indirectly caused by clusters of partial seizures, it’s just dumb luck (and modern medicine) that I’m still alive, and my epilepsy hasn’t done me in yet.

Why am I still here? Answers on a postcard, please.

Knowing, understanding, and confirming that I’ve been dealing with epilepsy for longer than I initially realised has been a weird comfort for me. Cathartic even. I feel oddly absolved. Like, I’m not crazy, I’m not a hypochondriac, and I’m not imagining any of this. It’s real, it’s not new, and it’s been messing with me for a long time. Being able to finally lay it all out, in a linear, cohesive, narrative, and connect every dot, has brought me an odd feeling of closure. 

The hardest thing about the focal seizures, is just remembering you’ve had them. There is a mind wiping quality to them. 

When I was discussing this with my neurologist, she asked me how many of them I thought I had. And I couldn’t answer her at the time. Because I didn’t connect the earliest ones to anything, and I confused the more recent ones with being my seizure aura, I didn’t really pay attention to them. If they didn’t lead to a tonic-clonic seizure, then my meds were working. I had no idea they were seizures in their own right. Now, I know. And I’ve started to count, and log the ones I notice, and recall. 

So how many have I had? Realistically, somewhere in between dozens, and hundreds. Definitely more than 100, probably less than a 1000. It’s tricky to put a number on something that’s hard to count, or even be certain you had one. 

When I had the full-on seizure recently, on the Friday night, I definitely had a focal seizure just before. And even knowing what I know now, I wasn’t completely certain until afterward, and I woke up from the tonic-clonic, that I had the focal seizure. And even if I was certain, I doubt I had a full minute between the focal seizure, and blacking out. It doesn’t give me that much warning. 

I do remember putting my iPad down when I had the focal seizure, so I took it seriously enough to protect my electronics. And if the feeling had just passed, I could have picked the iPad right back up again, and I would have forgotten about the brain blink. From now on, I am aiming to err always on the side of caution. If I think I might have had a focal seizure, I’m going to protect myself, and my possessions as best I can. 

Now, what?

Moving forward, god I hate that expression. Like, we have choice of moving backward. Moving backward, I am going to go back in time, and fix all the dumb shit I’ve ever done. Anyway…

My neurologist increased the dosage of my current medication, and I am also gradually increasing the dose of a second, new medication. All this is happening about a month later than expected, as the neurologist’s letter with all of these instructions, took two months to arrive. Had it come sooner, would these changes have prevented my most recent seizures? We’ll never know. 

I have accepted my fate. I have a rare, complex, hard to diagnose, difficult to treat, poorly controlled form of right temporal lobe epilepsy. One person out of 100 people has epilepsy, but only one person out of 100,000 has the same flavour I have. That means maybe only around 700 people in the entire United Kingdom, have the same thing I do. 

One seizure out of 1,000 is fatal for people with well controlled seizures. That leaps to a whopping one out of 150 for people like me, with poorly controlled seizures. I don’t fancy those odds. 

Even with the best of care, and intentions, 30% of patients don’t respond well to medication. I am growing increasingly certain I am one of them. My neurologist says it is still too soon to tell, and I have to try at least one more medication that fails, to confirm it. Why wait? I can see where this is headed.

If I have 3 medications fail, they may offer me surgery, which I will most definitely decline. I don’t want a lobotomy. And even though I gave up drinking more than 20 years ago, I would still rather have a bottle in front of me, than a frontal lobotomy. Boom tish. 

Seriously, I am way too old, and sad to consider major brain surgery. Like I said, I have accepted my fate, and it’s a numbers game. The more seizures I have, the more likely one of them is going to be fatal. I’m cool with it. 

Recovering from a seizure is horrible. It’s like being resurrected, every time. It’s dealing with having a hamburger for a tongue for a couple of weeks. Being slow witted from a course of hardcore benzos for a while too. And most of all, being constantly afraid to leave my house, for fear of dropping in public. 

I spend around a month recovering, and after every seizure, I lose a little bit more of myself, that I don’t ever get back. I thought I knew what bad depression was really like, until epilepsy started messing with me. Post-ictal depression is just so relentless, and unrelenting. Yes, I know they are very nearly the same thing. That’s the point. The hopelessness is bottomless.

Death, on the other hand, would solve all my problems, from the financial, to the psychological, and everything in between. And if a seizure strikes the fatal blow, it would be the sort of pleasant death, everyone else could only hope for. I wouldn’t even know I was going, never mind that I was gone. It would be like someone randomly hit my off switch. It would be the most peaceful departure imaginable. 

And how do I know all this? Because I have done it 15 times already. The difference being that I’ve been revived, and resurrected after each of those previous seizures. It’s only a matter of time before I don’t come back, and SUDEP or status epilepticus takes me.

Until then, I will just keep trying to have as much fun as I’m able. And after reading all that, how much fun do you really think that is? It should be cocaine sex orgies every day, all day, for all of us, anyway. It’s not just my tiny little world that’s ending. It’s actually everyone’s, but I’m letting my tiny little issues distract me from the bigger, scarier picture. Hey ho. 

After a 30 year career as a journalist, working for some of the largest news organisations in the world, including Associated Press and Reuters, and 15 years as a duty news editor for BBC News, Doug – the northlondonhippy is now a full time hippy, and writer. And for the last few years, he’s been #EpilepsyHippy. His life was a whole lot more fun before gaining that new title. For real. 

Doug is also the author of “Personal Use by the northlondonhippy.”   “Personal Use” chronicles Doug’s years of experience with mind altering substances, while calling for urgent drug law reform. It’s a cracking read, you will laugh, you will cry, and you can bet your ass that you will wish you were a hippy too!

You can also find Doug –  the northlondonhippy on Twitter: @nthlondonhippy but only if you look really hard.

And if you want even more, (and who wouldn’t?) you could always check out Hippy Highlights – which is the best of the best stuff on the site, and it’s all free to read. What are you waiting for?

20 Years of Me

Hello! And Happy New Year!

2024 is a special year for me, as it is my 20th anniversary of being a fake online hippy. That’s no small achievement, considering the last thing the world probably needs is a fake online hippy. Yet here I am.

I didn’t plan on becoming a fake online hippy, it just sort of happened, organically. I first used the name “northlondonhippy” on some online forums, unsurprisingly about drugs, and drug use. It wasn’t just about weed, although a lot of it was, but it was mainly about magic mushrooms. They were sort of legally available to buy in London until 2005.

When blogging first started getting popular, I was between jobs, so I started my first website, a Blogspot blog. And back in 2004, it really was a blog.

I had no idea what I was doing, much like now, only my writing in the beginning was really just stream of consciousness drivel. I even called it drivel for the first few years. I literally wrote about what I had for lunch, or how many joints I smoked. It was dull, but I posted frequently. And people read it anyway. I had followers, and fans. It was weird.

Around the same time I started posting online, I got a job with BBC News. I should have abandoned drug blogging then,, but I didn’t. I just quietly, and secretly kept going.

In 2006, I relaunched myself online with my own website, and URL. I tried to get more serious about my writing, and in some ways I did. I wasn’t as consistent, or regular in my posting habits, but I tried to have more to say. That first version of this website, was hacked to oblivion, and I lost a lot of my original content.

Things turned weird at work, and I got fucked off. So I did what any sensible human being would do, I secretly wrote a book while sitting in the BBC Newsroom. That book is called “Personal Use”, and I published it in October 2016. I wrote and published an actual book, I wasn’t just a blogger any more.

I was clueless how to promote the book, so for the first few months, I didn’t. I just gave copies of the eBook away to people on Twitter for free. And then I sent out three PR letters, and I included a signed, printed copy of the book, some chocolate, and a limited edition “Personal Use” mug. If you’ve got a mug, you’re lucky. There aren’t that many of them in the world.

I think it was the mug that did it, because one letter got a positive response. I was invited to the LBC studios, where I was interviewed by James O’Brien in January 2017, on his birthday. I hear that since Mr. O’Brien had me on his show as a guest, he’s become quite popular. Wish my radio debut had the same effect on me! To be fair, the interview did briefly increase my book sales exponentially, but it was fleeting.

I should have capitalised on this more, I should have used the momentum I had to build more of a profile. I knew I was risking my job, but I didn’t care. In fact, a part of me hoped I would be found out, as the publicity would have been useful. And then everything changed.

Mrs. Hippy had been unwell, and I didn’t really grasp how serious things were. When I did, I recommitted myself to my job, and backed off from trying to promote the book. Not long after that, my own health problems began. They’re the ones that led me to give up my job, and eventually dub myself “Epilepsy Hippy”.

When I gave up my job in Spring 2020, I outed myself as I became a full time hippy. I still didn’t realise how sick I was, and I hadn’t been diagnosed with epilepsy yet. I received a partial diagnosis around 18 months, and 10 tonic-clonic seizures later, but I didn’t receive a full diagnosis until just last month. It’s been a long, hard, confusing, frustrating, and nearly deadly 5 years, but I’m still here.

I think epilepsy is going to kill me. It’s come close a couple of times. I’m not coping with it well, and I’m struggling to figure out what to do with the rest of my life. Not knowing if you’re going to drop dead tomorrow, tends to make long term planning a bit trickier.

My anniversary year will be as much about looking back, as it is looking forward. I’m going to get nostalgic, but I’m also going to try to push myself to do more, to be more. There’s got to be a reason why, after 20 years, I’m still a fake online hippy. Together, maybe we can figure it out.

So here’s to the last 20 years of my life pretending to be a hippy online for fun, and (no) profit. I promised myself when I gave up my job that I was going to concentrate on doing good, and having fun, and thanks to my poor health, I have failed at both. I’m going to pretend that my anniversary year is going to turn all that around. And my main aim for 2024 is a simple one, to not die, and to see in 2025. Anything I do beyond that, is a bonus.

So stay tuned, as I will be sporadically posting stuff as we approach the 18th of March, which is the actual anniversary of my first ever blog post. Who knows, perhaps after 20 years of being a fake, online hippy, I will finally become an unlikely, overnight success. And it would probably totally do my head in.

After a 30 year career as a journalist, working for some of the largest news organisations in the world, including Associated Press and Reuters, and 15 years as a duty news editor for BBC News, Doug – the northlondonhippy is now a full time hippy, and writer. And for the last few years, he’s been #EpilepsyHippy. His life was a whole lot more fun before gaining that new title. For real. 

Doug is also the author of “Personal Use by the northlondonhippy.”   “Personal Use” chronicles Doug’s years of experience with mind altering substances, while calling for urgent drug law reform. It’s a cracking read, you will laugh, you will cry, and you can bet your ass that you will wish you were a hippy too!

You can also find Doug –  the northlondonhippy on Twitter: @nthlondonhippy but only if you look really hard.

And if you want even more, (and who wouldn’t?) you could always check out Hippy Highlights – which is the best of the best stuff on the site, and it’s all free to read. What are you waiting for?

The Problem(s) with British Medicinal Cannabis

by Doug – the northlondonhippy

This hippy opinion piece takes a deep dive into the dismal state of British Medicinal Cannabis.

The subject is divisive, and there’s bound to be an opinion in here that pisses off nearly everyone.

Introduction

Cannabis was legalised for medicinal use in the United Kingdom in 2018, under a ridiculously rigid, and poorly implemented regime for a substance that is quantifiably considered extremely safe. And it is all the medicinal users of cannabis, whether legally sourced, or reliant upon the legacy market, who have continued to pay the price for the mess that is legal cannabis in Britain today. 

The general standard of the products legally available isn’t great, nor is their continued availability. And the customer service side of this industry is even worse, from the initial tidal wave of bureaucracy, to chasing your regular, monthly prescription renewals. It’s been a disaster. 

Improvements are constantly promised, yet rarely ever seen, but the issues are even deeper, and more systemic than that. The entire set up is not fit for purpose, and needs to be overhauled from the ground up, using other country’s superior implementations as a guide. 

The First Elephant in the Room

It seems ridiculous that I even have to point this out, as I rarely see it mentioned, but to me it is the biggest, dumbest accommodation made, in the entire British legal cannabis system. And the way everyone just rolled over on it, continues to boggle my mind. That accommodation is this: 

Medicinal herbal cannabis has to be vaporised. This is a mandatory restriction, because if you smoke it, somehow it magically invalidates your prescription, and makes your consumption illegal. WTF?

Smoking cannabis is one of the oldest, and certainly most common forms of consumption in history. It may not be the most ideal, but certainly shouldn’t that decision remain with the consumer?

It’s fine if doctors want to endorse and encourage vaporisation as their preferred method for patients medicating. I own several vaporisers myself, and I love them. But at the end of the day, when I need to finally get some sleep, nothing hits me the same way as a neat joint (no tobacco) of pure Indica flower. 

I’m sure some of you naughty legal prescription holders out there still skin-up on the QT as well, but the fact is that you shouldn’t need to hide your preference for combustion. 

By all means recommend vapes, endorse them, subsidise them even, but don’t force them on everyone with some bizarre, performative, restrictive law. It makes a mockery of the entire system that is meant to legitimise the use of cannabis as an actual medication. Questioning, and denying the medicinal value of a perfectly valid method of consuming it, diminishes much of what you’re trying to achieve. 

When the guidance, and the laws were being drafted, did anyone even put up a fight? There are plenty of people who were involved in this process, who knew better, yet rolled over anyway.

Cali Legal Weed

The US State of California legalised cannabis in 1996 for medicinal use. The system was really simple, and far superior to ours. 

After an inexpensive visit to specialist doctor, who reviewed your medical history to see if you suffered from one of the many qualifying conditions that might benefit from cannabis, you were issued with a medical cannabis ID card. With that card, you could then visit your local, legal dispensary, where you could safely purchase your cannabis flower, from a knowledgeable bud tender, who had personally sampled every strain available, and could offer useful advice on your choices. You could even smell the aroma of the bud, before you buy, which is more crucial than you might realise when selecting the right strain for you. 

Dispensaries popped up all over the state, and the sky didn’t fall in. In fact, the system was so successful, that 20 years later, they extended legalisation to include all adult usage, medicinal or not. 

It’s not just California; more than half of all US states have now legalised weed. Many countries have relaxed their approach to cannabis, and many more are expected to follow in the near future. Sadly, Britain is not one of them.

British Legal Weed

To secure a legal prescription here in the United Kingdom, your only option at this point is to go private. The NHS still refuses to accept the undeniable benefits of medicinal cannabis use, but that is an argument best left for another day. I want to concentrate the system we have now.

As with going private for anything medical, private cannabis is expensive. There are consultation costs, prescription renewal costs (with some clinics), admin fees, delivery fees, and the cost of the actual medication itself. Oh. and don’t forget you need a proper herbal vaporiser, which is not an insignificant cost. 

You need deep pockets, and for many, those pockets need to be even deeper than what they might spend for the equivalent from the legacy market. Or if they previously grew their own, it would cost exponentially more. Going legal ain’t cheap!

I don’t currently have a prescription, but I do have more than one qualifying condition, so I am eligible. And I do have a Cancard,  but more on this a little later.

I monitor the state of our legal cannabis market via the many subreddits, and forums online dedicated to the subject. While I will acknowledge that people tend to post complaints in general, more than praise, the scales of the posts I see on medicinal cannabis tip heavily towards the negative. I’m sure there are some patients happy with the system, and if it works for you, that’s great. But I am even more certain, anecdotally anyway, that the majority are not happy, and would welcome significant improvements. 

I tried to get a prescription a couple of years ago, but I lacked proof of the years of therapy I had when I lived in the states, as well as the psychiatric drugs I was force fed. Since then, I’ve been diagnosed with a rare, hard to treat form of epilepsy. And I’ve had seizures while taking lots of different pharmaceutical drugs, so I definitely have proof now I qualify, should I wish to pursue the legal route again. But for me to consider it again, the system would need that overhaul I mentioned.

Even the initial process can seem daunting to some, and quite frankly, that is because it is a huge bureaucratic mountain for many to climb. 

You need to get a summary of your care, from your GP surgery. Not all surgeries are helpful. And you need to be able to prove that you have at least one qualifying condition, and that you’ve tried two prescription medications that failed to help with it. Plus if it is a mental health issue, you also need proof you have tried therapy as well. 

And that’s just to qualify for the initial consultation, though to be fair, if you make this far, it seems most people are prescribed. 

After your initial consultation, the real fun begins… Trying to get a hold of your medication of choice. Some clinics limit, or push you to products produced by their parent companies, and they all seem to want to push people towards oils first. 

The clinic that prescribes you, then has to send your prescription to a dispensing pharmacy. Until recently, that prescription had to be on paper, but now it can be sent electronically. Either way, there will still be a delay in dispatch, assuming they have what was prescribed available, and in stock. And how many times you have to contact them all to chase it, when something goes wrong. 

Most people have to try many strains before finding one that helps, as the doctors are not that knowledgeable about the products. 

There’s an open secret regarding doctors who prescribe medicinal cannabis; they’re really only in it for the money, and very few have any useful knowledge of cannabis, beyond the 2 hour online training course available to be able to prescribe it.

Yes, you read that right. For a doctor to be able to prescribe cannabis privately, for a fee, all they need to do is follow some simple guidelines, and maybe complete a short online training course. 

Don’t get me wrong, my personal view is that any doctor should be able to recommend cannabis in the same way they recommend aspirin. And you should be able to self-refer for cannabis, the same way you can purchase aspirin over the counter. Technically, cannabis is safer than aspirin

Who would you rather have helping you choose a strain for your condition? A fully trained doctor who spent 2 hours studying cannabis, and cannabis based products online, or a bud tender, that’s tried every product they’re selling? I know whose endorsement would matter more to me, and I bet I’m not the only one. 

Legal vs Legacy

In all of my 40+ years of consuming cannabis, I have never bought mouldy weed. I’ve never found insects in a bag of weed either, and I have hardly even seen a seed since the mid 1980s. And I’ve never had to wait 2-4 weeks for my medication. None of that is true for British medicinal cannabis. Everything I’ve mentioned has been an issue for patients at some point, especially the delays. 

The legacy market has been efficiently providing quality products for decades, and continues to do so, all around the country. How it does that is yet another discussion, for another day. 

The legacy market is unregulated, so it is obviously less than ideal, but it’s still a business, reliant upon repeat custom. Selling quality products insures punters come back, again and again. 

From my perspective, the legacy market still remains superior to our legal prescription market. The quality, and standard of products is consistent for me, the prices have remained steady for years, and the customer service has always been first rate. 

The legal market is stressful. The medicinal cannabis subreddits are full of people going through all sorts of unnecessary drama to receive their medication, if they receive it at all. 

Delays aren’t just common, they are expected, as is having your first (or second, or third) choice of medication unexpectedly unavailable for weeks, without explanation. And then when it does come back into stock, there’s a rush on it, and they quickly run out again.

And if the random availability wasn’t bad enough, the products themselves can vary. One batch of your favourite strain could hit just right, and then the next prescription for the same strain, does nothing for you. There is no consistency, and much of what is sold, is very dried out, lacking any aroma, or terpenes.

Whether you source it from the legacy, or legal markets, there is a superior third option for sourcing, but you’re not allowed to use it.

The Second Elephant in the Room

In many places, where cannabis is legal, growing your own at home is permitted. This is a no-brainer, as patients can produce their own high quality medication at home, much cheaper than they can buy it from either the legal, or the legacy market. 

Growing quality bud is a skill, but it is one that most people can master given the time, especially if they’re motivated. And who would be more motivated than someone suffering medically, who wants to keep their costs down, during a global financial crisis!? 

Growing your own should be at the very heart of our drug laws, especially medicinally. It should be a cornerstone of the policy, instead of leaving greedy corporations to produce substandard products. As far as elephants and rooms go, I’d say this is a massive one. 

To sort of paraphrase Moses, “Let my people GROW!”

AI Generated, 6 fingered Moses knows where it’s at!

One Last Room, One Last Elephant

Medicinal cannabis is a divisive subject, but it is especially divisive within itself. The amount of bickering I see within the cannabis community is depressing. 

Don’t we all want the same thing? We don’t want to see anyone arrested for possession, whether they have a prescription or not. We all want cannabis use to be seen as the positive, life enriching thing that it is, don’t we? We want it legal for all. 

Having a prescription is meant to shield you from arrest, but it doesn’t, as there have been reports from all around the country of legal patients running into trouble with the law. That shouldn’t happen. Many people get prescriptions just to remain within the law, but what’s the point when the law doesn’t care?

Prescription or not, people should not be arrested for the possession of any drug. It’s not difficult. We’re all meant to be on the same side. Which is why I am even more confused by the hate for Cancard. 

Cancard is a scheme set up by another medicinal cannabis user who avoided a conviction in court by using a medicinal cannabis defence. This victory means everyone who uses cannabis, can use the same defence. Joining the card scheme means you qualify for a prescription, whether you have one, or not.

The patient’s name is Carly Barton, and a few years ago, she decided to stop using the legal cannabis market, and to grow her own instead. Good luck to her, she’s a trailblazer!

I have a Cancard myself, and have been a member of the scheme for several years. They offer police training, and in some parts of the country, that training has helped people like me avoid legal hassles, and in some cases, even keep their medication. 

Sadly, much like a legal prescription, there’s no guarantee a Cancard will prevent arrest, or prosecution. It will however, most certainly be a mitigating factor at some point. And that should result in an “NFA”, as in no further action will be taken, since a successful prosecution is unlikely, because of the medical defence. 

I don’t understand all the hate. Carly, and Cancard just want to prevent arrests, and have done in many cases. A legal prescription is meant to prevent arrest, and confiscation as well, but that doesn’t always work either. 

Can’t we all agree that NO ONE should be arrested, regardless of where they source their medication? 

And that’s the final elephant, in the final room. 

When the UK government legalised cannabis, even privately, that was a tacit admission that cannabis is medicinally beneficial. No ifs, ands, or buts, about it. 

Cannabis is cannabis, whether you grow your own, source it legally, or from the legacy market. If it keeps you healthy, and alive, that is all that matters. 

If these were your only two choices, which would you prefer? Would you rather be illegally alive, or legally dead? I’ve already made my choice. I’m still here. 

I’m actively trying not to die from a potentially fatal form of epilepsy, among other long term physical, and mental health maladies. If you take away my special private medication, and I croak, that shit is 100% on you. I’m still here because of weed. Lots of us are. 

Why can’t we be more like California, and have an actual grown-up, functional, beneficial medicinal cannabis system that’s affordable? 

Why are our politicians from both main parties, so out of step with the electorate, the medical community, and the rest of the world on the simple subject of cannabis? 

Why do we let our rabidly rightwing media dictate our health policy? That’s the real issue, but there isn’t a room big enough to contain that particular pachyderm. 

It’s your body, it’s my body. We all have the innate right to make our own significant health choices that we know benefit us. I know you know this already, but how do we convince everyone else? It shouldn’t be as hard as it has been, and continues to be. But I’m not giving up the fight, I’m still preaching the good word, till my very last breath. And I’m still breathing.

***

After a 30 year career as a journalist, working for some of the largest news organisations in the world, including Associated Press and Reuters, and 15 years as a duty news editor for BBC News, Doug – the northlondonhippy is now a full time hippy, and writer. And for the last few years, he’s been #EpilepsyHippy. His life was a whole lot more fun before gaining that new title. For real. 

Doug is also the author of “Personal Use by the northlondonhippy.” 

“Personal Use” chronicles Doug’s years of experience with mind altering substances, while calling for urgent drug law reform. It’s a cracking read, you will laugh, you will cry, and you can bet your ass that you will wish you were a hippy too!

You can also find Doug –  the northlondonhippy on Twitter: @nthlondonhippy but only if you look really hard.

And if you want even more, (and who wouldn’t?) you could always check out Hippy Highlights – which is the best of the best stuff on the site, and it’s all free to read. What are you waiting for?

Recreational Use is a Myth

By Doug – the northlondonhippy

The hippy has been giving this a lot of thought, and recreational use of any drug is a myth. You’ll soon agree.

The first drug I ever properly used was alcohol. I started drinking at the age of 13, and I stopped at age 39. Drinking was a social experience, right from the start.  

Most people have some level of social anxiety. We don’t like to admit it, but the popularity of alcohol at social events, gives the game away. Alcohol makes it possible for people to be around other people for extended periods of time. It makes us gregarious, maybe even a little giggly too. 

Could you imagine a night down the pub, or in a club, or even a dinner party, without social lubrication of some sort? 

If booze ain’t your bag, perhaps you like cannabis? Or cocaine? Maybe you’re one of those sober types, who’s just naturally friendly and happy. Lucky you!

For most people, drug use, alcohol, or otherwise, is a social experience. We do it in groups, we do it to be social.

Now, imagine someone who drinks alone. I don’t have to imagine, as after 26 years of regular, social drinking, I hit a rough patch in life, and for 6 months in 2002, I drank alone daily. Snorted coke too, and mixed in the odd MDMA tab as well. I was not having a good time, I was using it all to escape a bad one. 

I was abusing booze, and drugs, and to me that makes my use medicinal. I was using it to lift my mood, and briefly escape my troubles. This use was negative; it wasn’t good for me in the long term. My use wasn’t social, and it certainly wasn’t recreational either. It may not have been the most healthy of self medication, but I was definitely self medicating.

I was lucky. I realised the hole I was in, and quickly, and quietly climbed my way out, all on my own. I realised what I was doing wasn’t in my best long term interests, so I gave up booze completely. Cocaine too. One day, I just stopped. I haven’t had either in over 20 years. It’s not some moral victory, it was a health choice for me, and one I was glad I made. 

Recreational drug use is a myth, meant to make you feel shameful guilt about indulging. 

After thinking about this for a very long time, I’ve reached the conclusion that all drug use (including alcohol) is either social, or medicinal, once you accept that all medicinal use isn’t always beneficial, or positive. 

When I first started smoking weed, it was within a social group. We all got high together. And then I bought a bag of weed for myself. I sparked up a joint on my own for the first time, and realised it made me feel better, physically, and mentally. Without it being explained to me, I naturally worked out how to self-medicate with cannabis. I didn’t realise it at the time; it took many years to truly comprehend that I was self-medicating.

I’ve smoked cannabis for over 40 years, and I can’t recall the last time I had some recreationally. I use it to feel better, to reduce my anxiety, and my depression, and have done since I started. I take enough to take the edge off, to allow me to function like a normal person.

I couldn’t have lived my life the way I have, worked all the jobs I’ve done, or even traveled to war zones, without the medicinal benefits of regular, daily cannabis use. 

I’m old now, and I take a load of prescribed pharmaceuticals every day. I don’t view cannabis any differently from the 10 prescription tablets I take daily. They all play their part in keeping me alive. Matter of fact, cannabis helps me with the side effects from the other medications I take, and I probably couldn’t tolerate them all without it.

The school of thought on psychedelics has evolved. People are understanding that their use is far more medicinal than it is recreational. You can do a lot of good for your mental health through the smart use of psychedelics. 

When I went through my shroom phase, back in the early oughts, I think I had the best mental health of my life. There was a loophole in UK law for a few years, that saw actual fresh magic mushrooms legally available to purchase online, and in Camden Market. It was a sad day, when the government sealed that loophole, and the sales ceased. 

Shrooms helped lift my chronic depression, and pulled me out of a different hole in 2003. I was able to get my life back on track, and I kept it there until epilepsy decided to take over 15 years later. 

And even with the epilepsy, my cannabis use has helped mitigate it somewhat. I know cannabis could be even more beneficial, if I could get the right balance of cannabinoids into my system consistently. I wish the NHS prescribed it. 

If someone goes home every night after work, and downs a bottle or two of wine on their own, or even with their partner, that use is not social, is it? It’s medicinal. Alcohol dependency is real. And it’s a medical issue, not a moral one.

Alcohol withdrawal is also real, and it is just as bad as coming off heroin. Alcohol can be lethal too, and has contributed to the deaths of more people that I’ve known over the years, than every other drug combined. It’s legal status obscures these facts. 

Drop an E at a club? Medicinal. You’re doing it to expand your consciousness. Drop it with a group, it’s social too. Sometimes, it can be both. They’re not mutually exclusive. 

Shooting smack in a back alley? Does that sound like fun? Does it sound recreational? Of course not! It’s definitely medicinal, and whatever you’re trying to escape from, I hope it helps you. Is it ideal? No, not even close. That’s why many good people want to open supervised injection facilities. Medicinal again. Open them everywhere!

Addiction and dependency are medical issues. Tobacco, heroin, cocaine, and alcohol are all physically addictive. 

I’m dependent upon cannabis, the same way I’m dependent upon my epilepsy medication, or blood pressure medication to keep me alive. I couldn’t live without any of them. It’s all medicinal use. 

Whatever your drug of choice, if you share the experience with a group, your use is social. If you use it on your own, or with a close partner, your use is medicinal, whether it is beneficial or not. 

Recreational drug use is a myth, and it’s used to guilt, shame, and punish us. Don’t fall for it. As if enjoyment of something should lessen it’s significance, or usefulness. Your use is either social, or medicinal. There is no in-between, and there should be no guilt, ever. Just be as healthy as you can, for as long as you can, no matter what you have to take to get by in this life.

* **

After a 30 year career as a journalist, working for some of the largest news organisations in the world, including Associated Press and Reuters, and 15 years as a duty news editor for BBC News, Doug – the northlondonhippy is now a full time hippy, and writer. And for the last few years, he’s been #EpilepsyHippy. His life was a whole lot more fun before gaining that new title. For real. 

Doug is also the author of “Personal Use by the northlondonhippy.” 

“Personal Use” chronicles Doug’s years of experience with mind altering substances, while calling for urgent drug law reform. It’s a cracking read, you will laugh, you will cry, and you can bet your ass that you will wish you were a hippy too!

You can also find Doug –  the northlondonhippy on Twitter: @nthlondonhippy but only if you look really hard.

And if you want even more, (and who wouldn’t?) you could always check out Hippy Highlights – which is the best of the best stuff on the site, and it’s all free to read. What are you waiting for?

The Final Piece of the Puzzle

By Doug – the northlondonhippy

The hippy has a huge diagnostic breakthrough  regarding his epilepsy. It completes the puzzle of the last 5 years of his health. And it was staring him in the face the entire time.

Intro

Last week, while writing THIS THREAD on Twitter (the website absolutely no one calls “X”) to mark Epilepsy Awareness Month, I became acutely aware that I have more than one type of seizure, and have done for the last, at least, 5 years. 

This is a huge revelation of massive proportions. Well, for me it is anyway. It is the final piece of my health puzzle. 

The Backstory

When my symptoms first started five years ago, there were two main ones. The first was waves of depression; immense sadness, followed by the feeling of impending doom. 

In time, I associated this with my tonic-clonic seizures, and thought it was my aura, the herald of a seizure. And I was correct, but it was also something more, as you will see.

The other symptom was harder to describe, and I used to call them “brain blips” or “time skips”, where I would just lose a few moments (minutes?) of time, and wonder what the hell just happened. Whatever it was, it wiped my memory of itself, I would often quickly forget them. 

I had an incident with my car in October 2018, that I have written about before. I think it was my first brain blip, or time skip, certainly the first I documented. I was driving to work, and somehow ended up with 2 flat front tyres, and on a road near my office I didn’t recognise. I never knew exactly what happened that night. I didn’t even think about it again for a couple of years.

A month or two after that, I started noticing the waves of depression, and the brain blips, but I didn’t discuss either with my doctor for a few more months, even as my symptoms progressed. 

I was scared. I did a Google search, and it suggested I had MS. I wrongly assumed it was correct.

I’ve written about my last night of work several times as well. I’ve been fixated on it, as it was such a massive turning point in my life. 

That night, I was having wave after wave of depression, the sadness and doom I mentioned. I was also having the brain blips too. I had a very public meltdown, left the office broken, and went to see my GP that very morning after work.

I asked my doctor for two things that day. I asked to be signed off work, and I asked for a referral to a neurologist. I never went back to work, and I didn’t see that neurologist for 6 months. And when I did, he misdiagnosed me, and I never went back to him either. 

Learning to live with it

I went around two years after stopping work, before I had my first proper full-on seizure, but in the intervening time, I continued to have the waves of depression, and brain blips. I just normalised them. I knew something was still wrong with me, but I had no idea what it was, and neither did the doctors at the time.

After several incidents of multiple, convulsive, tonic-clonic seizures, a few ambulance rides, and blue light visits to A&E, I was finally diagnosed with Right Temporal Lobe Epilepsy, by the third neurologist I saw. Yes, it took visits to three different consultants before I was properly diagnosed.

After my diagnosis, the brain blips and waves of depression continued. I assumed my brain was trying to give me a seizure. I would experience what I thought was my partial aura, and then not have a full-on seizure, thinking the medication was preventing it from reaching it’s full, destructive potential. This partial aura was so frequent, to the point where I just ignored them. 

I nearly went a year without a seizure, once I started treatment via medication. And four days before a full year, I had tonic-clonic, and it was preceded by the aura I have described. Sadness, doom, and a jamais vu is the full sequence I experience, before a massive seizure. 

As I had some memory of the seizure that time, it gave me food for thought. I had two more major seizure incidents after that, and both had the same aura around them. I felt it the day before, and on the day I had the proper seizures. 

I started logging the partial-aura’s in my epilepsy diary after that. I should have been doing it all along, but I really didn’t see the need if I didn’t go on to have a grand mal seizure. I thought they were the only type of seizure I had. 

Those notes from September of this year regarding my partial aura would become extremely useful. 

The Revelation

If you’ve been following my epilepsy progression, you might have noticed me fixating on what I call the period before my first proper grand mal, or tonic-clonic seizures began. 

I’ve described that time as the slow onset of my epilepsy. I’ve called that time my pre-epilepsy period as well. But the fact is, I had full blown epilepsy even then, only I didn’t realise it until last week. I told you it was a big revelation. 

How can you not realise you have epilepsy? There are more than one type of seizure, and I didn’t realise what I was experiencing for over 2 and 1/2 years before I had convulsions, were something called “focal seizures”. I knew I was experiencing something, but I lacked the understanding, and vocabulary to express it with any clarity. I do now.

When I was writing the Twitter thread I mentioned, I was looking deeper online into different types of seizures. Might sound strange, but since I knew I had (what I thought was only) tonic-clonic seizures, I never really bothered to look into the other types. I really wish I had, because when I did last week, the descriptions of focal aware, and focal partial aware seizures related to temporal lobe epilepsy, were nearly word for word, how I described what I’d been calling my partial aura. 

When I began logging the partial auras a couple of months ago, I tried to do it as soon as I experienced them, as I know there is a big element of memory wiping that happens with them. 

This is a cut and paste from my actual epilepsy diary:

“2-3 Sept 2023 – don’t usually log these, but had this once on 2nd, and twice on the third. Feeling of immense sadness, doom, and my heart rate surged to 115ish each time. Lasted for a few minutes. 

Felt like my aura, but unsure if the meds prevented worse, or it just didn’t reach that level. Will try to log these more, but often they happen, and pass and I just forget them. I normalise stuff too easily. 

Update: I didn’t have a full on seizure, but over those 2 days, I had 5 episodes in total, where I experienced what I now know are the lead-up symptoms, without reaching a full on seizure. The sadness, the impending doom, but something new, or something I hadn’t noticed before… some confusion, and words stop making sense, and sound like gibberish. 

It comes on suddenly, and starts with a weird feeling that is difficult to describe, moves through the phases I described, then fades away. It lasts a few minutes. 

My Apple Watch records these incidents as one minute of exercise, and my heart rate elevates alarmingly, so there are tangible, recorded physical symptoms to go along with the neurological ones. And my resting heart rate remains elevated afterward for days.

The heart rate thing is the same with the ictal nausea and vomiting, as well as the seizures. Especially the seizures, and even more so with my last one. 

I am wondering if what I had over the weekend, the 5 episodes, were some other type of seizure. Focal seizures might fit my symptoms, but would need a neurologist to confirm that. Or it could be my meds preventing my brain from it going full-on, and I’m just getting the rumblings? I have many more questions, than answers.”

As you can see, I even questioned a couple of months ago if these were focal seizures. And then promptly forgot about it, as I have been doing with these incidents for the last five years. 

Focal seizures would explain so much of what I haven’t understood about the first couple of years of my illness. It explains the incident with the car, the brain blips, and the waves of depression. It explains everything. 

Most of all, it explains how epilepsy cost me my job. I’ve had documented tonic-clonic seizure clusters, my record was 6 in one day. If I could have clusters of tonic-clonics, why couldn’t I have clusters of focal seizures as well? I think I can. And I did.

The very last night I worked, I am convinced I had multiple focal seizures, a cluster of them. I’ve worn an Apple Watch for years, since the first model was released. I have heart rate data going back to that date. 

As I mentioned, when I have the focal seizures, or any epilepsy related activity, my heart rate increases dramatically. I also know the date of my last ever shift, as it is burned into my soul. 

I looked up my heart rate during my last nightshift, and it went up to 122bpm, while I was seated at a desk. My normal resting rate is in the low to mid 60s. Only a very brisk walk gets my heart pumping like that, or something epilepsy related. To me, that’s as close to confirmation as I am going to get, that my new theory is correct. The evidence is good enough for me, and I think my neurologist will agree. 

I haven’t spoken directly to a neurologist in a very long time, but I finally have a telephone appointment next month, with the doctor that diagnosed me, and understands my complex condition. And boy, oh boy, do I have a lot of questions!

All I need to do is not die before then. And that might be tricky, as I am expecting a new tonic-clonic seizure in the next month. My seizures keep getting worse, the last one nearly killed me. Who knows what the next one will do?

But if I survive long enough to make my neurologist appointment, I am aiming to get some sort of treatment plan in place, so I might stop worrying about dying every single goddamn day. That would make a good change, wouldn’t it?

After a 30 year career as a journalist, working for some of the largest news organisations in the world, including Associated Press and Reuters, and 15 years as a duty news editor for BBC News, Doug – the northlondonhippy is now a full time hippy, and writer. And for the last few years, he’s been #EpilepsyHippy. His life was a whole lot more fun before gaining that new title. For real. 

Doug is also the author of “Personal Use by the northlondonhippy.”   “Personal Use” chronicles Doug’s years of experience with mind altering substances, while calling for urgent drug law reform. It’s a cracking read, you will laugh, you will cry, and you can bet your ass that you will wish you were a hippy too!

You can also find Doug –  the northlondonhippy on Twitter: @nthlondonhippy but only if you look really hard.

And if you want even more, (and who wouldn’t?) you could always check out Hippy Highlights – which is the best of the best stuff on the site, and it’s all free to read. What are you waiting for?

Now, Hear This

The hippy looks back at the roots of his lifetime love of modern music, through the songs he grew up with, and technology of the day that played it for him.  

His journey began when he was 2 years old, and it started with the Beatles, and a couple of years later, Motown and more. 

As you’ll see, these memories turned out to be a lot more bittersweet than expected.

Age 2

Growing up, my mother told me this story many times, of not long after I first began talking, I also started singing. And the very first song I ever sang was “I Wanna Hold Your Hand” by the Beatles. 

The single was released around 10 months after I was born, and it was still a hot hit on the radio when I was 2 years old. My mother told me we used to hear it a lot in the car. 

One day without prompting, I sang along with the chorus, which delighted my parents. Even at the age of 2, I had excellent taste in popular music. I like to think at the tender age of 60, that I still do.  

The Beatles – I Wanna Hold Your Hand

Age 4

My family moved from north Jersey to down the shore in Asbury Park when I was 1 year old. We lived there for three years, until I was about four. We lived in a two family house. 

Source: Google Maps

My earliest memories of my life are based in that very house, and around Asbury Park. I can still picture the kitchen, the living room, my bedroom, and the steep main staircase that led up to the entrance of our place. 

The upstairs bit was my ours, and the downstairs part of the house was rented to another family. They were a married couple, a little older than my parents, and they had a couple of grown children; a son and a daughter.

Their names were Carmen, and Emily, and their daughter’s name was Sara. I think their son’s name was Anthony, but I’m not sure. I didn’t really know him. 

Carmen owned the Mobile petrol station in Asbury. I remember going there with my dad as a child, and petting the gas station guard dog, a friendly, happy German Shepherd, who wasn’t quite as friendly on his own, when he protected the station at night. 

Carmen and Emily already lived in the house when my parents purchased it, and they would all go on to become very good friends. They remained close for decades, until Carmen and Emily passed away many years later. They were nice people. 

When I was around 4, my mother called me into the living room, and Emily and her daughter Sara were already there. Sara would have been in her early 20s at the time. 

They told me Sara was losing her hearing, and she wanted to give me her collection of 45rpm pop music records, because she couldn’t listen to them any more. It was a tall stack of singles, in some sort of plastic carrying case.

My mother said, “What do you say when someone gives you a gift, Doug?”

“Thank you, Sara!”, I replied enthusiastically. It was like an unexpected Christmas morning!

I didn’t really understand the tragic context of this gift, I was only 4 years old, but I was certainly excited. I couldn’t wait to go into my bedroom, and play both sides of every one of those records on my Show’N’Tell. It was my very first record player. 

A Show’N’Tell was a popular kid’s record player from the 1960s. that had a built-in screen, and was used to tell stories with still pictures projected on the internal display. You put a cardboard strip with the graphics on film into the top, then played the record. You had to advance the pictures manually when the story narration beeped by pushing the strip down further. It was easy. I had a bunch of stories for it, but the only one I can recall with any certainty is Puss’N’Boots. 

My mother showed me how to use the 45rpm adaptor, and adjust the RPM rate on the turntable, so I could play the 45rpm records on my little kiddie Show’N’Tell. 

I was entranced, these were grown-up records. It was lots of early rock and roll, like the Beatles, and the Stones, plus the very best of Motown, and Atlantic Records too. It was a fantastic, and comprehensive collection, that looking back, I very much wish I still had. 

It’s weird the details I can still recall from this seminal moment in my young development. I didn’t know where to start, so I just randomly picked a record. It’s not like I knew how to read. It was 1967, and I was 4 years old. 

I carefully placed my first single on the platter, and I turned the record player on. Once it was spinning, I gently placed the needle on the outer groove.

My ears were suddenly awash with the most amazing sound I’d ever heard in my very young life. It was nothing like I’d ever experienced before. It didn’t sound like the Beatles, it didn’t sound like the children’s songs on my Show’N’Tell records either. It was so unique, and it made me feel like I was a real big boy, listening to grown-up music. I loved it!

That first song I played was “You Really Got A Hold On Me” by Smokey Robinson and the Miracles, and I think of it as the first single I ever owned. I know it came in a collection of many others, but it was the first one I played, and I don’t think I can overstate the impact it had on me at the time. The words went way over my head, but the sound. Oh my god, that sound!  

I still get the same feeling of pure joy when I listen to it today. You will too, from that classic opening piano hook, to the soaring, mournful vocals. That girl had a tight grip on Smokey’s heart, and you could feel it in every line. 

Smokey Robinson & the Miracles – You Really Got a Hold On Me – Live!

“I don’t like you, but I love you”. It hits even harder when the words mean something, but even when they didn’t as a child, I still felt it. 

This carefully curated collection was the very best pop music from early to mid 1960s. I struggle to recall every single tune, but there were some standouts. 

I mentioned Atlantic Records, because of the Drifters. “Under the Boardwalk”, “Up On the Roof” and “Save the Last Dance” were all there.  

At the age of 4, I thought the boardwalk in Asbury Park was the only boardwalk on the planet. I also thought it was the most magical place in the world, and I just knew they were singing about it in that song.  As I swayed to the music, I closed my eyes, and pictured the amusements along the shore. 

The Drifters – Under The Boardwalk – Re-Mastered

Clearly I did not understand the true nature of the activities taking place under the boardwalk. That went way over my head too. 

There were quite a few early Beatles singles as well, and I can recall the old green Apple logo on the labels. Baby, you can “Drive My Car” is the one I remember most. Beep-beep beep-beep yeah!

By far, the majority of the singles in the collection were Motown. Besides Smokey and the Miracles, there were The Supremes, Stevie Wonder, Marvin Gaye, The 4 Tops, The Temptations, the Jackson 5, Martha and the Vandellas, and probably a whole lot more that I can’t recall. I played all of those records over, and over on my Show’N’Tell. 

We left Asbury not long after that. My new record collection got packed away when we moved to Oakhurst, in Ocean Township. We got out of Asbury a few years before riots rocked the city. 

Age 13

The Show’N’Tell was replaced by a cheap, portable record player that I used for a few years, but when I was 13 years old, my parents bought me my first proper stereo. 

Many of my friends were Jewish, and age 13 was their bar mitzvah year. I think my parents thought I felt a bit left out, since I kept being invited to these massive bar mitzvah receptions, as my friends were showered with many big lavish gifts. I always guessed that’s why they made more of a fuss than usual over my 13th birthday. 

My father and I went to a hi-fi shop up on Route 35, and we went into the sound room, to check out different systems. The salesman convinced my father to buy me a Sanyo quadraphonic system, with all the bells and whistles. 

The system had a record changer that could play multiple discs, an AM/FM stereo radio receiver, and an 8-track tape deck that could record as well as play them. I knew I’d be driving in a few years, and I could make my own 8-tracks for the car. 

Quadraphonic systems never took off, as you might have guessed, since many of you will have never heard the term before. It meant it had 4 speakers, instead of the usual two like a traditional stereo. The salesman said that all LPs and singles would soon be released in a compatible format, so it was future-proof. That never happened, but it was still a great sound system. 

That’s the actual model I owned, without the turntable. It’s as close as I could find.

We got it home, and set it up in my bedroom. I didn’t have many records to play, but then I remembered the old collection of 45s from my early childhood. I knew I still had them, and I fished them out of my bedroom closet. They were still in the same old plastic carrying case. 

And then I spent the rest of my 13th birthday blasting out all my old favourite classic Motown hits, and more… And they never sounded better!

Age 16 and a 1/2

I got my learner’s permit 6 months before my 17th birthday, and I was excited to start driving. My first car was a Pontiac Firebird Formula. I didn’t keep it long, it was way overpowered for a teenager, and it was a gas guzzler, but it did have an 8-track tape deck. 

That was my first car, and it really was that yellow

Someone gave me a copy of James Taylor’s 1979 album, “Flag”, and on it was his cover version of “Up on the Roof”. It immediately brought back memories of the original. 

And then  once again, I remembered the 45rpm record collection that Sara had given me, and I got it out of the closet. Only this time, I recorded many of the songs onto 8-track tapes.

It finally hit me, how I got this collection. In the 12 or so years I’d had all those records, I never really considered how they came to be in my possession. I’d never really considered the tragedy that inspired Sara’s generosity. Sara’s hearing loss, was my musical gain. 

I knew my mother was still friends with Sara mother, Emily. So I asked my mom about her. 

My mom explained that Sara was completely deaf now, but she didn’t let it slow her down. She was married, she had children, and she had recently been the first runner-up in the Mrs. New Jersey contest, “in spite of being hard of hearing”. The words in quotes aren’t mine, but are lifted directly from the Asbury Park Press photo caption at the time. 

That’s really her! Source: Asbury Park Press

And not Miss New Jersey, but Mrs. New Jersey, a beauty pageant of some sort for married women that was staged back in the 1970s. A quick search online tells me it is still going on today. Who knew?

In all that time, it never dawned on me to ask about Sara, or to consider the painful circumstances that inspired her gift to me. I can remember feeling a profound sense of gratitude. She literally gave me the music I grew up with; it was the soundtrack of my youth. 

I’d developed my own tastes over the years, and have already written about my deep appreciation of Bruce Springsteen. He grew up on the some of the same music I did, as did his friend Southside Jonny

Southside Jonny and the Asbury Jukes were just starting to break big around this time, and I had one of their early records. On it, he covered Sam Cooke’s “Havin’ A Party”, which was yet another track in my collection of 45s. I love both versions, but Southside made that song his own. 

Southside Jonny & the Asbury Jukes – Havin’ A Party – Live NYE 1978 – Capital Theatre – Passaic NJ

The foundation of my musical tastes is so deeply rooted in that collection of 45rpm records. I don’t know what happened to them. When I moved out of my parents’ house, I don’t think I took them with me. And that, was that. 

Age 60

Last spring, my original set of AirPods died. They were 5 years old, and served me well, so I replaced them with a new pair of AirPod Pros. With the purchase came a free 6 month trial of Apple Music. 

When I bought my first iPod in 2005, I ripped MP3s from every CD I could find in the house, and every CD I bought after that. I started buying digital tracks and albums a few years later, and played them all on my iPhone. 

I had a decent collection, but clearly I didn’t have every track ever recorded. A trial with Apple Music came close to fixing that, so I signed up. It pretty much played whatever songs I asked for, and could even find some obscure versions of rare tracks. Colour me impressed. 

This is not product placement, I swear. I wish Apple paid me. It’s not too late, phone Tim Cook

“Hey Siri, shuffle Springsteen”, or “shuffle Southside Jonny and the Asbury Jukes.” No problem. Led Zep? The Beatles? The Kinks? The Stones? All good. 

And then I tried some genres, and I thought of one I hadn’t listened to in ages. “Hey, Siri, shuffle Motown”. 

She replied, “Alright, now shuffling Motown essentials.”

After a few tracks, Smokey Robinson and the Miracles came up, and I heard the first single I’d ever owned, as “You Really Got A Hold On Me” roared out of my speakers. It was the first time I’d heard it in ages. I stopped whatever I was doing, and listened intently. 

I still loved the track that day just as much as I did that first time I heard it when I was 4 years old. It was some 56 years later, and it still filled me with as much joy as it did that first time. And then I sobbed.

I sobbed with mixture of joy, and sadness. I was happy that the music of my childhood, and youth, still resonated with me. It still filled my heart with joy. And I was also overcome with sadness; the sadness of loss, and the tangible realisation of the passage of so much time, and of so many people I’ve cared about over the years who are no longer there. 

And then I remembered poor, dear Sara. I hadn’t thought of her in such a long time. Her generosity, born from her loss, shaped my musical tastes for my entire life. And in that moment of realisation, the idea for this piece was born. 

My musical journey began with a stack of carefully curated 45rpm records. That collection had some of the finest popular music of the early to mid 1960s and it was given to me by a deaf woman, when I was a pre-schooler. No wonder it took me so long to grasp the significance. 

That collection was assembled by someone that lost their ability to enjoy the music they so clearly loved, because they gradually were becoming profoundly deaf. And from their unfathomable loss, the foundation of my musical tastes was born. 

It was a priceless gift, given from someone who paid a price higher than I can possibly imagine. It took me years to fully appreciate all of this, and even now, I’m not sure if I can truly express how much these songs changed my life. And thanks to the evolution of technology, those tunes all remain part of my life to this day. 

Sara

I really didn’t know Sara. I’m sure the day she gave me the records wasn’t the only time I met her, but I doubt I saw her more than half a dozen times in total. Her mother, Emily, and my mother were close friends for years. 

I looked for Sara online, and am pretty sure I found her. It’s scary easy to find people online in America with just a few details. She’s still alive, but she no longer lives in NJ. 

I also found Sara’s first engagement announcement from the local newspaper in 1962, before we lived in Asbury. It’s how I found the address of my family’s house in Asbury Park. I knew the street name, but I couldn’t for the life of me recall the house number. Remember, I was only 4 years old when we moved out. 

Source: Asbury Park Press

It’s also how I learned Sara’s parents were living there when my parents bought the place. I didn’t realise they lived in the house before we did. I guess I never thought about it. 

It said she was engaged to a guy serving in the military, in the early 1960s. That could have meant Vietnam. I don’t know what happened, but when she was a contestant in the Mrs. New Jersey contest more than a decade later, she had a different surname from her fiancé mentioned in the clipping. Did they break up? Did he get killed in action? I have no idea. 

I also found that photo from the local paper of her being a runner-up in the Mrs. NJ contest. In truth, I misremembered, I thought she was the winner of the contest, and I was trying to fact-check myself. I’m glad I did, for the sake of accuracy, and for finding the photo. That was a bonus. 

I debated contacting Sara, sending her a letter, and sharing my story, but in the end I decided against it.

Maybe she would remember me, maybe she wouldn’t. Maybe she wouldn’t want to be reminded of such a sad time in her life. Would she even remember such a small, inconsequential moment? It’s me that found meaning in it, perhaps it was one of the worst days of her life.

If I could communicate with Sara, I’d want her to know that she’s one of the few people in my life that made such a huge contribution to who I am today, without ever knowing it. She changed my life in such a positive way. She gave me the priceless gift of music, just as she was losing her ability to enjoy it herself. 

I hope you had a good life, Sara. One day when I was four years old, you changed mine in a massive way. I wish you knew. Thank you, Sara. Thank you. 

* * *

After a 30 year career as a journalist, working for some of the largest news organisations in the world, including Associated Press and Reuters, and 15 years as a duty news editor for BBC News, Doug – the northlondonhippy is now a full time hippy, and writer. And for the last few years, he’s been #EpilepsyHippy. His life was a whole lot more fun before gaining that new title. For real. 

Doug is also the author of “Personal Use by the northlondonhippy.”   “Personal Use” chronicles Doug’s years of experience with mind altering substances, while calling for urgent drug law reform. It’s a cracking read, you will laugh, you will cry, and you can bet your ass that you will wish you were a hippy too!

You can also find Doug –  the northlondonhippy on Twitter: @nthlondonhippy but only if you look really hard.

And if you want even more, (and who wouldn’t?) you could always check out Hippy Highlights – which is the best of the best stuff on the site, and it’s all free to read. What are you waiting for?

My Next Seizure

I worry about so many different things, that it’s not funny. But the one thing I worry about the absolute most, is my next seizure.

There are lots of big things to worry about in this life, like climate change, or more specifically our lack of action to meaningfully address it with any urgency. I also worry in the same way about world peace, or more specifically our lack of sustaining that, too. But since my epilepsy began a couple of years ago, what I worry about more than anything, is my next seizure. 

I could drone on for ages about my previous seizures, and already have, as you may have noticed, but what occupies my headspace continuously and relentlessly, is my concern over my next seizure. 

Will I be at home when it happens? Or will I be elsewhere? Will I be seated, or will I be standing, and fall down hard? Will I hit my head, and end up concussed? Or maybe I will sprain my ankle again? I know I will bite my tongue. I always bite my tongue, hard enough that it bleeds. 

Will I piss myself? Will I soil myself? I hope not, they are both very unwelcome extras. 

Will I wake up in an ambulance? Will I wake up in A&E? Will I wake up at all? And if I do, will I realise I even had a seizure? Will I remember anything about it? 

Will I have a heart attack? Will I stop breathing?

Will I die?

I’ve had cluster seizures in the past, that means more than one seizure at a time. My record is six in one go. I’ve been in status epilepticus before as well, that means not recovering properly in between. Both of those things can be fatal without an urgent medical intervention. Been there, done that. And my most recent seizure nearly resulted in a heart attack, and I had shallow, irregular breathing along with it. 

All of those things can potentially result in SUDEP, which stands for Sudden Unexpected Death in Epilepsy. I’m at real risk of dying from my next seizure. Or the one after that. Or the one after that. You get the idea.

I’ve had 13 heavy duty, tonic-clonic seizures, across 6 incidents, since all this started back in April 2021. 

The first three incidents happened before I was diagnosed, and started treatment via medication. The second three incidents happened after treatment began. The first three incidents got progressively worse. The start of treatment reset that somewhat, but the second lot of seizures were then also progressively worse. 

I learned why. Some people, like me, respond to the epilepsy meds well at first. And then the drugs begin to lose their effectiveness as you develop resistance. It’s called a “honeymoon period”, and for me, the honeymoon is nearly over, again. 

A numbers game

(Author’s note: This section is dull. If you’re not detail oriented, you can read the first two paragraphs of this section, and then the last two paragraphs, and get the gist of what I’m saying. I didn’t edit this section down, because it illustrates the depth, and intensity of my obsession.)

Trying to predict when my next seizure will happen is more difficult than predicting the weather, or the winner in a horse race. 

You can look at the data, the stats, whatever, but there are too many unknown factors to make an accurate call. That doesn’t stop me from trying. I’d like to be prepared for my next seizure. As much as I’m able to be, anyway. 

I’ve made a simple chart, with incident dates, the number of days in-between, and where noted, the number of multiple seizures I had during that incident, to see if there is any sort of discernible  pattern:

Incident 1 – 29/4/21 – Day Zero (2 seizures)

Incident 2 –  6/8/21 –  Day +99 (2 seizures)

Incident 3 – 18/9/21 – Day +43 (142 days total) (6 seizures)

– Treatment via meds began the same day as incident 3 – 

Incident 4 – 14/9/22 – Day +361 (503 days total) 

– Dosage of medication increased – 

Incident 5 –  3/5/23 –  Day +231 (734 days total)

– Dosage of medication NOT increased –

Incident 6 – 23/7/23 – Day +81 days (815 days total)

– Dosage of medication increased – 

With pre-emptive apologies to all doctors, and mathematicians, let’s play with those numbers.

From my first incident, to my most recent, is 815 days total. I had 6 incidents in that time, which works out to be around one incident every 136 days. 

My first 10 seizures occurred across 3 incidents, as they were clusters. If I use the same formula with the number of seizures instead, of incidents, the average gap leaps up to one seizure every 63 days. Neither number is particularly helpful since my longest gap between seizures was 361 days, and my shortest was 43 days. 

How about if we average the gaps between incidents? There are 6 incidents, but only 5 gaps to measure, for the same total of 815 days. Dividing by 5 gives us 163 days, which again, isn’t a particularly helpful prediction. 

One last try. I’ve put my incidents into 2 groups, pre and post treatment via medication. So let’s put the first three incidents aside, as they happened prior to any medical intervention, or diagnosis. 

After incident 4, my medication dose was raised. It was not raised after incident 5. I don’t know why, but it was raised again after incident 6. The medication clearly works, for a while anyway, and then a seizure breaks through. The lack of an increase in my meds after incident 5 is probably why incident 6 happened so soon after the one before it. 

Based on the relative effectiveness of my meds, I went 361 days without a seizure after initially beginning treatment, and then another 231 days after my dosage was increased following incident 4. The average between the two is 296 days. But if we include incident 6, the average drops to 224 days, which still seems too long to me. 

What happens if we average all of it? The gaps, and the average gaps, and the other predictions I’ve made? I have done the calculations and have come up with 170 days, which is reasonably close to some of my earlier predictions, and it comes from the most complex formula in this process. And 136 days comes from my most basic prediction.

So my final prediction is that my next seizure will happen between 136 and 170 days after my most recent incident. My most recent incident was 23/7/23, 136 days after that is the 6th of December 2023. And 170 days after my last seizure is the 9th of January 2024. Put it this way, if I haven’t had my next one by the 9th of Jan, I am going to start to really, REALLY worry. Hey ho. 

Will I have a seizure on one of those dates for sure? Who knows? Anything is possible. That said, it does give me a rough idea how long I could be safe. Not that I can trust any of this made up BS, any more than I can trust my faulty, misfiring brain. 

There is no real answer

I did an awful lot of mathematical wanking to come up with those ultimately meaningless predictions. I could have my next seizure tomorrow. I could have my next seizure next week, next month, or next year. Or, in my dreams, I would never have another one again.

That’s the goal, that is my dream, to remain seizure-free for the rest of my life, but I now know that’s unlikely. My seizures aren’t an “if” any more, they are definitely a “when” at this point. I’ve learned that much in the last couple of years, and it was a hard lesson. 

After my next seizure, they will raise my current medication to the maximum dose. After that, when I have another seizure, I will be looking at transitioning to a different medication, and starting the honeymoon period process all over again. FML.

There are too many variables, and too many unknowns to reliably predict when I might next have a seizure. I wish I could predict it, and prepare for it, but alas, I cannot. No one can. 

One of the many things I’ve learned since being diagnosed with this miserable affliction is that no two people experience epilepsy in exactly the same way. While we all may have seizures, how we got there, and what we experience around them, varies widely. 

What’s Your Flavour?

My flavour of epilepsy is called Right Temporal Lobe Epilepsy, or RTLE. It’s considered rare, but I have encountered a few others online who also have it. I was lucky to be finally diagnosed correctly, and it was my third neurologist who worked it out. And that diagnosis was confirmed via an EEG, because this time, they knew where in my brain to look. 

I first had what I now call pre-epilepsy symptoms 5 years ago. My first documented one was in October 2018, two and a half years before I would have an actual seizure. 

Why do I say “documented”? I say that because it involved an incident with my old car, that friends of mine also recall. I don’t drive any more, I had to give it up.

I had some sort of brief blackout while driving to work in central London one night, that resulted in both my front tyres being flattened. It took me ages to connect this event to my illness, but when I did, it made me realise that my epilepsy didn’t just suddenly appear in 2021 out of nowhere. 

Some people sense that something is wrong just before they have a seizure. That’s referred to as an “aura”. Think of it as a herald, before catastrophe strikes. Everyone’s aura is different. It can be a sound, a smell, or a sensation or feeling. My aura, when I can recall it, is emotional, which is a feature of RTLE. 

It’s weird having to think of my emotions as potential symptoms, but that’s where I am, and sadly, where I have been for 5 years. Only for a good chunk of that time, I didn’t realise it. 

Allow me to explain. My full aura leading up to a seizure is a sequence of three emotions. For the first, I feel an immense sense of sadness, akin to deep grief. That’s followed by the second one, which is a sense of impending doom, as if a nuke was about to obliterate London within minutes. 

Imagine deeply feeling both of those emotions, suddenly, and without warning, but without a genuine external source, or justification for experiencing them. It’s disorienting. 

The third emotion I experience is the weirdest of the three, and a concept I wasn’t even familiar with until I read about it within the context of auras: A “jamais vu”. It is the opposite of deja vu. 

A jamais vu is the feeling of weird unfamiliarity in a situation or place you know is extremely familiar. Imagine being in a fake version of your own home. It looks like your place, but something feels off, like it’s a simulation. It’s eerie, and more than a bit creepy. And then I black out from the seizure. 

I occasionally experience what I call a partial aura, where I have the sadness, and the doom, but I don’t go on to have the jamais vu, or a seizure. I have experienced this many times, and have also noticed it often happens the day before, and again just before a seizure.

When I have the partial aura, I brace for impact. I stop whatever I’m doing, and wait for it to either pass, which it mostly does, or go on to the jamais vu, and then a seizure. It’s a continuous, endless worry, waiting for my emotions to alert me. I’ve learned not to ignore, or dismiss it when it happens. I expect it daily, the same way I expect my next seizure.

The partial aura I’m describing began around the end of 2018, and it was frequent. Only way back then, I had no idea it was anything other than poor mental health. It caused me to have a breakdown, which I described at the time as “chemical, and the depression coming in waves”. I was close, it wasn’t chemical, it was electrical. And it was confusing. It wasn’t just poor mental health, it was poor mental health as a symptom of a much larger issue, the onset of my epilepsy. 

At the time, I thought I had MS, thanks to Dr. Google, who I should never consult, yet I still do. I asked my GP for a referral to my first neurologist during the same appointment when I asked to be signed off work due to my breakdown. I wasn’t sure at the time that my neurological concerns were linked to my mental decline, but I did suspect it enough to search online for what could be causing both together. That’s how I came up with MS. 

It’s not just my next seizure I think about, though I’d be lying if I said it didn’t dominate my thoughts. I do re-run my recent health history, seeking connections, and clues that I missed, and that my doctors missed too. It’s a bit tedious, if I’m honest, but epilepsy has completely taken over my life, and a huge chunk of that time is filled with anxiety, worry, and fear over my next seizure.

I never thought about having epilepsy, until I started having seizures. When I was 17 or 18, my mother told me one of her sisters had it. And she was telling me then because she thought I was clear of the risk. I thought that too, that it was a childhood thing. I didn’t know it could begin at any age. Having it in my genetics is the only risk factor I’ve identified. I don’t know why the seizures started. I don’t know what causes, or triggers them either. There is no pattern, there is no common thread that links all my incidents together. They’ve all happened in the morning to early afternoon. That’s all I’ve got, and it’s not much.

I have no control over when my next seizure will happen. It will happen whenever, and wherever fate decides. There is no fate. There’s just a small, defective portion of my right temporal lobe, that occasionally for reasons unknown, causes chaos inside my brain, and puts my body through the proverbial ringer. And it really wants to kill me, it’s made a few attempts already. And there is nothing meaningful I can do to stop it. I just keep taking the prescription meds, plus massive daily doses of my special private medication, and hope it staves off my next seizure for as long as possible. And until that happens, I will be continue to spend a ridiculously stupid amount my waking hours worrying about my next seizure. 

After a 30 year career as a journalist, working for some of the largest news organisations in the world, including Associated Press and Reuters, and 15 years as a duty news editor for BBC News, Doug – the northlondonhippy is now “semi-disabled, and semi-retired”, but he’s still available for hire, if you can put up with his epilepsy. All WFH situations considered. He’s bored. 

Doug is also the author of “Personal Use by the northlondonhippy.”   “Personal Use” chronicles Doug’s years of experience with mind altering substances, while calling for urgent drug law reform. It’s a cracking read, you will laugh, you will cry, and you can bet your ass that you will wish you were a hippy too!

You can also find Doug –  the northlondonhippy on Twitter: @nthlondonhippy but only if you look really hard.

And maybe one day, he will explain why he writes these stupid end sections in the third person. Everyone knows he doesn’t even have a publicist.

Honeymoon’s Over



The hippy gives you a long overdue update on his worsening epilepsy. It’s another depressing read.

Episode Six

I’m still not good. I had yet another seizure in July, and it was my worst one-off seizure so far. And it’s taken me this long to write about it. You’ll see why. 

It nearly gave me an actual heart attack, and I got blue-lighted to A&E. I won’t lie, I never do, this one scared the crap out of me. It was my sixth incident, and thirteenth seizure in the last two and half years. I desperately don’t want it to happen again, but I already know that it will. Another seizure is a statistical certainty at this point. The only questions remaining are when, and how bad, the next one will be.

My most recent seizure happened on a Sunday morning, the day before Mrs. Hippy was due to have day surgery that she had been waiting a very long time to get. I screwed that up badly by having a full-on tonic-clonic seizure while sitting next to her on the sofa.

I asked Mrs. H. to describe what happened, as I don’t recall any of it. She said I made a weird exhale noise, and then I convulsed, while biting my tongue hard enough to draw blood, which ran out of my mouth. I then went stiff as a board. 

When the seizure finished, my heart rate remained high. I received three high heart rate alerts on my Apple Watch. That was new. 

Previously, when I had a seizure, my heart rate elevated wildly during the actual seizure, then came right back down. My Apple Watch recorded that as a minute or two of exercise. 

This time, my heart rate remained elevated after the seizure, and spiked at an alarmingly high rate three times within ten minutes, while I was remaining still. It didn’t register as exercise because I wasn’t moving. Also, Mrs. H said my breathing was shallow, and irregular.

SUDEP, or Sudden Unexpected Death in EPilepsy is caused by irregular breathing, and heart attacks due to weird brain activity, after a seizure. I don’t know if that means this incident was an actual brush with death, but it sure felt like it. 

Mrs. Hippy rang 999 as she was concerned by my shallow breathing, and they dispatched an ambulance quickly. They always do, the risk of death is real. 

I was semi conscious when they arrived, but I do not remember interacting with the paramedics inside my house. Mrs. H says I spoke to them quite a bit. She also said I didn’t argue with them about taking me to A&E. That’s also new, usually, if I am able, I put up a fight. If I’m going to die, I want to die at home, not in some cold, brightly lit hospital A&E cubicle. 

I’ve described my aura before, it’s what people experience leading up to a seizure. Everyone’s is different. Mine is a series of emotions. I feel immense sadness, followed by a sense of huge impending doom. I get this occasionally, without it leading to a seizure, and while I don’t recall having it directly before this particular seizure, I did have it once the day before, and much earlier in the morning on the day. I’ve had it enough, that up until now I’ve mostly tried to ignore it. I would just get myself someplace safe, and wait. Most of the time, it just passes, but sometimes I go on to have a seizure. 

On the occasions I can recall my aura, I do have a third stage, that I’ve only experienced when I’ve had a seizure, called a Jamais Vu, and it is the most disturbing emotion of the bunch. It’s made even more disturbing because I now know that if I reach this stage, a seizure will definitely follow. 

When I have a seizure, the lights go out suddenly, and it wipes out my memories leading up to the event. And the bigger and badder the seizure, the more of my memory that gets wiped. For example, during my worst incident, where I had six seizures in one day, it wiped out the memory of the previous few days leading up to the event. Having a faulty brain sucks. 

The reverse of the suddenness of the seizure, is the slowness of my recovery afterward. It can take an hour, or more, for me to regain full function and control, but that process is gradual. 

It’s like my brain comes back in stages. Motor function seems to return first, and I flail about quite a bit. Speech returns too, but I often don’t make sense, or jumble up my words for a while. The last thing that seems to return is my ability to store memories, so frequently I don’t recall my words, or actions in this period. 

After the actual seizure, this period of semi-functionality is probably where I am at most risk. I am unsteady, confused and disoriented. And I’m not all there. If I had a seizure on a busy road, I could easily stumble into traffic. People might think I was drunk, or crazy. They certainly wouldn’t immediately work out I was in a post-seizure fugue state. 

My memories of my last seizure are disjointed, and spread out. I recall snatches of conversation in the ambulance outside of my house. They couldn’t take me to my hospital of choice, the Whittington, for some reason, and instead insisted on the North Middlesex. The North Mid is slightly closer, but I am on the books of the neurology department of the Whittington, that’s why I preferred it. The care I’ve received in both hospitals has been fantastic.

I have no memories of the around ten minute drive to the hospital, but I do recall the flicker of the blue light as we set off. I don’t recall being transferred into the A&E, and my next memory is being semi-conscious, and noticing they had put a cannula into my hand, with what looked like a litre of saline connected to it. 

They told me they thought I had a heart attack, and had taken blood to test for enzymes that mark a heart attack. They handed me a carrier bag, Mrs. H had put my epilepsy mobile phone, and a change of clothing into it for me. The first thing I did was text her, to let her know I was still alive. She was happy to hear from me.

As I recovered, and my brain function gradually returned, I noticed a really unpleasant smell. This is gross, but I’m not going to leave any details out, even the really embarrassing ones. I thought someone in a nearby cubicle had shit themselves. I was wrong, it was me. I soiled and pissed myself during the seizure. That was also new, a first for me, and why, along with the near heart attack, I am describing this seizure as my worst one-off seizure. 

Now I knew why Mrs. H had put a change of clothing in the carrier bag. It was a godsend, and extremely appreciated. The I/V finished, and they disconnected it, so I asked to use a restroom, where I was able to clean myself up, and change my clothing. When I returned to my critical care cubicle, they redirected me to a different area, a cubicle with three high-backed easy chairs, and two other people already there. They told me to sit, and wait. I wasn’t sure exactly what I was waiting for, but I sat there for a while. 

I sat there as long as I could, but I grew more agitated with each passing minute. They hadn’t made it clear to me that they were waiting for the results of my heart attack blood test. I knew I had absolutely no chest pain, and that was good enough for me.

After an hour or so of sitting in the big chair in the little room, I finally decided it was enough, and I found the nurse would had been helping me. I told him I had to leave, now, and asked if he could remove the cannula from my hand. He made me wait until he found a doctor to speak to me.

The doctor told me if I left, I was leaving against medical advice. I was cool with that, I felt fine. Well, as fine as one can feel after a heavy duty tonic-clonic seizure. Other than a deep gash in my tongue from biting it so hard, I had no other injuries. I had no chest pain from the suspected heart attack, I don’t think I had a heart attack, but I do think I came close. I didn’t wait for the test results.

The nice nurse removed my cannula, and asked someone else to go outside with me and wait, while I summoned an Uber. And fifteen minutes later, I was home, safe and sound. 

The fallout

I was meant to be the responsible adult the next day, on Monday morning, dropping off Mrs. H, and collecting her after her long planned and awaited, day surgery. Clearly, I was in no shape to deal with any of that, nor was Mrs. H. 

My seizures are particularly traumatic for Mrs. Hippy, witnessing them, dealing with them, phoning for ambulances, the lot. These were unforeseen circumstances, beyond either of our control. Mrs. H rang the hospital early, and told them what happened. They were not unsympathetic, but clearly it is a hassle for them too. 

I spoke to my GP on the Monday morning, and told her what happened to me, and to my partner. She was very kind, and said she would consult with my neurologist on what action to take. 

Mrs. Hippy also spoke to her GP, about her cancelled surgery. The GP immediately sent a letter to the hospital, explaining what happened, and asking for them to reschedule the surgery as soon as possible, as all the pre-surgical checks remain valid for a while. This letter proved helpful, as Mrs. H had this surgery on Saturday. I tweeted about it. 

Yes, I tweeted. It will always be Twitter to me. 

I wasn’t so good after this seizure. I was bad. I’ve been weepy. I’m not a weepy person, and yet, I have found myself quietly in tears most days. That’s not an easy admission. 

Screwing up Mrs. H’s surgery is unforgivable. Everyone keeps telling me it’s not my fault, and while I accept that I didn’t cause my own seizure, it was still me who had it. It was me, who forced the short notice cancellation of her surgery. I beat myself up about it constantly. I think that’s part of the reason it has taken me this long to write about something that happened nearly two months ago. I had to wait until Mrs. Hippy’s surgery happened.

She only had nine days notice for the rescheduled date. The hospital is doing Saturday surgeries to help clear the backlog, and Mrs. H qualified because her pre-surgical checks were still valid, and she had been on the waiting list for one of the longest times. Plus, I am certain the GP’s intervention played a part. I feel very fortunate that it is finally done, and Mrs. H is recovering well so far.

But it wasn’t just Mrs. H that was weeping for, I wept for myself too. After dancing around it for a couple of years, and nearly dying from it a couple of times before, it really hit me. This fucking epilepsy bullshit is what is going to fucking kill me. I always wondered how I was going to die. Now, I am pretty fucking sure I know. 

Honeymoon’s Over

My GP had trouble getting in touch with my regular neurologist, and it took a couple of weeks before a duty neurologist raised my epilepsy medication dose. It was long overdue, and should have been raised after my seizure in May. I don’t know why it wasn’t. Hey ho.

A quick history of my epilepsy:

I started having weird, seemingly unrelated emotional, and neurological symptoms about two and a half years before my first seizures. I saw my first neurologist one and a half years before my first seizure. I knew something was wrong, I had no idea what it was. Neither did that doctor, he misdiagnosed me, but to be fair, he didn’t have much to go on.

Incident one consisted of two seizures, with status epilepticus in-between. I was seen by paramedics, but refused A&E

I saw neurologist number two after my first seizures. He also misdiagnosed me, and missed an opportunity to prescribe epilepsy meds. And he told me if nothing else happened in the next 90 days, I was clear of epilepsy. I believed him, I wanted him to be right. He wasn’t. Whoops. 

Incident two was around100 days after my first incident. And it was also two seizures, but I didn’t recover as quickly, so this time the paramedics dragged my unconscious ass to A&E. When I woke up, they sent me home with a referral to neurologist number three. They didn’t catch neurologist number two existed.

Incident three was six seizures in one day, five at home, and the sixth whilst in A&E. I was sedated for 24 hours, and put on epilepsy meds. I’m still taking the same drug today, only at a much higher dose. 

Today, the day I am writing this, is the second anniversary of this day, which I call Super September Seizure Saturday, or SSSS for short. I nearly died that day, and had they not sedated me, you could cross out the word “nearly”. 

I saw neurologist number three a few weeks later. She finally, correctly diagnosed me with Right Temporal Lobe Epilepsy, and she immediately increased my medication dose, from the non-therapeutic starter dose I began in hospital, to a therapeutic level. 

I haven’t mentioned it, but one of my symptoms connected to my epilepsy is very rare. I get ictal nausea, and vomiting. The neurologist said this symptom was key to my specific diagnosis, due to the region of the brain that this type of nausea originates from, along with my seizures. It was confirmed with an EEG. 

I had a bad bout of the ictal nausea in March 2022, and my medication dose was raised again. It remained there until September 2022, when it was again raised after incident number four. I was four days shy of being seizure-free for an entire year.

Incident number four was 361 days after SSSS. The medication kept me seizure free all that time, I think. This was the easiest, lightest seizure I’d ever had. I was on my own, and recovered from it on my own. It took me a bit to work out what had happened to me, but once I noticed my bitten tongue, I knew exactly what had happened. I rolled with it, and recovered relatively quickly. I even finished writing a very long piece about my health that was meant to mark being seizure free for an entire year. I took it in my stride. That hasn’t happened before, or since. 

My medication dose was immediately raised after incident four. 

Incident five was much worse than the fourth. I happened 231 days later, so a slightly shorter gap. It was also a bigger, badder seizure, and I felt the full force of my aura leading up to it. I did have the partial aura the day before, and the morning of, but I ignored them, as it wasn’t uncommon. That was a poor decision, as that morning, I went out for a blood test, and on the way back, the seizure happened just outside of my house. It’s been my biggest fear, and why I rarely go out. It happened on my doorstep, 

I felt it coming as I was walking home, and hoped I would make it inside. I didn’t. Mrs. H heard me go down, a neighbour saw me go down, and a passing doctor stumbled upon the aftermath, and helped Mrs. H get me inside. He also cancelled the ambulance my neighbour phoned, and I was very grateful for that. 

My physical recovery was slower than with incident four. Incident five saw a few physical injuries, as well as the usual tongue biting. But on top of that, it was a massive knock to my confidence. I was already wary of leaving the house, because of the fear of this very thing. And now that it’s happened, that fear is on steroids. I know how much worse it could have been, had it happened only 10 minutes earlier. I was on a busy high street, it’s an A road too. It scares the shit out of me. 

The key here is my medication dosage wasn’t increased after incident number five. I was given a short course of an older drug, a sedative, and a boring one at that. I’d been given this one before, to help with the ictal nausea, but again that was just a short course too.

When my most recent incident happened, number six, it was the worst single seizure I’ve had, on every metric I can think of, and probably a few I don’t even know about yet. 

I am constantly learning new things about epilepsy. Some things I learn through first hand experience, some things I learn about online. And some things, I find out about both ways. That’s how I learned about the concept of a “honeymoon period” with epilepsy drugs. And that’s why the title of this piece is “Honeymoon’s Over”.

After my sixth incident, I went into quite a spiral of depression. I haven’t spoken to my neurologist in nearly 18 months, and haven’t seen her in person in nearly 24 months. I wondered if becoming resistant to epilepsy meds was a thing. Here’s my simple math:

Incident 3 to incident 4 – 361 days

Incident 4 to incident 5 – 231 days

Incident 5 to incident 6 –  80 days

The gap between seizures is decreasing, while the intensity of them is increasing. My dosage was increased after incident four, but not after incident five. If it wasn’t increased after incident six, I predicted my next seizure would be less than 60 days away, and potentially fatal. 

I googled, since I couldn’t ask my consultant. 

That’s how I discovered what a honeymoon period refers to in terms of epilepsy meds. That’s how they describe developing resistance. The drugs work well for a while, until they don’t. Then the dosage is raised, and the honeymoon period resets again somewhat, and you’re good for a while. Until you’re not. Rinse and repeat until you reach the max dose of the medication. 

It took a few weeks for my GP to get advice from a neurologist, to raise my medication dose. The next increase, which I expect will follow my next seizure, assuming I survive it, will bring me to the max dose of this drug. And the incident after that will mean transitioning to a different, probably less effective drug, and going through the whole honeymoon period thing, all over again. FML.

Clearly, and obviously, this is my own speculation based on reading lots of medical stuff online that mostly wasn’t over my head. There’s a tremendous amount of information out there, and much of it lines up with what I’ve been going through. That’s how I confirmed emotional auras are a thing. I’ve worked out so many things on my own, in the absence of actual medical care. And if I ever get to speak directly with another neurologist, I have so many more questions. And stuff they can learn from me as well. 

One thing I’ve learned about epilepsy is that no two people experience it exactly the same way. Everyone who has this stupid condition, has a unique take on it. It manifests differently in everyone, from auras, to the type of seizures they have, and what may or may not trigger them. Epilepsy is a catch-all term for people who have seizures, but those seizures, and the symptoms around them can vary widely. And not even every neurologist is aware of every symptom. 

The neurologist who diagnosed me said the ictal nausea and vomiting symptoms were key to my diagnosis. And yet, one neurologist disregarded it completely, and another who consulted on my case, had never even heard of it before. Trust me, it exists, it’s horrible, and for me, it is worse than the seizures. I’m awake for the nausea, and I experience every second of it, but when I have a seizure, my brain is shut off completely. It’s the aftermath and recovery that suck.

What I know about the honeymoon period with my medication, is that it doesn’t last. At some indeterminate point in the future, I am going to have another seizure. It may happen without warning. It might be fatal. Or I might wake up to another bout of ictal nausea, that lasts all day. Or I could have my partial aura, which feels like a wave of depression and doom washing over me, and makes me expect a seizure that may or may not come in that moment. It’s a terrible way to live. 

Final Thoughts

This is more like a blog, I know that. It’s off the top of my head ramblings. I wanted this piece to be more considered, but that didn’t work out. And that’s a shame, as this piece is serving several functions. It’s marking the second anniversary of SSSS, it’s the first new piece for my brand new website section on epilepsy, and it’s a record of what’s been going on since May, with my stupid condition. 

The truth is I haven’t been coping with any of this very well. Being able to write about it, is a step in the right direction. I’ve never been as scared as I have been since the last seizure. It was worse than the previous twelve in so many ways. And I wasn’t sure anyone was going to tweak my meds, and as I’ve just explained, they require on-going tweaking, if I want to remain seizure-free.

And that’s the thing, the crux, the heart of all of this. All I want to do is remain seizure-free. I don’t want to have another one. They just keep getting worse. The recovery after each one is harder, I lose a little bit more of myself after each one, too. The key to my happy, healthy future is to prevent all future seizures. And I know that’s never going to be possible. 

In general, one out of one-thousand seizures is fatal. That leaps to one out of one hundred and fifty, if your seizures are poorly managed. My seizures are poorly managed, it’s inherent in suffering from the honeymoon period thing. It’s said around 30% of epilepsy patients continue to experience seizures while on medication. I’m in that group. 

I need better monitoring, I need access to a consultant specialist. My GP surgery is great, but this is all outside of their area. That’s why consultant specialists exist. I don’t know why I’ve had such trouble accessing care. I doubt it is down to my neurologist, but it has to do with my neurologist’s gatekeepers. The NHS is in crisis, that much is evident. It’s been starved of funds and resources for 13 years now. You know what I mean. I don’t blame that on the doctors, nor the administrators. I blame it on the government. Demand has never been higher, the pandemic made all that even worse. 

I wonder if I am counted in that 7 million plus number of patients awaiting treatment? I doubt it, as I am being treated. Under-treated, but treated just the same. Diagnosed too. Diagnosing is the sexy part, doctors love to diagnose people, and rightly, I expect that continues to be the priority. But on-going treatment matters too, and I only seem to be able to access it indirectly, and when I’m in crisis. Some proactive healthcare would delay, or prevent my need for future critical care.

I am terrified by the thought of my next seizure. I know it will be worse. It’s only a matter of time. Will it just be my bitten tongue, or will I have other injuries as well? Will it happen at home, or on one of my very rare trips outside to do something essential. I’m overdue for the dentist, I’ve moved my check-up appointment several times, their office has a tall, steep staircase, that would kill me if I fell down it. How much longer can I live like this? Do I just say fuck it, and pay the price with a broken neck? 

And I know there will be a next time, a next seizure. It’s a statistical certainty at this point. It hangs over my head constantly, it colours my every thought, and decision. It’s the first thing I think of when I wake up, and the last thing I think about before I drift off to sleep. It’s taken over my life in the worst possible way.

I will end on the one reassuring thing, for me anyway, but certainly not for those who I care about, that I will be leaving behind. If a seizure kills me, I won’t even know I’m going, never mind that I’m gone. The way the seizures mind-wipe me, means I know it will be the most peaceful, pain-free death imaginable. I know this based on all of my previous seizures. Had any of them been fatal, I wouldn’t have known it.

Having a seizure is what I imagine death is like anyway. You’re not there. You’re not anywhere. You’re just not. 

Mrs. Hippy will have access to my Twitter account (and this website if she can be bothered), and will post the news, should my untimely death occur. 

Like I said, it’s my sincerest wish to never have another seizure again. But if I have to have a fatal one, just know that I didn’t feel a goddamn thing. 

Doug – the northlondonhippy is a real downer. He used to be the king of fun, he used to be a lot of things. Now, he’s just a shell of his former self. Check out his former self by reading The Sex, Drugs, and Rock & Roll Collection, or if you want to dig deeper, there’s also Hippy Highlights

Fear and Denial

Written by Doug – the northlondonhippy

For better, or mainly for worse, my go-to responses since discovering I have epilepsy have been either fear, or denial. 

To be fair, sometimes it’s a combination of both fear, and denial. They are not the most productive of responses, and don’t serve me well, but what are the alternatives? If you read this to the end, you’ll discover the alternatives are even worse.

(Trigger warning – This piece deals frankly, and honestly with depression, suicidal thoughts, potentially fatal seizures, and euthanasia. Click here if that’s not your vibe right now.)

I had another seizure about a month ago, it was a bad one. As if there are good ones. For some context, it was worse than my previous seizure last September.

For even more context, you could read this lengthy, self-indulgent essay I wrote last September about my long road to discovering I have epilepsy. Or I could just quickly summarise it for you:

Since at least 2018, I’ve had weird, seemingly 

unrelated symptoms that began more than…

2 years before my first seizure.

I had my 

first seizures in April 2021

In the last…

2 years, I’ve had…

12 full-on tonic-clonic, or…

grand mal seizures…

across…

5 separate incidents…

3 of those incidents were seizure clusters… 

also called…

Acute Repetitive Seizures.

The worst of which involved…

6 seizures in one day…

without recovering in-between.

That’s called… 

Status Epilepticcus. 

The paramedics have been called…

9 times

And they’ve visited me…

7 times. 

I’ve been to A&E…

3 times

which included one admission for…

4 days. 

On the first day I was…

sedated intravenously for…

24 hours

And it saved my life. I nearly died.

Since 2019, I have seen…

3 neurologists…

2 misdiagnosed me. 

1 neurologist saw me before the seizures even started…

1 neurologist saw me after my first seizures, and still misdiagnosed me, and…

1 neurologist, the third one, finally nailed my complex diagnosis.

I have 

Right Temporal Lobe Epilepsy (RTLE)

1 in 100 people have epilepsy

1 in 100,000 have RTLE

Since beginning 

treatment via prescription medication…

2 of those 5 incidents occurred

I am not seizure free

Even with medication, and following all medical advice…

30% of people with epilepsy continue to experience seizures. 

I think I’m…

1 of them. 

That about sums it up. 

Don’t worry, it’s not a pity party. There are plenty of people with worse health issues, and dramas than mine. I’m definitely not looking for sympathy, I write about my experiences to help myself process stuff, and work things out. If others benefit from it, or find it interesting, that’s just a bonus. 

Auras

This is an update on that essay I mentioned, as with every incident, I learn more about my condition. And when I do, it forces me to recontextualise everything that’s preceded it with this new, better understanding. 

For example, I have a much better grasp on what’s known as an aura. My aura. It’s what you experience just before you have a seizure, like a herald, or warning. It can be a sound, a vision, a smell, a taste, or in my case, an emotion, or more accurately, a specific series of them. I’ve since discovered that people with RTLE often have emotional auras, so it fits.

Stop for a second, and just imagine what it’s like to have your negative emotions become symptoms. You start to question if whatever you’re feeling is real. 

Just before a seizure hits, I feel several emotions, suddenly, and deeply. Out of my five incidents, two of them are complete blanks, and I have no memories. But of the three I can recall, all of them had this combination of emotions.

First, I experience a sense of immense sadness. That’s followed by an incredibly strong feeling of impending doom.

Imagine answering the phone, and being told everyone you care about and love, just died in a fiery car crash. Immense sadness. 

And then you turn around, glance at the TV, and the news is reporting that every nuclear tipped missile on the planet has inexplicably launched, and all life is about to be obliterated in less than 15 minutes. Impending doom. 

That’s the intensity, but what is more difficult to convey is the suddenness of it all. It just comes out of nowhere, and it all packs quite a wallop. 

The third, and final thing I feel is something I’d never heard of before called a Jamais Vu, and it’s the strangest feeling of them all. I struggled to articulate what it is like, and it is only through digging deep into RTLE that I came across the concept.

A Jamais Vu is the opposite of Deja Vu. Instead of something feeling oddly familiar, you experience the reverse, where something that should be familiar, feels suddenly alien. That description isn’t doing the actual feeling any justice. It’s like being dropped into a simulation of your real life. Everything just seems off, in a palpable, tangible way, like you’ve been transported into a false reality. And then I suddenly blackout. 

At this point, I am pretty sure I recognise the feelings and emotions that make up my aura. Here’s the fun part, I experience the first two of them frequently, but only rarely do I actually go on to experience the third; the Jamais Vu, and then have a seizure. And that’s been going on since I started treatment. I assumed my brain was trying to have a seizure, and the medication was preventing it. 

I normalised these random bursts of emotion, that’s how often they happened. I now know if I reach the Jamais Vu, the seizure will definitely follow, and I maybe have 30 seconds to get myself someplace safe before it strikes. It is useful info. 

The very first seizure I had, started like this. Sadness and doom. I remember thinking I was having a heart attack, or stroke, though I didn’t have physical symptoms for either. I just knew something was really wrong with me, I was overcome with sadness. I felt like I was going to die. That’s my last memory before I blacked out. I went on to have two seizures right after that, with no recovery in between. I lost around an hour. 

My second and third incidents are a total blank for me. I remember nothing about them. For the second incident, I have no memories at all of that day, until I woke up in A&E late in the afternoon. 

My third incident was by far my worst. I had 5 seizures at home, and a sixth in A&E. I call it Super September Seizure Saturday. It has a nice ring to it. 

After SSSS, I was sedated for 24 hours, and put on an anti-convulsant medication that I continue to take twice daily. I’m on the max dose of it now. I have no recall of what happened that day, and I even lost the memories of the couple of days leading up to it. It was all very traumatic for my faulty brain. 

Last September, when I was writing that essay that I’ve now referenced three times, I had my fourth incident. The essay was meant to mark, and celebrate me being seizure-free for an entire year. And then 4 days before the one year anniversary of SSSS, I had a seizure. It was day 361. 

It wasn’t my idea to make a big deal out of marking one year, it was my doctor’s. She said we could talk about restoring my driving privileges once I reached the one-year mark. That’s why I was counting. I now know, I’m never going to drive again. 

That seizure last September was preceded by the aura I have described. But because I had felt it frequently, and normalised it by then, having been seizure-free for nearly a year, I laughed it off. I had been writing about it that very day, I thought it was an amusing coincidence. And then less than a minute later, I had a full-on seizure.

Up till that point, in my mind since starting treatment, I thought of the possibility of another seizure as an “if”. “If” I have another seizure, I would think every day. And once I got over the shock of incident number four, I realised that it was now not a case of “if”, but “when” my next seizure would occur. 

I began to take my aura more seriously. If I felt even the merest suggestion of it, I would try to get myself someplace safe, like my sofa. Another seizure wasn’t a theoretical “if” any more, but a statistical “when”, as it seemed inevitable I would have another one. And I did, 231 days after my last one. 

I have followed every instruction issued by my neurologist. I am 100% compliant with my medications. I make a concerted effort to get more sleep, and have been able to improve the amount, and quality of the sleep I get. I also try to avoid any sort of stress. And I don’t drink alcohol at all, I stopped drinking 20 years ago. I do everything I’m supposed to do, and I am still having seizures. 

The most significant thing about my most recent seizure, is that it fulfilled one of my deepest epilepsy fears: it happened while I was outside of my house. That said, I was extremely lucky because when I say it was outside of my house, I mean literally outside of my house, on my doorstep. 

I was returning home from a routine blood test I get for a thyroid condition I have called Hashimoto’s Disease. Fun fact: People with Hashimoto’s Disease are more likely to also have epilepsy than the general non-Hashimoto suffering public. 

The blood test facility is about a 10 minute walk from my place, and I was on the return journey, about 30 seconds from my front door when I felt my aura hit. My last thought before I blacked out was “ut-oh”, I hope this is one of those phantom ones. It wasn’t, it was the real thing.

Here’s another fun fact: I considered killing 45 minutes on the high street after my blood test, and going to see the first showing of Guardians of the Galaxy: Volume 3, as it opened in London that day. It would have been my first visit to a cinema since 2019. I decided against it, for fear of a seizure. That fear stops me doing a lot, but on this occasion, it spared me a worse outcome. Still haven’t seen the film, I hope I live long enough to see it, I loved the first two. Disney+ in August? September? We’ll see. 

My partner heard me fall down outside, and a neighbour across the street saw it happen. The neighbour phoned for an ambulance, that was cancelled by a passing doctor. The doctor helped my partner get me inside.

Had the seizure hit 10 minutes earlier, I was crossing a busy A-road, and walking along a bustling high street. Hell, had it happened even 30-60 seconds earlier, my partner wouldn’t have heard me. It could have been so much worse.

I convulsed for 1-2 minutes after I fell. According to my Apple Watch, my heart rate topped out at 159bpm. My resting rate is usually in the low 60s. There’s a decent risk of a heart attack when I have a seizure. 

Injury-wise, when I fell down, somehow I hyperextended my left foot, and managed to twist my left ankle as well. Two injuries for the price of one. And I bit the hell out of the right side of my tongue, and there was blood, but that always happens when I seize. At least I don’t seem to piss myself, that’s something I guess. 

For 10-15 minutes after the seizure, my brain is shut down. You know when you re-start an iPhone, and the white Apple logo is displayed? You can tap that black screen all you want, but the iPhone isn’t ready for input. That’s my brain for ages. It takes me quite a while to recover. I was blacked out for 10-15 minutes, before I started having flashes of reality. My brain is glitchy as it limps back to life. 

What I’ve learned is everyone shouts at you when you’ve had a seizure. That’s the very last thing you need. Paramedics, and doctors, they all shout. It doesn’t help. 

As I begin to come back to life, I am disoriented, confused, and agitated, but I’m not deaf. Shouting only makes it worse. I need to be spoken to calmly, and softly. 

And this might sound dumb, but I really just need to be told two things, over and over, until I understand them. One is that I’ve had a seizure. Even though it happened to me, I won’t realise that I’ve had one for ages, so tell me. It will speed up the recovery. Then tell me I’m safe. Once I understand those two things, and they register, I will just need to sit quietly with my eyes closed for 45-60 minutes. Just leave me be. When I’m ready, I’ll start asking questions about what happened. That’s much of what I learned from this most recent seizure. It confirmed my aura, and my recovery sequence. 

It taken me weeks to nearly fully recover from my most recent seizure, and I can’t say I’m feeling 100% even now. I lose a little bit more of myself every time I have one. Hey ho. 

Fear

Since my first seizure, having one outside of my home has become my biggest fear, and I’ve limited how much I go out to a fairly extreme degree because of it. Medical appointments, and the chemist are pretty much it. I don’t see anyone, and I haven’t been in a shop, restaurant, or cinema in years. And I either walk, or take an Uber if I have to go anywhere. Anything I need, I have delivered. It’s not a lifestyle I’d recommend. 

Now that I’ve had a seizure outside of my house, that fear has ramped up exponentially. I have absolutely no confidence that it won’t happen again. If anything, I am confident it will happen again. I feel certain it will, and I don’t even want to walk 50 yards to the postbox on the corner. 

I’m overcome with fear now. I don’t plan on attending even medical appointments, it’s either telephone or I go without. That’s true for everything. If I have to leave my house for it, it’s ain’t happening. I’m officially, and intentionally housebound for the foreseeable future. 

I’m not sure how long I will need to be seizure-free before I will feel confident and comfortable being outside of my house. Six months? A year? More? I can’t say. 

Fear consumes so much of my headspace, especially in the immediate aftermath of a fresh seizure, but even well beyond it. I don’t know what I can do to lessen it, except for denial. And I’ve tried that, it doesn’t really work either. 

Denial

RTLE messes with your emotions, and that’s especially true for me and the seizure aura I’ve described. It’s why I gave up my job. The last night I worked, I was experiencing this aura sequence, over and over. It’s taken me a while to really grasp this, but my most recent seizure confirmed my suspicion. 

Think of it as pre-seizure activity, or you can use my neurologist’s term, a sub-clinical seizure. I thought I was having a breakdown, and I was, but it was also something more. I was signed off after that night, and I never went back. 

At the time, I described my depression to my GP as coming in waves, and feeling chemical. I was close, it wasn’t chemical, it was electrical. And it wasn’t just a change in my baseline of depression, it was a symptom of something larger and worse: RTLE. 

At the time, I thought my symptoms, the increased depression, and something I called brain blips, or time skips, were suggesting MS thanks to an ill-advised Google search. I asked for a referral to a neurologist nearly 2 years before my first seizure, as I knew something was neurologically wrong with me, even back then. It just wasn’t clear what it was at that point. 

The first neurologist I saw mis-diagnosed me, but to be fair to him, he didn’t have that much to go on. I normalised my symptoms, left my job, and hoped I would recover. I didn’t.

That first neurologist did say to request a re-referral if my symptoms continued, but I didn’t. I justified it by telling myself I didn’t want to waste the neurologist’s time, but the sad, simple truth is I was in denial again. Or still. Denial is my go-to, whenever I can move past the fear. 

After my first seizures, I desperately didn’t want them to happen again. And I didn’t want it to be epilepsy. I saw a different neurologist, my second, and he didn’t think I had a seizure, and he didn’t think it was epilepsy. This is very much what I wanted to hear. He told me if I didn’t have another seizure within 90 days of my first one, then I would be clear. He fuelled my denial, and fanned the flames of my hope that I didn’t have epilepsy. 

I dutifully counted down 90 days, and practically celebrated when I reached that milestone. I wrote to the second neurologist with the good news, and cancelled future appointments. And then 9 days after that, I had my second incident and ended up in A&E.

And then… and then I did nothing. I went into peak denial. I didn’t contact neurologist number two, I didn’t even phone my GP. The A&E doctors referred me to a third neurologist, so I just decided to wait for that appointment, in October. 

And then Super September Seizure Saturday happened. I’m a bit hazy after that, my recovery was slow. I was angry that I survived. I saw no point in life, and if I am honest, I still don’t. 

I don’t know why I was saved. It was a low point, and I’ve only continued on that downward slide. What purpose does my continued existence serve? I haven’t had a single good day since all this started. That’s one thing I’m not denying. Every time I try to move past it, something trips me up. 

The third neurologist finally diagnosed me in October 2021. My first documented pre-seizure, epilepsy-related incident was in October 2018. It’s been fucking up my shit for way too long now. 

The near-year I spent thinking “if” I have another seizure is another example of denial. I had been toying with the idea of trying to get some freelance work around Xmas time, as I miss working, but the seizure in September smashed that idea into tiny little bits. 

There’s a thin line between denial, and delusion, and I think I may have crossed it when I considered working again. Who would hire an epileptic hippy for any job that mattered, when I could collapse at any time without warning, in a really disturbing way, that traumatises people who see it?  And then I would need a few weeks to recover from it. And why would I wish that on any employer? I’m not quite as delusional now, but the denial remains strong. I don’t see how I can ever work a normal job again, something else I reluctantly can’t deny. 

I even tried denial as a coping technique for the entire month of March this year. I decided not to mention epilepsy at all, and just have a make-believe normal month. I say make-believe because even though I didn’t mention it, I still thought about it. A lot. Sometimes denial, strong it may be, still isn’t enough. 

I wrote, and published 10 new pieces on my website that month. All of them were meant to not be sad, or depressing. They were meant to be entertaining, and fun.

The new material is called The Sex, Drugs, and Rock & Roll Collection. It’s was meant to be a departure, or relaunch from all the doom, and epilepsy gloom. Writing it is the most fun I’ve had in a very long time. That part of my denial was good.

I revisited my past. Why? Simple, I’ve hardly left the house or done anything in the last four years. The past is all I’ve got. 

There was a time in my life where I used to do really cool stuff, but those days feel like a million years ago now. Time travelling back to them with my faulty brain was as much an exercise in creativity as it was in simple recall. I worry about my memory, but I’m pleased to say that the old days are still accessible in my mind. 

I wrote about the summer of 1982, back when I lived in New Jersey. I saw Bruce Springsteen hanging out, and jamming in local seaside bars. And he saw me too. 

I wrote about starting my career at MTV in the mid 80s in NYC, back when MTV was the biggest, and coolest thing in the entire world.

I also wrote my first bit of fiction in ages, a twisty time-travel sci-fi short story that’s chock full of an uncomfortable amount of actual biographical details. If you’ve read any of my health stuff, you’ll get even more out of it. It’s my favourite piece in the collection.

And I wrote about hooking up in the pre-internet age, before apps and websites existed, but it’s actually about a lot more than that. The main story is in three parts, but there’s a bonus fourth section that has a self-contained story that needed to be told on it’s own. 

The most disappointing thing about my extended writing exercise is what little impact it has had on anything. I had some traffic from Reddit, but for some reason, my usual audience on Twitter didn’t seem interested. Maybe it’s post-Musk algorithm nonsense, or maybe people have just lost what little interest they had in me? I wouldn’t blame them if they did. I’m just a pathetic downer most of the time. 

I seem to get more traffic on my tedious, health-related pieces, than I get on the lighter, more entertaining material. More of you will read this piece, than the fun stuff. It confuses me. People used to dig my writing. It took some of the shine off my enjoyment of creating, and publishing a book’s worth of new material in five-week period. What’s the point of sharing it, if it doesn’t attract an audience? It may all end up in a book one day, anyway. Fuck it. 

Death

The one thing I don’t fear is dying from a seizure. It actually wouldn’t be a bad way to go. I fear surviving them. The injuries are no fun, and I have been fairly lucky so far. The immense post-seizure depression, the anger of surviving, the rage of being brought back to life, that’s what I fear. 

That’s how I describe the blackout portion of my incidents; it’s as if I’ve died. There’s a sense of peace, and calm that’s indescribable. Nothingness is the most amazing state of being, and it’s how we all spend most of eternity. Life is the noisy, smelly, messy interruption in-between the nothingness. Do you remember before you were born? Exactly. That’s what it’s like having a seizure. Or being dead. You’re not there. You’re not anywhere. You’re just not. It’s bliss.  

Coming back after a seizure is like being resurrected. It’s like being brought back from the dead, only it is as traumatic as birth itself. There’s a reason why we can’t remember being born; it’s a horrifying experience, being ripped from the peaceful void, and brought to this bright, noisy, messy, smelly, pointless world. I keep repeating and reliving it. It sucks. 

After every seizure, I have regretted surviving. I wouldn’t mind if I died mid-seizure. I wouldn’t even know I was gone. As deaths go, it would be a good one. There would be no suffering, my brain would be checked out, regardless of whatever stress my body might be experiencing. 

It’s always worse for whoever witnesses my seizures, than it is for me. My pain starts as I am reborn. It hurts, every muscle, every nerve, every sinew in my body aches. Then factor in the additional injuries, plus my most certainly bitten, swollen tongue, and then all the  mental and emotional trauma on top. It adds up to unadulterated misery. 

There are four main ways epilepsy can kill you, according to one of the epilepsy organisations I follow on Twitter

The first one is called SUDEP, which stands for Sudden Unexplained Death from Epilepsy, and it is pretty self-explanatory. I’m guessing heart attacks caused by seizures are included in this category. I’m especially at risk of this one, because of the type of seizures I have, but I think anyone with epilepsy potentially is too. The wildly elevated heart rate is just a bonus. 

The second way it can kill you is via Status Epilepticcus, which I have experienced several times. Basically, you just don’t recover. Brain damage or death can occur in as little as 30 minutes, without urgent treatment. There are worse ways to die.

The third possible epilepsy killer is worse, it’s via accidents. Besides not being able to drive a car, bicycles are now not an option for me, neither are roller skates, skateboards, or scooters. Swimming is a no-no, unless I tell the lifeguard, and why would I want to put extra stress on a complete stranger? 

I’m not supposed to take baths, but apparently showers are OK. So I’m not allowed to drown, but falling down and cracking my skull open is totally cool? I’d rather not go this way, an accidental death sounds painful. I don’t like ouchies.

And it’s not just the seizure for me, in that 10-15 minutes right afterward, as I recover, my body is on auto-pilot while my brain is not functioning. I’m unsteady, but I move around a lot in a confused, agitated state. My consciousness seems to come back in spurts, and stages. It doesn’t happen all at once, like a seizure in reverse. The recovery process is slow. 

If I had a seizure on a tube platform, I could end up falling on the tracks from the seizure, or during the recovery period afterward. Bystanders would just see me confused, and behaving bizarrely, and they might not realise I need saving. I’m literally a fatal accident waiting to happen. That scares the bejesus out of me. I definitely don’t want to go this way. 

The fourth way epilepsy kills people is literally even more depressing: Suicide. Depression, and epilepsy have a weird bi-lateral, bi-directional relationship. They make each other worse. 

In 2019, I was actively suicidal. I now understand that this was part of the onset of my epilepsy, but at the time, I just thought I was weak, and finally surrendered to my depression. What I’ve learned since, is that what I went through was a direct result of my faulty brain. 

I would say that I am passively suicidal right now. And I don’t say that lightly. I’d let myself go, if I could, but I wouldn’t take an active role in my own demise. I’m not going to do anything rash, so no need to report me for a welfare check.

I’d be very OK if my next seizure was fatal, though ideally my first choice would be to live the rest of my life without ever having another one. I’d rather not have to recover from another seizure. It is indescribably unpleasant. Even with the meds, my most recent seizure was worse than the previous one. Perhaps I’m becoming resistant to the medication? My next one could be even worse, who knows? But there will be a next one, I’m convinced of that.

I have so many questions that have no answers. I still don’t know if my seizures have a trigger. I don’t think there is anything else I can do to try to avoid them. As a control freak, having something so significant, so far out of my control is unbearable. 

I have thought about going to Switzerland. Dignitas. Euthanasia. Perhaps I see it as the only way to regain control of my own fate. I’m not sure, but I think I’ve left it too late, I don’t have it in me to make the journey now. It would be such a pleasant death, peaceful, and on my own terms, but I don’t think I could cope with the trip, or the bureaucracy. 

The laws in the UK will change eventually, but not soon enough for me. And I expect when they do introduce assisted dying here, the bar will be set too high for someone like me. You’ll need to be within 6 months of a definitive demise to be eligible for the good drugs. Could I be six months away from a fatal seizure, or six minutes? Maybe and maybe. How long is a piece of string? I might never have another one, or I could have one before I finish typing this sentence. The uncertainty is maddening. 

I don’t fear a sudden death, I fear continued life. Every minute of every day, is fairly miserable for me. I am the textbook definition of a loser. All I have done for the last few years is lose things I care about… family, friends, colleagues, my job, my health, and my future. Why should I want to continue, when I have no optimism. I have no hope. What’s the point of even trying, when I could just fall over, and be useless for weeks, or just die suddenly?

They say depressed people have a more realistic view of the world, and as someone who has been depressed for decades, I would agree with that. Existence isn’t a gift, it is a curse. Things generally only ever get worse. Entropy is real. And I’ve had enough. I’ve spent the last couple of years trying not to let my poor mental health, or now my epilepsy define me. I’ve failed. Spectacularly. 

I go through the motions. I wake up every day, I pretend everything is just fine, but I know it’s not. I have no purpose, I contribute nothing to the world. I’m an oxygen thief, consuming resources without giving anything back. I don’t see any way out of this, I don’t see it ever turning around. I’m not going to pretend otherwise. 

There is no happy ending for me, but ending me would make me happy. I want to go back to the void. I want to cease existing, and a seizure might finally deliver me. I often think about stopping my medications, hastening my own demise, and letting nature take it’s course. And then I realise even with the meds, my potential demise is only ever one bad seizure away. 

The northlondonhippy is an epileptic loser, who has no business still existing, yet he continues. He used to be a lot of things, but these days, he’s nothing much. He wrote a book years ago, that you probably haven’t read, along with a bunch of stuff on this website. And it’s really weird when he puts these odd bits at the end of things, written in the third person, when everyone knows it’s the hippy writing them. Weirdo loser hippy shitheel. 

The hippy tweets as @nthlondonhippy. Follow him for more depression, and disappointment. When his account goes silent, you’ll know the epilepsy finally got him. 

In the UK and Ireland, Samaritans can be contacted on freephone 116 123, or email [email protected] or [email protected]. In the US, the National Suicide Prevention Lifeline is at 988 or chat for support. You can also text HOME to 741741 to connect with a crisis text line counsellor. In Australia, the crisis support service Lifeline is 13 11 14. Other international helplines can be found at befrienders.org

The Sex, Drugs, and Rock & Roll Collection

All Written by Doug – the northlondonhippy

These are a few of my favourite things

The Sex, Drugs, and Rock & Roll Collection is a loosely connected series of the northlondonhippy’s most recent written pieces. It was all produced in a 5 week period.

Think of this new, inter-linked collection of material as the hippy’s second book. Effectively it is the sequel to his first book, Personal Use.

You can read all this brand new material for free right now.

December 2023 Update:

The hippy has added another piece to the collection, called “Now, Hear This”.

“Now, Hear This” was first published in November 2023, but the original idea was conceived back in March. It belongs here with the rest of the collection, and is now the introductory piece.

Now, Hear This

The hippy looks back at the roots of his lifetime love of modern music, through the songs he grew up with, and technology of the day that played it for him.  

His journey began when he was 2 years old, and it started with the Beatles, and a couple of years later, Motown and more. 

You’ll see, these memories turned out to be a lot more bittersweet than expected, as you read, and listen to “Now, Hear This”.

My Summer of Springsteen

During the Summer of 1982, when the hippy was still living on the Jersey Shore, he ran into Bruce Springsteen regularly. 

Bruce wasn’t just a local hero back then, he was already a major, international rock god. He’d released his first five classic albums, toured the world repeatedly, and only played the largest venues available. 

That summer, the hippy saw the Boss hanging out, and performing in small bars down the shore, nearly every weekend. Some nights, more than once. And Bruce saw the hippy, too.

These are his memories of “My Summer of Springsteen.

MTV Redux

Rock & Roll

In this four part series, the hippy takes you back to a fairly amazing period of his young adult life.

In the mid 1980s, the hippy was loosely associated with MTV Music Television as an intern, and then occasionally employed by them as a freelance production assistant. 

It’s also a tale of unrealised potential, and squandered opportunity, but it has taken the hippy a while to work all that out.


Part One – What? And Give Up Showbiz?
Part Two – Name Dropping
Part Three – Crappy New Year!
Part Four – The Death of the Dream

Time Aside – A Short Story

***Bonus Content***

Let’s pause the real life nostalgia briefly, and take a deep dive into some alternative personal history.

There’s no sex, drugs, or rock & roll in this one. “Time Aside” is a twisty tale of time travel, anti-natalism, and regret that’s rooted in the hippy’s real life back story.

It’s bonus content, so check it out! Or you could wait for the movie?

Tales from the Pre-Internet

Sex

Everyone thinks of dating apps, and websites when they think of meeting people online, but before the internet, in the 1980s, some folks were already playing around online. People were meeting up, and having naughty fun too. And the northlondonhippy was one of them.

The hippy refers to this period of time as the “Pre-Internet” in his recent series called MTV Redux. Thinking about that time was the inspiration for this series. 

In the three part series, “Consenting Online Adults”the hippy overshares about many of his experiences. 

And in Bonus Part Four, the hippy shares an additional tale from the Pre-Internet that deserves to stand on its own. This piece will leave you with one big question, but in Part Four – “I’ll Never Tell”.

Consenting Online Adults

Part One – The Prologue (1975-1983)

Part Two – Connecting (1980-1987)

Part Three – All Good Things (1985-1997)

Bonus – Part Four – I’ll Never Tell (1986)

Historic Hippy

Here’s a short selection from the hippy’s archive, if you want to know more…

I was a Background Artist on the BBC 10 O’Clock News – That’s who he was for the longest time

Piecing It All Together – This is why he is not that guy any more. TLDR: Epilepsy

Countdown to the End of the World – This is what the hippy would like to be doing next, if he had a choice.

Doing Some Good

The Ceasefire Initiative

While we’ve got your attention…

The Ceasefire Initiative – It’s just a small, simple idea to begin the process of finally putting an end to the pointless, useless “war on drugs”. We’re not seeking donations, just your support.

Follow us on Twitter: @ceasefire4good

#ceasefire4good #ceasefire4ever

(All words © Copyright 2023-2024 – Doug – the northlondonhippy. All rights reserved)

My Summer of Springsteen

Written by Doug – the northlondonhippy

During the Summer of 1982, while I was still living on the Jersey Shore, I ran into Bruce Springsteen regularly. 

Bruce wasn’t just a local hero back then, he was a major, international rock god. He had already released his first five classic albums, toured the world repeatedly, and he only played the largest venues everywhere he went. 

That summer, I saw the Boss hanging out and performing in small bars “down the shore” nearly every weekend. Some nights, more than once. And he saw me, too.

These are my memories of “My Summer of Springsteen”.

The Fast Lane

It was the summer of 1982. I was still living at home with my parents about a mile inland from the Atlantic Ocean, in northern Ocean County. I had just completed my first year at Monmouth College. And I had a job in an office in Red Bank that summer. 

The drinking age in NJ was 18, but they raised it to 19, when I was 17 years old. It meant I had to wait an extra year to be able to hit a bar legally, and 1982 was that year. 

They checked ID really closely back then, especially in the summer when the tourists descended upon the area. Year-round Jersey shore residents called all the summer tourists, “bennies”. I bet they still do. Local legend says bennies are known for wearing socks with their sandals, and they are all terrible drivers. 

I was still hanging around with friends I knew from high school, and most of them preferred shitty bars with a top 40s DJ, no cover charge, and cheap drinks. I was into live music. 

That summer, I started going to the Fast Lane, a live music venue on 4th Avenue in Asbury Park. It’s gone now, but it used to be one of the biggest, busiest bars in town. 

I saw Billy Idol at the Fast Lane, Blue Angel too – They were Cyndi Lauper’s old band. 

It didn’t surprise me at all when Cyndi broke big, she was an incredible performer even back then before she was well known. I remember her coming into the audience, and spinning around like a whirling dervish while singing. It was quite a performance. 

Bon Jovi were the house band at the Fast Lane that summer, and I saw them open for headliners many times. They were good; tight too, but it wasn’t my sort of music. 

Front: Cyndi Lauper, Members of Bon Jovi, and Billy Idol. Back: Fast Lane entrance

One night in June 1982, I was at the Fast Lane with an old friend of mine from high school, who I will call JB. He was into dancing, and a couple of us dubbed him “Disco JB”, because he would often take over the dance floor like John Travolta in “Saturday Night Fever”. The boy could move.

I don’t remember what band was playing that night, but what I do recall is that JB drove, which meant I could drink. And I did, like I meant it. 

At one point we were both at the bar, when right across from us, I saw someone ordering a drink, that I swore was Bruce Springsteen. It looked just like him, but JB disagreed. We argued about it, I got wound up. I finally went around the bar to settle the dispute. I was a bit drunk by now. 

I walked right up to the guy and said, “Excuse me, sorry to bother you, but you’re Bruce aren’t you? My friend over there doesn’t think you are.”

Bruce laughed, and said yes, it’s me. I thanked him, apologised to him for disturbing him, and went back to my friend to settle the argument. JB admitted he was wrong. 

A short while later, Bruce was around the same side of the bar where I was, and we made eye contact. I spoke to him again, and said “I’m really sorry again for bothering you. I’m a huge fan, I have all your records, and I saw you last year at the Meadowlands, and the Spectrum. You’re my favourite!”

You get the idea, I gushed like a teenage fan meeting his hero, because that’s exactly what I was. The doubt I had from JB must have muffled this response in my first interaction, but the more I spoke, the more excited I got. It was Bruce Fucking Springsteen! And I was talking to him! He was the coolest guy in the room!

At the back of the length of the Fast Lane, was a large set of carpeted risers, that ran behind the bar, and opposite the main stage. Bruce asked me to sit down with him on them. So I did. 

He made small talk with me. He asked me my name, my age, where I was from, and what I did. Doug, 19, Point Boro, college student, and office worker. Also, a massive fan, and pissing myself with excitement because I was sitting here right now with Bruce Springsteen. I didn’t say that last part out loud. I tried to stay cool. I expect I failed.

Bruce excused himself, and said he’d be right back. I didn’t think he would return, but he did. And he brought me a Heineken. Bruce Springsteen bought me a beer! And it was imported, too!

He offered me the beer, I took it, and thanked him. Then he sat back down, and I asked him a few silly fan questions. I asked him about what I think of as his main guitar. It’s the one he’s holding on the cover of Born to Run, a natural coloured Fender Telecaster. I asked him what year it was made. He wasn’t sure, 1950-something, he said. 

He joked about needing a drink, because he’d had an argument on a phone call with his girlfriend, who was in LA. He said something about the distance.

After a while, Bruce and I said our goodbyes. JB didn’t want to stay out late, and since he was driving I didn’t have a choice, so we hit the road. 

I’ve reflected on this interaction with the Boss over the years. I realised that Bruce understood the importance of this moment for me… Or for any fan he encountered. 

Bruce knew it mattered. He could have brushed me off. He could have kept his distance after my first blundering contact. Hell, he could have had security remove me. But he didn’t. He treated me so kindly. He was so generous with his time. And he bought me a beer!

I don’t know if Bruce hit the stage that night, but he might have done. I wish I could have stayed to find out. I did save the empty beer bottle. He didn’t autograph it, or anything like that, but still I kept it for years anyway. 

I couldn’t believe I met Bruce Springsteen. I know I shouldn’t have been surprised, he had a reputation for hanging out in Asbury. I guess I never thought I would be that lucky. 

I had no idea how lucky I would really go on to be later that summer.

Springsteen Fever

My family moved to the Jersey shore when I was one year old, and the first place we lived there was Asbury Park. I grew up along the coast, it’s proper Springsteen country. Bruce grew up in the same general area. 

Before breaking big, Bruce started out in the seaside bars of Asbury Park. He was getting a lot of local press, long before he started receiving national, and then international acclaim.

In 1975, Bruce was on the covers of both Time Magazine, and Newsweek, at the same time. His star was rising, and has continued to rise, as it still does to this day. He soon became one of the biggest rockstars in the world, and he’s still selling out stadia over 40 years later. 

In high school, I was a massive Bruce Springsteen fan. He was a local hero, and arguably the biggest music star to come out of New Jersey. Frank Sinatra may have taken issue with that statement. Apologies to the Chairman of the Board!

I had all of Bruce’s early albums. And in my senior year I had an after school job at a record store in Point Pleasant Beach, when his fifth record, the double album, The River was released in 1980. It was his first new album to be released since I had become a hardcore fan. I was 17 years old. 

On the day of the release, I bought two copies, one on vinyl, and a second on cassette. I did get an employee discount, but still spent most of my wages there anyway. 

I couldn’t wait for my work day to finish, so I could hop in my car, and put the cassette into my tape deck. The cassette copy was meant only for my car. Cruising around the streets of the Jersey shore with loud music playing was a common, and popular pastime back then. 

When I got home, I played the LP too, over and over. It was sublime. From the radio-friendly hit single, Hungry Heart, to the deeply emotional title track, The River, every tune was an instant classic. I loved it.

Someone I knew had scored me an autographed photo of Bruce. It was a promotional pic from around the time of the release of Darkness on the Edge of Town , his fourth album. I still have the photo somewhere. I should find it. 

“Darkness” is my favourite Bruce album. As much as Born to Run put Bruce on the map, Darkness on the Edge of Town cemented his position as an amazing song writer. The music, lyrics, and subject matter were all taken to another level. There was a new expansiveness to this material. I wouldn’t say it was Bruce’s peak, but he was really hitting his stride. 

That said, and to answer a question I’m often asked, my favourite Springsteen song is Thunder Road. There is no finer example of a Bruce track. It’s perfection. From the gentle story of a man’s love for a woman, to their romantic escape, it’s a prayer, and a gospel to fleeing on the open road. And the song itself is beautifully structured, starting with the soft opening piano notes and gentle harmonica solo, and those first soulful lyrics. Then it builds more intensity as it barrels full speed towards that final, mournful saxophone solo ending. The song will bring tears to your eyes. Just me?

Many of Bruce’s songs, including Born to Run, are more about leaving New Jersey, than thriving there. That made it really awkward when NJ considered making it the official state song. 

But if you want a song from Bruce that celebrates the Jersey shore, I can think of no better tune than a track from Bruce’s second album, The Wild, the Innocent, & the E Street Shuffle, called 4th of July, Asbury Park (Sandy). Just listening to it, and I can smell the sea air, and cotton candy along the boardwalk.

I think you’re getting the idea. I was a massive fan. So when I finally got to see Bruce live for the first time, it was an incredible thrill. 

The first time I saw Bruce, he was on The River Tour. I saw him in July 1981 at the Brendan Byrne Arena in the Meadowlands. I think they just call it the Meadowlands Arena now. 

I had decent seats on the floor, maybe 15th row, centre. The show lasted easily 4 hours. I’ve seen hundreds of bands, and dozens of major headline acts, and I’ve never seen anyone with Bruce’s enthusiasm, or talent. 

Bruce is next level good. He’s magnetic, dynamic, and energetic, with a riveting stage presence. He wasn’t just Born to Run, he was born to perform! It was the best concert I’d ever seen, and was only bettered by other future performances from Bruce. 

A Springsteen concert is like a religious revival, and he powerfully delivers the evangelical gospel of rock and roll according to Bruce. It’s transcendent, and life changing. And I’m a believer!

I saw him again a week later, at the Spectrum in Philadelphia. They tore it down more than a decade ago, but it used to be another indoor arena, like the Meadowlands. Only this time, I managed to get 4th row, centre floor seats from a ticket agency. Scalping tickets isn’t new, and it wasn’t cheap, I paid 180 bucks for the pair. These days, good seats for a Springsteen concert would be one hundred times that cost. I was really lucky.

That concert in Philly was even more enjoyable than my first one, because of my amazing proximity to the stage. The show was similar, but he changed up some of the set-list too. I was so close, I could see the sweat dripping off him during the encores. 

I didn’t think I would ever better that experience of being so close to my musical hero, while seeing him perform live. Little did I know that around a year later, I would. 

My Summer of Springsteen

After my first encounter with Bruce, I next saw him again at the Fast Lane. I didn’t even know he was there, until he appeared on stage with the headliners that night.

The band was the Stray Cats, a rockabilly trio that were hot in the early 80s. They were wicked good. Towards the end of their set, the lead singer, Brian Setzer said he had heard a rumour Bruce was in the audience, and he invited him up on stage.

I didn’t expect this, and there was a long pause as Bruce made his way through the crowd to join the band on stage. They did three numbers, all rock and roll classics. I only remember two of them, Long Tall Sally, and Be Bop A Lula.

I was a couple yards back from the stage, and there was Bruce, shredding a guitar, and singing his heart out with one of the hottest bands around. I was in heaven!

I saw Bruce a couple more times at the Fast Lane, with Beaver Brown mainly. They were an east coast band, that sound a lot like Bruce. Check out the film Eddie and the Cruisers, if you don’t believe me. The band did the soundtrack. 

The bar I saw Bruce in the most that summer was the The Stone Pony.

The Stone Pony

I never spoke to Bruce again, but I saw him pretty much every weekend after that performance with Stray Cats in the Fast Lane. 

And if he saw me, Bruce always acknowledged me. I doubt he remembered my name, but he knew my face. Whether it was a smile, or a nod, or even a little wave of his drink, if he saw me, he always let me know. 

It got to the point, where I worried Bruce might think I was stalking him. I mean, I was stalking him, but only to see him perform. After a while, I even tried to avoid being spotted by him. I know that sounds silly, especially when you discover something I finally realised: I wasn’t the only one looking to see Bruce every weekend.

I’m pretty sure Bruce was working on his sixth album, Nebraska that summer. The record is a collection of 4-track demos that Bruce had recorded at home in NJ, that he released instead of the full E-Street Band versions. 

Nebraska was a really special record because the production was so stripped down, and basic. Bruce released it in September 1982, after my summer of seeing him so much. It would make sense that he was putting the finishing touches on it around that time. He’d work on it during the week, then at the weekend, he would cut loose in the local bars.

I’d look at the listings for live events in the area every weekend, and I’d guess where Bruce might pop up. It wasn’t that hard. You just needed to keep an eye out for the best rock and roll music being performed on a Friday, Saturday, or Sunday night.

The band I saw him with the most that summer, was Cats (On A Smooth Surface), and Bruce would often join them at 2am, for their entire final set. They were the house band at the Pony. Once I worked out Bruce liked to perform with them, it made finding him a lot easier. 

They used to do all sorts of rock and roll standards together. Twist and Shout was nearly always played. The old Gary US Bonds song, “Quarter to Three” as well. 

Towards the end of the summer, and I’m guessing since it became a regular occurrence, Cats started doing a couple of Bruce’s own tracks with him. I am struggling to remember which ones. Something from Darkness? The Promised Land? Candy’s Room?

Gary US Bonds had a bit of a revival in the 1980s, thanks to Bruce producing a couple of records for him. To show his gratitude, Gary gave Bruce a car, named after the first record they worked on together: “Dedication”. 

The car was a ragtop, and had the word “Dedication” painted on the sides in huge letters. It was hard to miss. Bruce drove it a lot that summer, and you would often see it parked around town. I tried to find a photo of it online, but I came up dry. I know they exist, I’ve seen them before. 

I also used to sometimes hang out at the Inkwell Coffeehouse in Long Branch. It didn’t serve booze, so it could stay open all night, and it was a groovy spot to hit after the bars closed. It was a very cool venue, known for good food, and Dutch Coffees. I read it closed last year. I was in there one night during that summer, and seated at the table next to me, was Garry Talent, the bass player from the E-Street Band. 

It felt like every time I turned around, there was something, or someone Bruce related. Even when I wasn’t trying. 

Meeting Other Mega-Fans

I wasn’t the only one following Bruce around that summer. At the Pony, I’d always make sure to be up against the stage for the very last set of the night, so that when Bruce performed, I was just a couple of feet away from him.

I would see the same faces night after night, including a heavyset woman, who was often next to me at the front of the stage. One night, I remember her reaching out, and repeatedly touching Bruce’s boot with her index finger. She would then make eye contact with me in her delirious excitement, every time she did this. I would find out who she was, eventually. 

And I ran into a guy I knew casually from Monmouth College. We got chatting between sets, and we both discovered we were Springsteen fanatics. He said he had a bootleg video of some Springsteen concert, but he didn’t have a VCR. VCRs weren’t rare in the early 80s, but they weren’t super-common either.

I told him I had a VCR we could use, and I also had a copy of the “No Nukes” movie, which featured, at the time, a rare filmed performance from Bruce. Obviously, I’m biased, but Bruce’s set is the best thing in the film. There are many clips on YouTube including the trailer to the updated digital version. That’s what it was like for me, seeing him every weekend. 

I started hanging out less with my old high school friends, and I would often go to Asbury on my own. It meant less, or no drinking, but it also meant I could choose my own venues. But once I encountered that guy from college, I would often hang out with him, and the other hardcore Bruce fans he knew.

Obie

My new friends came to my parents place one Saturday afternoon to hang out, and watch the Springsteen videos. 

The video my friend had was a bootleg recording from an arena performance. Someone had sneakily recorded the video feed from the big screen, along with the mix from the stage audio. It was surprisingly good quality for a bootleg. 

They mentioned they knew Bruce’s personal assistant. I didn’t know he had one, but he did. Her name was Obie, and she was a local Jersey Shore legend, that I bet you’ve never heard of before. 

Obie was also Bruce’s biggest fan, and she is credited on many of his earliest albums like this: Homework: Obie. 

One night, after seeing Bruce at the Stone Pony, the Springsteen fans I knew invited me to join them at an all night diner after the show. It was the only time. 

When we arrived, the car I mentioned with “Dedication” painted on the side was parked outside, only it wasn’t Bruce driving it that night. It was Obie, his personal assistant. 

At the diner, the woman I saw touching Bruce’s shoes at the Pony was already sat down at the table. I was introduced to her. It was Obie. I got to sit next to her. 

(Little) Steven Van Zandt, Obie Dziedzic, and Bruce Springsteen

I’d be lying if I said I could remember much of the actual conversation. I know it was dominated by talk of Springsteen, and Obie’s infectious love of his music. She was unquestionably his biggest fan. I think she took an interest in me, only because I was new. 

I’d see Obie again in the bars that summer, and would say hi to her, but I can’t say I really knew her. I was sorry to see she passed away so young. RIP Obie. 

Big Man’s West

Big Man’s West was Clarence Clemons’ bar in Red Bank. It was a very cool venue, but it didn’t last very long. The local authority gave him a hard time throughout the period it was open. One of the restrictions they put on the bar, was it had to close at 1:30am. Most Jersey shore bars back then were open till 3am. 

I saw a few great shows there that summer. Little Steven and the Disciples of Soul were wicked good. And I saw Woodstock legend, Mr. Sheffield Steel himself, Joe Cocker perform there in front of a shockingly small crowd. 

Mr. Cocker was backed by a group of local musicians. Someone in the crowd told me it was mostly guys from Bon Jovi. I thought I recognised lead guitarist Richie Sambora. His guitar playing was amazing, but he spent most of the show, leaning way back against the piano with his eyes closed. I think he was wasted, but in a good way. It was a fantastic night. 

The act I saw the most at Big Man’s, was Clarence’s own band, Clarence Clemons and the Red Bank Rockers. It was a massive group, and it included a full horn section. 

Besides Clarence, the real draw was their lead singer, JT Bowen. His voice, and moves always reminded me of a skinnier version of James Brown. He was a performance dynamo. They put on quite a show.

I saw Bruce with them a few times, I think it was mostly on Sundays. There’s a reason I’m mentioning that. 

One of the bits Clarence’s band used to do was a 2-song medley that mixed two classic songs together: Jimi Hendrix’s “Fire”, with Springsteen’s “Fire”. The Pointer Sisters’ cover of “Fire” is probably the version you know, but Bruce wrote it. 

The Bruce song “Fire”, has a really classic baseline, that you would recognise, the same way Hendrix’s “Fire” has the memorable line “let me stand next to your fire”, and they combined the two in a way that was seamless. They used to do a ten minute version of it, with JT absolutely killing both tunes. Seeing Bruce join them, and singing it together with JT was life changing. It would give you chills. 

The other song I remember them doing is “Tenth Avenue Freeze Out”, from Born to Run. Little Steven had arranged the horns on that one, it’s a famous story. Hearing it live with a full horn section for the first time is something I’ll never forget. 

Whenever I went to Big Man’s West, I saw Clarence, whether his band was performing or not. He was even hanging around the night I saw Joe Cocker. He was hard to miss. He was physically imposing, I think he briefly toyed with playing NFL football, after playing ball in college. I cried a little when I read that he passed away in 2011. RIP Big Man. 

Remember, I mentioned Big Man’s had to close early, at 1:30am? The one bonus to that is Bruce would finish jamming with Clarence’s band around that time on a Sunday night, then he would jump in his car, and drive to the Stone Pony in Asbury Park. He would then join Cats for their last set at 2am.

And guess who would make the same drive? Yep, me. 

Summer’s End

Sunday nights became my favourite night of the week. I am pretty sure for three weekends in a row that August, I saw Bruce perform with Clarence Clemons’ band in Red Bank, followed by a second set with Cats at the Pony. Two sets in one night! Choose a superlative. Any you could think of would apply. It was superfuckingneatocool! I was in Springsteen heaven, it was a weekly Bruce-gasm. And all for a couple of bucks cover charge, and the cost of a beer. 

My old high school friends didn’t have much interest in the Asbury music scene. I ended up falling out with one of my best friends in the street outside the Stone Pony one weekend. 

My friend was driving, I was drinking. He wanted to go to some shitty bar near Shark River, called the Headliner for last orders. It wasn’t my scene; top 40s DJ music, and watered down drinks. It was a downmarket singles bar. 

We had a massive, screaming drunken row. I wanted to stay at the Pony, my ride didn’t. I stormed off in a huff. I was miles from my parents house. It was like 2am. There was no such thing as a mobile phone. I knew nothing about taxis. I was on my own.

Just had a look on Google Maps, the distance from the Pony to my parents’ old house in Point Pleasant is over 12 miles on foot. And it says that walk takes over 4 hours. At the time, I just knew it was far.

I probably managed the first five miles on drunken rage alone. At some point, mid-journey, I realised just how badly I fucked myself. It was somewhere between Belmar, and Bradley Beach that I stuck my thumb out, and tried hitchhiking. I wasn’t very successful. 

I managed another 5 miles or so, before a kind stranger picked me up. He drove me the last couple of miles, and dropped me off about 5 minutes walk from my final destination. 

It was nearly 7am before I finally made it home. I was exhausted, every muscle in my body was sore. I don’t think I have ever slept as long as I did that day. 

I only ever drove myself to Asbury after that, and I didn’t drink. Drinking is overrated anyway. I just wanted to see bands, and Bruce. 

The Last Show

I remember the last time I saw Bruce that summer. It was on a Sunday night at the Stone Pony. I’d like to be able to say it was Labour Day weekend, and maybe it was, but I can’t remember. 

I know the bar was packed out. Towards the end of the summer, word had spread that the Boss turned up at the Pony most Sunday nights. The place was heaving, and the crowd was wall to wall. 

I snaked my way up to the front of the stage for the last set of the night. Right next to me was the most stunning woman in the entire bar. I pretended not to notice. 

Bruce took the stage with Cats, and tore it up for an hour. It was a high energy set. 

That’s the thing about seeing Bruce up close that summer. He was the exact same performer I saw at the Meadowlands, and the Spectrum. He brought the same energy, talent, and showmanship to those small bars, that he brought to huge stages in front of thousands of people. It didn’t make a difference to him, he just loves doing what he does. And it showed, time after time.

I said earlier in this piece that Bruce was the coolest guy in the room, and whenever I saw him that was true. There was no one cooler. But when he was up on stage, blasting out rock and roll classics, or his own tunes, he wasn’t just the coolest guy in the room… He was also the happiest. And as much joy as he brought to the audience, he was always the most joyous in the house. Everyone should be lucky enough to love their job as much as Bruce Springsteen does. 

When the set finished, and the lights came up, the stunningly beautiful girl turned to me, and just blurted out, “That was amazing!”

She had long light brown hair, with blonde highlights, and long tanned legs. She was wearing a pair of frayed Levi cutoffs, sandals, a sheer, tight top, with visible tan lines. She looked like summer perfection. I don’t think there was a guy in the bar who hadn’t noticed her. She was so hot she sizzled. I can still picture her. 

I agreed with her, and said Bruce is great. She told me it was the first time she’d ever seen him, and she was only “down the shore” for the weekend. As I was talking to her, I could sense her attention was elsewhere. 

She was looking at something over my shoulder. I assumed she was checking out a better looking guy. There were definitely plenty of them. And I was right, she was looking at someone better looking, but I didn’t realise who it was at that point. 

I followed her gaze as she tracked someone moving through the crowd with her eyes. Then I felt a tap on my right shoulder, so I turned my head right, but no one was there. 

I then looked to my left, and there was Bruce. He had just passed behind me, and was still walking. He had his head turned around, looking right at me. He had tapped me on the shoulder. And then he smiled, and gave me a nod. 

Bruce knew exactly what he was doing. He saw me chatting to the best looking girl in the bar. He tried to give me a boost. Told you he was the coolest guy in the room!

The girl said, “Oh my god, do you know Bruce?”

“We’ve met”, is all I said. It was true. 

I wish I could tell you that I spent the night with this rock and roll goddess thanks to Bruce’s intervention, but I didn’t. She was laughably, unquestionably out of my league. She was only talking to me because she was so excited after seeing Bruce. It’s infectious, I knew the feeling. Her friends found her not long after that, and they all left.

Memories

I moved out of my parents’ place not long after that, and my visits to Asbury became more sporadic. I didn’t run into Bruce again. Big Man’s West closed. I started working full time. Life moved on, and so did I. A few years after this, I left the Jersey shore, and moved to the greater NYC area, with dreams of pursuing a career in the media, dancing in my head

I saw Bruce on the Born in the USA tour in ’85, at the Meadowlands again. Twice. He just kept getting better. It was his biggest album, and they were some of his best, and longest shows. 

In 1991, I moved to London. I saw Bruce again in 1992, at  Wembley Arena on the Human Touch/Lucky Town tour. It wasn’t a double album, it was two separate records. He didn’t have the E-Street Band with him on the tour. They didn’t perform on the records either. That was all new. 

I saw him again at the Brixton Academy in 1996, on the Ghost of Tom Joad tour. This time Bruce performed alone, and played only smaller venues like the Academy. It was a very stripped down, emotional show. Raw. 

The last time I saw Bruce live was at Emirates Stadium here in north London in 2008, on the Magic tour. He was back with the E-Street Band. Clarence was still alive, but Bruce’s original keyboardist, Danny Federici was ill, and only appeared on the first leg of the tour. He wasn’t with them when I saw the band, and he passed away around this time. RIP Mr. F. 

Iconic Image of Clarence & Bruce from Born to Run (1975)

It was great to see them all back together again. It was an amazing show, Mrs. Hippy was with me, and it was her first Springsteen concert. She was blown away too. 

I’m still a huge Springsteen fan. I bet you worked that out. I still love his music, and especially his classic albums, but I dig his newer stuff too. He’s continued to grow as an artist, and he has continued to be prolific in the 40 plus years since I was lucky enough to make his acquaintance. 

As a long-time live music fan, I’ve seen countless bands; small ones, big ones, local ones, national acts, and international too. And of all the performers I’ve seen, none have compared to Bruce Springsteen. The fact that he is a genuinely good guy, is just a bonus. 

Nothing in my life has ever even come close to matching the amazing time I had over 40 years ago. It was the best summer of my life. It was my summer of Springsteen. 

The End

If you enjoyed reading this piece, there’s plenty more where that came from! 

Next up in the “Sex, Drugs, and Rock & Roll Collection” is MTV Redux. It’s about my time working for MTV Music Television in the mid 1980s, but it’s also about a whole lot more. 

(All words © Copyright 2023 – Doug – the northlondonhippy. All rights reserved)

Tales from the Pre-Internet – A Series

Written by Doug – the northlondonhippy

Everyone thinks of dating apps, and websites when they think of meeting people online, but before the internet, in the 1980s, some folks were already playing around online. People were meeting up, and having naughty fun too. And I was one of them.

I refer to this period of time as the “Pre-Internet” in my other recent series, MTV Redux. Thinking about those days was the inspiration for this series. 

In the three part piece, “Consenting Online Adults”, I’m going to overshare about many of my experiences from back in the day. 

And in Bonus Part Four, I have an additional tale from the Pre-Internet that deserves to stand on its own. You may or may not believe it. This piece will leave you with one question, but “I’ll Never Tell”.

Trigger warning – I talk very frankly about sex, and human sexuality. I have a lot of sex too. If that sort of things offends you, please click here.

Are we still cool? Please proceed: 

Consenting Online Adults

Part One – The Prologue (1975-1983)

Part Two – Connecting (1980-1987)

Part Three – All Good Things (1985-1997)

Bonus Sections:

Part Four – I’ll Never Tell (1986)

(All words © Copyright 2023 – Doug – the northlondonhippy. All rights reserved)

Consenting Online Adults – Part One

The Prologue (1975-1983)

Written by Doug – the northlondonhippy

Setting the Scene – My Real Sexual Education

I think I had my first formal sexual education lessons in the 6th grade, when I was 12 years old, and our PhysEd/Health teacher told us how babies were made. When a man loves a woman, blah, blah, blah. Ovum, sperm, zygote, blah, blah, blah. It didn’t teach me much.

Around the same time, my mother gave me a children’s book, called “How Babies Are Made”. It said the same kind of thing, “when a man loves a woman…” blah, blah, blah. It had cartoons, including a man, and woman in bed together under the covers. I learned even less from that book, than in class.

How Babies Are Made – This is the actual book cover!

My mother was uptight about sex. She was uptight about everything. She used to say that 25 should be the age for drinking, smoking, and sex. She didn’t exactly install a healthy attitude around any of it. There was a lot of shame.

My dad was only marginally better. When I was around 12 or so, he took me for my first real hair cut at a barbershop. Up till then, he was doing it with a pair of clippers at home. Now, he said I was old enough to have a proper cut. He took me along with him, when he was getting his hair cut. 

There were a few chairs, but only one barber, so my dad went first, and I sat in the waiting area. There were many magazines on the table, including “gentleman’s magazines”, and it was there I was allowed to read my first Playboy magazine. 

And by read, obviously I really mean that I looked at the photos. You may not know this, but the photos in Playboy Magazine were mostly of naked ladies. 

In the middle of the magazine, there was a foldout page, called the centrefold, which was a full length photograph of the Playmate of the Month. I glanced over at my dad, who saw me pull out the centrefold, and he just gave me a single nod of his head. 

Let’s look at this with our modern day eyes. At age 12, I was introduced to a world where women are objectified for male pleasure. It wasn’t the first time I’d seen a Playboy, but it was the first time I was allowed, and encouraged to look. I was being indoctrinated. I had no idea of it at the time, it was just normal for the 70s. 

Around the same time, women’s rights, and the Equal Rights Amendment were having a moment. Women’s liberation was everywhere, so was Gloria Steinem, They all had their work cut out for them. Still do. 

Girlie magazines were a feature of my youth, and not just at the barbershop. When I was in high school, one of my classmates worked out when the local convenience stores disposed of the previous month’s unsold mags, and he used to dumpster dive to get them.  He did this monthly, for years, and would hand them out to all his friends. And not just Playboy, he would also get Penthouse, and Hustler magazines too. It is from these magazines that I got my real, yet less than ideal, sexual education.

It’s true

This system went on for years, my friend supplied me, and most of my high school with dirty mags every month. The magazines had the covers ripped off, but the magazines themselves were still intact. 

I’m far more verbal, than visual, and as much as I liked looking at the photos, what I found more interesting were the stories. 

Playboy was a bit dull, and the photos were airbrushed to within an inch of their lives. This was well before Photoshop existed. For me, the best things in Playboy were the in-depth interviews. I know that’s a cliche, but it was actually true.

Hustler magazine was really downmarket, I could see that even at age 15. The articles were puerile, and poorly written, and seemed to be aimed at the low IQ side of the market. And the photos! They wouldn’t have been out of place in a medical journal. I do remember the founder, Larry Flynt, fought many freedom of speech battles, and he mostly won them. 

Penthouse was somewhere in between the other two. The photos were a bit more explicit than Playboy, but not quite as gynaecological as Hustler, and the writing could be hit, and miss. 

However, one section of Penthouse really caught my imagination. 

Specifically, I really got into reading Penthouse Forum letters. They were allegedly real life tales from the magazine’s readers, of their own interesting, or noteworthy sexual exploits. 

The letters followed a very simple format. The stories usually started with a line like this: “I never thought something like this would ever happen to me, but…”, and almost always ended with “needless to say…”.

Here’s an made-up example of what I mean:

“I never thought I something like this would ever happen to me, but I was in the laundry room of my apartment building, when this beautiful woman came in to wash her clothing too. She loaded up the washing machine, and then stripped down to her bra, and panties, and put the clothes she was wearing into the washing machine with the rest of her stuff, and started the cycle. And then she turned to me, and said “see anything you like?” I was game, so then we had amazing, god-tier sex right there, on the floor. It was fantastic, and needless to say, I will be looking forward to laundry nights every week from now on!”

The stories were usually far more graphic than my example, and I assumed most of them were made up. Sometimes, I really wanted them to be true, as they gave me hope that one day, I would have my own Penthouse Forum worthy experiences.  And “needless to say”, I looked forward to that day, very much.

There were stories about threesomes, stories about wife-swapping, and loads of stories about amazing sex with random strangers. If you can imagine it happening sexually, I probably read a Penthouse letter about it. 

Apparently, grownups were having sex all the time with each other, and behind each other’s backs too. Pretty much, whenever grownups were alone, they were banging. Sex was happening everywhere, and I couldn’t wait to be old enough to play along. 

Very few people were actually having sex in my high school, and I’m not just saying that just because I wasn’t. Sure, it happened, I can think of two kids born out of wedlock to students in my school. 

Do people still say “out of wedlock” or am I showing my age here?

Most of my friends weren’t having sex either, though it did somewhat improve in our senior year. 

There wasn’t much random shagging, or even drunken shagging, I would say most of the teen sex I was aware of was more traditional, and within monogamous relationships. 

A friend of my dad’s gave me some advice about sex when I was a teenager, maybe 15 or 16. The guy would have been in his 40s, and he was married, with kids. And he was a doctor, technically, because chiropractors count too. 

My dad’s friend told me that he was very worldly, because he served in the Navy. He had travelled all over the high seas, so I should listen to him. 

This was his advice, based on the antics of a sailor he allegedly served with for a while. He said this guy had a simple view, “If you randomly approached 100 women, and asked them if they wanted to fuck, you were likely to get slapped 99 times. But on that 100th time, boy oh boy, you were in for the time of your life!” 

Yes, an adult really told me this. And meant it. Getting laid is simply a numbers game. Even if there is a touch of truth to it, it is a horrible thing to tell a teenager. I just didn’t know any of that at the time. It is problematic advice to be giving a young man, but I was given it just the same. 

And here’s the thing, that sort of attitude was prevalent way back then, and quite frankly, I expect it still exists today. Women existed simply to please men, and it was man’s obligation to find as much pleasure as possible. While the opposite was true for women, and every women’s duty was to protect, and maintain their virtue. None of that was healthy, or made any sense. 

I juggled that sort of advice, while also admiring strong women I saw in the media, and believing in gender equality. Put it this way, my biggest celebrity crush of the 70s, and 80s, was Jane Fonda. And to be honest, she’s 85 years old now, and I still would. And I can promise you, whether then or now, she wouldn’t, with me anyway. 

One of the articles I read in Penthouse was about the Hite Report, written by Shere Hite. It was a groundbreaking, in-depth study of female sexuality, that built on the work of Alfred Kinsey, and Masters and Johnson. People doubted the female orgasm even existed, and Ms. Hite wished to set the record straight. 

Imagine thinking female orgasms were a myth? Many people did back then, and shockingly, some people still do. I remember learning the term ‘pre-orgasmic woman”, and wanting to go on a mission to help them all. Not really, but it sure sounded like a fun way to spend my summer break.

Even before I was sexually active, I liked sex, and had a healthy, and positive interest in it. What I lacked was the confidence, self esteem, and social skills required to find a willing partner.

I’ll end this section with one of my weirder, early near-sexual experiences. At the time, I didn’t think it could possibly be real, but a week later, I learned I should have trusted my instincts. 

It’s a bit like a poorly written teen comedy film from the early-80s. I might have been played by Judge Reinhold. He would have nailed my awkwardness perfectly. 

I was at a party towards the end of my senior year of high school, being held at a friend’s house. His parents were divorced, and he lived with his mother. It was a nice place, with a built-in pool, that I expect his dad was still paying for. 

There was a lot of drinking going on, and everyone was reasonably drunk, but my friend stayed relatively sober, because it was his party. Plus at the end of the night, he needed to drive his girlfriend home. 

I stayed late to help clear up, as my friend drove his girlfriend home. My friend’s mother, and I were left alone. I was 18 years old. 

It was a pool party, so my friend’s mother was in a one-piece bathing suit, and I was just wearing a pair of trunks. Once we were finished clearing up the empties, we sat down together, and had some more drinks. I knew my friend would be gone for a while, because he wanted to have car sex with his girlfriend, before dropping her off. 

My friend’s mother was extremely attractive, something I obviously had noticed before. She was probably 38, or 39 at the time, and more than a little tipsy. 

I thought I was imagining things, as she seemed to be openly flirting with me. I genuinely couldn’t believe that it was possible. 

I was a healthy, normal teenage boy, and I had a healthy, normal reaction to her flirtatious behaviour, especially when she kept brushing my leg with her fingers. 

I popped a boner. I pitched a tent. I had the mother of all erections. 

There is no way in the world that she couldn’t have noticed my arousal. And I was starting to have very impure thoughts about my friend’s mother that I knew were wrong, even though they felt oh, so right. 

I heard my friend’s car pull into the driveway, and the front door opened, and that was enough of a boner killer to bring me back to earth. Nothing happened with his mother, and I tried to convince myself that it was all in my imagination. I’d just had too much to drink, and had read too many Penthouse letters. Stupid me!

Around a week later, I was back at my friend’s place one evening after a night out. We were going to have a swim, or something, before I went home, only we heard laughter in the back yard. 

We walked around the side of house to investigate, and found my friend’s mother on top of a guy in the swimming pool, kissing him deeply. Awkward. 

We were both even more shocked when we worked out who he was. He was a guy who graduated high school the previous year. That would have made him 19 years old at the time, only a year older than me. He mowed my friend’s mother’s lawn for her, that’s how she knew him. And I could clearly see, she was getting to know him a whole lot better. 

I wasn’t imagining things the week before. She really was getting sexual around me. If I was a bit more clever, that could have been me with her in the swimming pool. 

That said, my friend was fuming that his mother was fooling around with this guy. He vandalised the guy’s pick-up truck. He keyed it. That’s how pissed off he was about his mother’s swimming pool romp. 

On balance, his friendship was more valuable to me than the handjob from his mom, that might have been. My regret isn’t that I missed the opportunity, it’s that I missed recognising it. I promised myself, I wouldn’t let that happen again. 

Infidelity

When I was 18-19 years old, I worked in a small office. Most of my colleagues were only a little bit older, but all of them were married, with children. And all of them were prolific cheaters. 

At first, I thought of them as role models, but in time I realised they were just jerks. Or, to use a more appropriate slur from back then in Jersey, they were total fucking douche-bags. 

They cheated on their wives with other colleagues. They cheated on their wives with women they picked up in bars. They cheated on their wives, whenever, and wherever they could. And they didn’t hide the fact that they were married, they all wore wedding rings. And some of the women they slept with from the office, had even met their wives at company parties.

This was a total mind fuck for me. Infidelity was something I really only knew about from the media. It’s a popular trope on soap operas, or in dramas, but I never expected to see it happening in front of me so blatantly. It made me question everything I thought I knew about marriage, and relationships. 

These were working class guys, who went to vocational school. Their wives were stay-at-home moms, and they kept blasting out more kids. They were all 25, or under. They used to drink, and take drugs all the time too.

These were the people who first gave me cocaine. They used to start drinking before work, and pound beers all day. Lunch was in a bar, and mostly liquid too. And they smoked loads of weed. They taught me how to be a hardcore party boy, and on that score, I was an eager student. 

In my head, I nicknamed the three of them “the Kowalskis”, as in Stanley, from the Tennessee Williams play “A Streetcar Named Desire”. I was pretentious, even back then, but I was also right. 

The company allowed me some flexibility in my hours, because they knew I was studying at Monmouth College at the time, but also because it suited them too. 

My supervisor came up with a great idea. She suggested I work later hours, so they could lengthen the the amount of the time the pricey equipment was used, so it was more productive throughout the day. It made good business sense for them, and made working around my classes even easier. 

So most days, I would start mid-afternoon, and work until late evening. I was usually done by between 11pm, and midnight. The company had a punch clock, and timecards, so my hours were tracked, and I was paid OT, if I did any. 

The thing about the late shift is I was usually the only person around the office after hours, except for the cleaners. And I was the only one around to answer the phone. 

I expect you can imagine who would often phone late in the evening. It was always my colleagues’ wives, looking for their husbands. I could hear the worry, and upset tones in their voices.

I was forced to cover, and lie for my colleagues. It was expected of me, like some sort of man, or “bro code”. 

It didn’t matter if I knew which local no-tell-motel they were using for their adventures, I certainly couldn’t tell their wives. And to be fair, I didn’t know what exactly which room they were in, so I could plausibly deny knowing their precise whereabouts. I wasn’t really comfortable with doing it, but I did it anyway. Did I even have a choice?

Remember, from reading Penthouse, I knew about things like open marriages, and partner swapping. In other words, there were more ethical ways of broadening your sexual horizons, than cheating on your wife. 

One day, when they were drunkenly bragging about their conquests in the bar, I said  a few things about divorce, and open marriages, and the hypocrisy of sleeping around. And it triggered all three of them.

They all said they would never, ever leave their wives, no matter what. They were adamant about it, and claimed they loved them.

Then, I suggested why not try swinging, if they wanted to sleep around. Why not have an open marriage, or do partner swapping. That was a step too far for all of them. 

The first one said, “No way would I let my wife be with another guy.”

And the second spluttered, “She is for me only, I don’t share!”

And the leader of the group said definitively, “If my wife ever fucked another guy, I’d kill her”. Well, that was settled. 

What’s good for the goose, ain’t good for the gander, eh?

I learned a few life lessons hanging around with these guys. The first was: Don’t get married young. It wasn’t something on my radar anyway, but spending time with them, hammered the point home. 

The second lesson wasn’t as significant, but it was still useful information. Most people, if given the chance, and think they can get away with it, will cheat. I would learn that it wasn’t always as black, and white as that, but it is still one of my takeaways at the time. 

Mainly I learned to disrespect marriage. It was a meaningless institution. It didn’t imply fidelity, or loyalty. Real commitment is better than marriage. Some religious mumbo-jumbo, and a piece of paper won’t magically change that.

And if someone doesn’t respect their own marriage, why should anyone else? Why should I?

In Part Two – Connecting, I finally get online, and the real fun begins!

(All words © Copyright 2023 – Doug – the northlondonhippy. All rights reserved)

Consenting Online Adults – Part Two

Connecting (1980-1987)

Written by Doug – the northlondonhippy

Going Online

Home computers were relatively rare in the early 1980s. I got my first Radio Shack (Tandy) TRS-80 in November 1980.

It couldn’t do much, you had to write programs in Basic, line by line from hobby magazines. And there was no easy way to save the programmes, except unreliable cassette tapes. I was still in high school. 

A couple of years later, I had my first apartment, and bought my second system, an Apple //c. That model was a cheaper, but less open, and expandable version of the classic Apple //e. It had a monochrome screen, with green text only, like the computers in the film, The Matrix. It could do a lot more than my first system, like word processing. I had a printer too, and used my new computer for writing college assignments. 

I also bought a modem. It was my first, a 1200 baud dial-up, which is super slow and worked with the Apple //c. It could take a minute for a page of text to load. Sorry, this is all a bit geeky.

There wasn’t much to connect to back then, mostly small bulletin board systems (BBS) that were locally based, and run. If you didn’t stay on local systems, the call charges could quickly add up. 

The other option was a national paid for service. CompuServe was the biggest back then. I did have a month’s free trial, but I couldn’t afford the charges after that. 

It was totally text based, no pictures, no video, and no audio, but you could get news wires, email, and quizzes. Basically it was just text based information, or entertainment. And it was a “walled garden”, meaning you could only connect, communicate with, or see things on the CompuServe system, and that included the email. If someone else subscribed to a different online service, they were completely cut off from other systems. There was no internet, or even interoperability, back in the early days. 

The big, new thing on CompuServe, or CIS as it was known, was something called the CB Simulator. If you saw it today, you would recognise it as an early type of chat room system. It was organised into channels, which worked like rooms. One channel was dedicated to “adult fun”. 

The other big thing to come out of CIS, and the CB Simulator, was “CompuSex” or “hot chatting”. There were articles in newspapers, and magazines about this new phenomenon, where random strangers were helping each other online… get off. Distance didn’t matter, you could have computer sex with anyone, anywhere. It was the future!

On that first night, I hot chatted with someone who claimed to be a girl around my age, from Hawaii. I have no idea if any of that was true, but we spent a couple of hours, typing one handed about our most explicit sexual desires, and what we would be doing to each other, if we were together. 

I wasn’t terribly experienced at this point, but I wasn’t a virgin either. What made me good at hot chatting, and what gave me such a vivid imagination, were all the Penthouse Forum letters that I had read over the years. 

I was oddly good at it. It was probably my earliest ongoing, creative writing. Take that Mrs. Smith’s 6th grade English class!

That was nearly all I did for that one month trial, I chatted to far away girls, in far away places, about our deepest desires. As a horny young guy, it was fun, but it wasn’t nearly enough. It never occurred to me to look for local people on CIS, that I could meet in real life in that first month. 

When the free trial ended, I turned to the bulletin boards. Most of the early systems were centred around hobbies, like computers, or cycling. One local BBS that I found was an adults-only hook-up site for swingers. Sex can be a hobby too.

The site was small, and only one person at a time could connect to it, so often the phone number was busy when you tried to access it. My persistence paid off, and I managed to create a profile, and have a look around.

Unsurprisingly, it was mainly single men, a very small number of couples, and no single women. Most of the men were older, like 40s or 50s older. I was 20 years old at this point, It would have been 1983.

I wasn’t registered on the system that long, when I received my first private message. It was from a couple. The writer actually said she was the female half of the couple, and she said they were looking for someone close to their ages for a threesome. 

I’d never considered a threesome with a couple. Whenever I had that particular fantasy, it was always me, and two women. I tried to keep an open mind, so I replied, and we exchanged a couple of messages. I think she could sense my reticence. She asked for my phone number. I gave it to her. 

A couple of nights later, my phone rang, and it was the female half of the couple, ringing from a pay phone. She said she had an argument with her husband, and she needed to get out for a while. Could she visit me, just to talk?

I arranged to meet her somewhere nearby, because my apartment was hard to find. She hopped in my car, and we drove back to my place. 

She was cute. She had dark brown hair, and was just wearing jeans, and a tee shirt. She was maybe a year or two older than me. 

Not long into the short journey, she told me definitively, that she wasn’t going to have sex with me that night. I can’t say I was planning on doing anything with her. I don’t know what I expected. I was going with the flow. 

We got back to my place, and I sparked up a joint, which we passed back, and forth as we chatted. She talked a lot about her marriage, and how unhappy she was, but she said they were determined to make it work, because of their baby. 

After a while, she moved closer to me, and kissed me. She said, just because we’re not going to have sex, doesn’t mean we can’t have some fun. I was in no position to disagree. 

We started making out, and it got intense. She started touching me in my special place. She offered me a BJ. She didn’t have to ask me twice. She kept her clothing on. 

After we were done, she said she had to return home, I drove her back to her car, and that was it. I didn’t hear from her again, but her husband phoned me a couple of nights later. 

He was friendly. He asked me if I enjoyed meeting his wife, and if I had a good time. He asked if I was up for a threesome. He also asked if he could blow me too, and he offered to visit me on his own that night. 

I declined. I told him I didn’t swing that way. He pushed it, he said I owed him since he let me fool around with his wife. He told me had sent her to see me the previous night, and it was all his idea. 

I was starting to put the pieces together. She was the bait, and he was trying to reel me in. Or did she pre-screen my peen? Ewww. Whatever. I knew I was in way over my head. 

I said thanks, made my excuses, and got off the phone. I didn’t hear from them again. 

If you think I learned my lesson about the swingers BBS system, you’d be wrong. Another couple’s account contacted me, but this time it was different. They weren’t looking for a threesome, the wife was looking for a lover on her own. I was one of the few men on the site that was close to her age. That’s why she contacted me. 

I remember her name, I remember her. I liked her. She told me her husband had gone off sex completely since she had her son, and she was very frustrated. 

They talked about wife swapping, but her husband wasn’t into the idea, he wanted a threesome with another guy. And she wasn’t interested in that. So they were at an impasse. 

They had signed up to the BBS, but they never did anything, so my new friend took it upon herself to use the account, to see if she could find some fun on her own. Most of the single guys on there were a lot older, I was closer to her age. She was only a couple of years older than me. 

We met, and we liked each other. We had a really good time together, sexually. It was actually the best time I’d ever had with anyone, up to that point. We met a second time, and it was even better. 

I knew she couldn’t be my girlfriend, what with having a husband, and a kid, and all, but I thought it might become a regular thing. I was living in fantasy land. And then she asked me a question, that reintroduced some reality. 

She asked if she could bring her young son with her on her next visit, because she couldn’t find anyone to watch him. She said he would be fine on his own, in his baby buggy, or whatever it is you transport babies around in, while we had our fun in the other room.

And that’s when the guilt hit me. I didn’t care how young, or well behaved her son was, I didn’t want to be the cause of him needing therapy one day. I didn’t want to give him some memory he’d have to bury away. I didn’t want to be in this situation, so I got out of it during that phone call. I ended it right there. 

To be honest, I wish I met her under different circumstances. I really liked her. She got married too young, so did the first woman I met. None of them were emotionally, or intellectually, prepared to be in a normal, adult relationship. And for that matter, it was the same for those creepy cheating guys I worked with around the same time.

I didn’t seem to know anyone around my age who was married, and happy about it. Or faithful. All of this left an impression, and a few scars. 

I Never Thought It Would Happen to Me

I was working in a different office in 1984, and a new work buddy of mine came to stay with me for a long weekend of debauchery at the Jersey Shore. I think it might have been Memorial Day. 

The plan was to hit the bars along the shore, and chase girls. The bars were heaving, but we were having terrible luck with the ladies. 

At one point, we were in a dodgy bar in Long Branch, and it was getting late. I was making eye contact with a really pretty girl on the other side of the bar, and was getting ready to make my approach, when her biker boyfriend came up behind her. When she stood up, I saw that she was around 8 or 9 months pregnant. He had on a Pagan jacket, which means if he turned up a minute or two later, I might have ended up stomped by the whole gang. It was that kind of night. 

We struck out everywhere, but I was in a never-say-die mood, so we kept going. We bounced between Asbury, and Long Branch, we drove along the ocean. 

I spotted a hitchhiker. She had long blonde hair, and a cocktail in her hand. I fucking love New Jersey!

I pulled over, and asked her where she was going? She said, “Wherever you are, baby”, and she climbed into the back seat. We went back to my place.

She was all over me as soon as we got to my mine, and we went into the bedroom. My friend watched TV on the sofa. 

I never thought it would happen to me, but… This was my Penthouse Forum letter moment. Random hot sex, with a random hot chick.  Completely consensual, no hypocrisy, no infidelity, and it was completely meaningless. It felt like a win. 

When we were finished, we went back to the living room, and she asked my friend if he wanted a go. He declined. I didn’t say it was classy. Then I drove her home, it wasn’t too far. We didn’t even know each other’s names.

Hobroken

I moved to Hoboken in north Jersey in the summer of 1985, as I was attending New York University, after commuting from the shore for a semester. It is a mile-square city, just across the Hudson River from Manhattan, between the Lincoln, and Holland Tunnels. It was a great place to live. 

When I moved I also upgraded my computer again, to my third system. It was an Atari 1040ST, and it had a colour screen. Yes, the same Atari that makes video game consoles. They made decent desktops back in the day, too. And I had a 2400 baud modem for it. Still slow, but only half as slow as my previous 1200 baud model. 

I think they dropped their prices, because around this time, I properly subscribed to CompuServe (CIS), which was still the biggest online system. Later, I would sign up for a cheaper, competing system, called PeopleLink.

Back then, the open internet wasn’t easily available, all you could really use were private, paid-for closed systems, like CompuServe. There were others, but CIS was the big daddy.

I had two experiences early-on via CIS, that were wild, and I’m going to tell you about both of them. I was taken advantage of by a couple of older women. And I liked it. 

I got chatting to a woman in her late 30s from Brooklyn late one night, and things got intense quite quickly. 

She told me she was a big girl. Like really big, but she was also voraciously horny. She was into threesomes, she was into random hook ups too. And she hadn’t been with anyone in a while. She offered to jump in her car, drive across Manhattan, and through the Holland Tunnel, all the way to my front door. How could I refuse?

The agreement was this: I would be wearing nothing but a bathrobe when she arrived. As soon as she walked through my door, I was meant to not say a word, and just lead her into my bedroom, and then ravage her. I could handle that. 

She arrived, and I buzzed her in. She didn’t exaggerate, she was big, but she was also really sexy. She had thick, very long curly, dark hair, and glasses. Think sexy, and confident, like Lizzo, only white. 

I brought her into the bedroom, and gave her a passionate kiss. She said, “Oh, you’re good.” She was about to find out. 

Oral sex shouldn’t be a controversial subject, but like most things sexual, people are weird about it. I’m not. I dig oral sex, both ways. No shame, there’s nothing more enjoyable than taking a trip on the downtown train, or having someone return the favour. 

I gave my big, new friend more orgasms than she could count. 

She took good care of me too. Over and over. We went at it for hours, before she left. 

My experience with the big girl was wild. There were maybe two hours between our initial online contact, and our real world contact. It felt like the future!

Hey, I’m going to stop briefly to mention condoms. I haven’t brought them up until now, but I’ve always used them. 

AIDS was a big thing in the 80s, but before AIDS, there was another social disease that stayed with you for life that I was also trying to avoid. No, not herpes. Fatherhood. Just because I don’t spell it out, doesn’t mean I didn’t use condoms. I did. 

That’s Bananas!

Do you remember the film, Logan’s Run? It’s a really cool, classic sci-fi film, that’s more than a bit ageist. Aside from the dystopian story, there are two things that stood out to me when I first saw it in the cinema as a kid in 1976.

The first is a silly one, but I’m going to share it anyway. There’s a scene in the film when actress Jenny Agutter changes her clothing, and you catch a glimpse of her side boob. It was the first nudity I’d ever seen on-screen. I can still remember it. I’m sure I’m not the only former teenage boy with this very vivid memory.

As a further aside, at one point I lived in the same neighbourhood of London as Ms. Agutter. This is more than 25 years ago, but I passed her on the street, more than once. I never spoke to her. It would have been weird if I did. 

The other element I recalled from the film, is a throwaway moment, and plot device. At one point the main character, played by the actor, Michael York, is looking for a sexual partner, and browsing the availability of people. 

The “browsing” was done via some device that facilitated random people, materialising inside his flat, via some sort of Star Trek type transporter device. 

The main character, “Logan”, checked out people of both genders as they popped into his flat. He would then push the “next” button, and someone new would physically appear. He did this until he found someone he liked. It was like swiping left, or right, only on real life people. And he “swiped right” Jenny Agutter. I think that’s how they meet in the film. I haven’t seen it in a long time. 

The device in the film reminded me of a much higher tech version of finding people on CIS, and BBS’s. In the future, they would just materialise in your bedroom, ready to rock and roll. 

The second woman I met was even older than the first. She said she was divorced, and 42 years old. That’s a 20-year difference, for you math fans out there. 

After we chatted on CIS, she came over the next evening, with a plan to spend the night, so she could drink. She was petite, and had a short, bob-style hair cut, light brown coloured. 

She’d eaten before she arrived, so we got down to the drinking, and smoking. She was a chain smoker, and I wasn’t a slouch in that department back then either, and we had a couple of joints too. 

She was sexually aggressive, and not shy about it. She wrapped herself around me, and started kissing me hard. She kept telling me, “more tongue, more tongue!” That made me feel a bit inexperienced. Compared to her, I definitely was a beginner. But what I lacked in experience, I more than made up for with enthusiasm. 

She warned me her period might be about to start, but said it wasn’t anything to worry about. What did I know about periods? Very little. 

We adjourned to the bedroom. We made angry monkey love all night, in every way you can imagine. And maybe a few ways you can’t. 

The next morning, we said our goodbyes, and I went to change the sheets. Her period had started all right, and it finished too. All of it finished overnight, after our marathon romp. My bed looked like a murder scene. Nobody warned me about this. I told you I didn’t know much about periods. 

PeopleLink

The other system I was using was called PeopleLink. It was strictly a platform for chatting, and it had more of air of respectability about it than the free-for-all that was CIS’s CB Simulator. The online community there was more respectful, and behaved more in line with real life norms.

I hadn’t lived in Hoboken that long, and didn’t really know anyone in the area, beyond the other students on my course. And most of them were scattered all over the tri-state area. So I went to a PeopleLink meet-up event in Manhattan. 

Some of the people I met at the event, I had been chatting to online, respectfully, for a while. That doesn’t mean there wasn’t flirting, there was, but it wasn’t as explicit, or in your face as it was on CIS. 

There were other people I met that night, that I hadn’t chatted to before, but would go onto chat with later on. One guy I met at that event, would go on to change my life.

In the end, I met four women that night, that I would see again. 

The first one had nothing to do with PeopleLink, but her sister was a user, and one of the organisers of the event. She was really pretty, and probably about 10 years older than me. That was more of an issue for her, I was cool with it. 

I was kinda cute back then, but I wouldn’t say I was particularly good looking. I had very long curly brown hair, and a short trimmed beard. I dressed in jeans, tees, and I would have been wearing a tweed blazer at an event like that. Plus a pair of cool boots. 

I don’t remember this woman’s name, but I remember liking her, a lot. We had a little intoxicated snog towards the very end of the PeopleLink event, and I got her number. 

We went out, twice. The first time was dinner, and drinks, and some more kissing. Our second date was a live taping of a network sitcom, at a big studio in Manhattan. The TV show was Kate and Allie, and the tickets were via someone I knew at NYU. 

After the recording, we went for a drink, and she dumped me. She couldn’t get over the age-difference thing. So it goes. 

I stayed in touch with the three other women I met that night. My online chats with one of them progressed to being somewhat hot, and heavy, and we arranged for her to come over, and spend the night with me. 

She was in her early 30s I think, and didn’t mind my age at all. She was looking for something serious, and while I can’t say that was my priority, I was open to the possibility if it happened. 

She confessed to me she was a virgin, but that didn’t mean we couldn’t do “stuff”. She was waiting for “the right one”, before going all the way. Fair enough. Whatever, I’m cool. 

We were not compatible. Sexually. I’m just going to leave it at that. The night was weird, and she wasn’t for me. 

On to number three. This one should have been a Penthouse Forum letter. The set up will certainly put you in mind of one. Or a porn film. Then it all goes really wrong. 

The third woman was a flight attendant, or stewardess, as we called them in the olden days. She lived in the midwest, but travelled all the time, and was frequently around NYC. She could also “deadhead” to Newark Airport, pretty much any time, so the long distance wasn’t an issue. And she could be based anywhere for her job, so if we really hit it off…

She arranged a deadhead flight to spend a weekend with me, and I was going to pick her up at the airport in my car. It was only a 20-30 minute drive from my place in Hoboken.

I was really looking forward to seeing her again. She was really cute, and more than a bit sexy. Who wouldn’t want a stewardess girlfriend? It would be like living in a sitcom. Imagine the high jinks!

I picked her up outside the terminal, I didn’t need to park up. She was extraordinarily drunk when I found her. She wasn’t quite to the point of falling down, but she was close. 

Turned out, the crew she flew with were friends of hers, and they  plied her with drinks during the entire trip for her ‘dirty weekend with her new man’. She gave me a really sloppy, lingering kiss. I told you it was like a sitcom.

We set off for my place, it wasn’t a long trip at all. At some point on the Pulaski Skyway, she asked me to pull over. There’s no shoulder on the Skyway. It’s an elevated highway, so there was no “pulling over”. 

Then she asked, “how do you roll down the (electric) window?”, but before I could answer, she threw up all over the inside of the passenger car door. 

Yep, she blew cookies. She chundered. You can choose your own euphemism, if you like.

We’d been together less than 20 minutes, and the mood was pretty much ruined. Though, on the plus side, it certainly sobered her up quickly. She couldn’t have been more apologetic if she tried. Or embarrassed. It was not the ideal way to start our long, sexy weekend.

When we got to my place, she had a shower, and brushed her teeth, while I attempted some damage control on the inside of my Toyota. 

When I got back upstairs, she was ready for more alcohol, and I could certainly use a drink at this point too. We shared a joint, and cuddled up on my sofa. And then she told me she was a virgin, but we could still do “stuff”.

At this point, virginity was becoming a running theme. I’ve run across so many women over the years, who prized their virginity, but still found ways to be sexually active. 

Call me old fashioned, that really always seemed to me like some serious hair splitting. It was real morality jiggery-pokery, and I struggled to understand how they made the math work in their heads.

We started fooling around on the sofa, and it didn’t take too long before we moved to the bedroom, to do more “stuff”. 

She had told me she liked whippets. They are little canisters of nitrous oxide, that you used to fill a balloon, and then you would inhale the gas, and get a very pleasant, and short-lived high. They’re fun in the bedroom, and for the most part fairly mild, and safe. You used to be able to get them in any head-shop in NYC, and they were cheap. 

And that’s how we spent the weekend. We drank, we smoked, we inhaled nitrous, and ordered takeaways. Hoboken had loads of great restaurants that delivered. I’m pretty sure we went into Manhattan and hung around too. And on the Sunday night, I brought her back to Newark Airport, and that was the last time I saw her. 

I had tried to clean the car as best I could, but it was still smelling funky on Sunday night. I had to get it professionally cleaned in the end. I never felt the same way about that car after that, and I ended up selling it around 6 months later to a guy I worked with at MTV. Sorry, Steve!

Now, for the final woman from the collection of four I gathered at that one PeopleLink meet-up. She was 15 years older than me, and we were together for around 6 months. I’m pretty sure I was her midlife crisis. 

I can remember her first name, but for the life of me, I can’t recall her surname.  I wish I could, I’d search for her online, and see what happened to her. She’d be 75 years old now. Yikes!

She had three kids, all daughters. The oldest was only a few years younger than me, and was at the time engaged to an aspiring airline pilot. She hated me. 

The youngest daughter was under 10. She could have been 6, she could have been 9, I don’t recall. She hated me, too.

The middle daughter was 16, or 17, and I’m fairly certain that she had a little crush on me. All of it was awkward. 

My older-woman GF worked in high finance, and had been involved with putting together the financing for some major Hollywood blockbusters. She drove a Maserati, and lived in a big house in a posh NJ town. She was often in the city. The first time I saw her after the event in Manhattan where we met was at my place. 

We had stayed in touch via PeopleLink, and we chatted occasionally. I wasn’t sure if she was into me, or if she was just friendly, until she suggested she drop by to visit me the next time she was in the neighbourhood. She ended up staying for a couple of days. Her intentions towards me were pretty clear by then. 

It was a real relationship. We even met each other’s parents. Technically, my time with her, counts as the third longest relationship I’ve ever had in my life. 

At the time, I was barely employed by MTV, and only attending some of my classes, before dropping out completely. I was hardly a prize boyfriend, but I don’t think anyone would have described me as her “toy boy” either. 

After around 6 months, she came to her senses, and dumped me. I didn’t take it well, but I didn’t put up a fight either. I never saw her again. 

If you think I was prolific with a computer, and modem, keep reading. In Part Three – All Good Things, I find even more ways to meet random strangers

(All words © Copyright 2023 – Doug – the northlondonhippy. All rights reserved)